Afleveringen
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FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty one years of living experience.
Episode 179 is discusses the upcoming 3 year anniversary of the FASD Hope podcast Series. Natalie and John Vecchione share what they've learned, their current struggles and the decision to take an unplanned break from FASD Hope.
"Be strong and take heart, all you who hope in the LORD." - Psalm 31:24
FASD Hope -Instagram - https://www.instagram.com/fasdhope/Facebook - https://www.facebook.com/fasdhope1Twitter - https://twitter.com/fasdhopeLinkedIn-https://www.linkedin.com/in/natalie-vecchione-17212160 HOPE FOR THE FASD JOURNEY COMMUNITY - https://www.justicefororphansny.org/hope-community -
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty one years of living experience.
Episode 178 welcomes back two-time guest, Lynn Alsup and celebrates the launch of her new book "Tinderbox: One Family's Story of Adoption, Neurodiversity, and Fierce Love".
From her book -
"Lynn Alsup is a social worker, spiritual director, and meditation teacher. Her three extraordinary, neurodivergent daughters led her to FASCETS, where she now trains parents and professionals in the Neurobehavioral Model - A paradigm that fosters the celebration and accommodation of neurodiversity. She lives with her family on the edge of the Chihuahuan Desert in Midland, Texas, building resilience and joy through writing, yoga, wide-open spaces, and snuggling her four-legged rescuer, Bryn the Bassador."
Listen to Lynn share the story behind her book, her family's transformation, and the story behind the book!
Episode Resources -
Lynn Alsup - https://www.lynnalsup.com/
You can purchase "Tinderbox: One Family's Story of Adoption, Neurodiversity, and Fierce Love" by Lynn Alsup wherever you purchase your books and at -
bookshop.org
https://bookshop.org/p/books/tinderbox-one-family-s-story-of-adoption-neurodiversity-and-fierce-love-lynn-alsup/19496217?ean=9781647425418
Amazon - https://www.amazon.com/Tinderbox-Familys-Adoption-Neurodiversity-Fierce/dp/1647425417
FASCETS - https://fascets.org/
FASD Hope -Instagram - https://www.instagram.com/fasdhope/Facebook - https://www.facebook.com/fasdhope1Twitter - https://twitter.com/fasdhopeLinkedIn-https://www.linkedin.com/in/natalie-vecchione-17212160 HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community -
Zijn er afleveringen die ontbreken?
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FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 21 years of living experience.
Episode 177 highlights the work, advocacy, podcast and newly released book of Patti Kasper. Patricia Kasper, MA, MTh, Trainer & Neurobehavioral Coach is committed to improving children’s lives by providing practical tools to parents and professionals, who care for children with brain based differences. Patti has worked in the fields of mental health and child welfare for over 30 years and she has worked with hundreds of foster and adoptive families. She has led workshops in the areas of adoption, trauma and resiliency attachment and neurobehavior for several years. Patti’s other work, as a hospice chaplain, has fueled her fire for helping others to live life well, and end the cycle of intergenerational trauma. Patti recently completed her year, long training to become a Facilitator of the FASCETS neurobehavioral model. Listen to Patti share her journey, work, advocacy, podcast “Living With FASD” and her newly released book “Sip By Sip: Candid Conversations with People Diagnosed with Fetal Alcohol Spectrum Disorder (FASD)”. Episode Resources- Patti Kasper - https://[email protected] "Living With FASD" podcast is available exclusively on Spotify podcasts. Also, video podcast episodes are available on You Tube as Patricia Kasper, Your FASD Coachhttps://www.youtube.com/@PatriciaKasperYourFASDCoach “Sip By Sip: Candid Conversations with People Diagnosed with Fetal Alcohol Spectrum Disorder (FASD)" by Patricia Kasper is available on Amazon.https://www.amazon.com/Sip-Conversations-Diagnosed-Spectrum-Disorder/dp/B0CGL4GSFX/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=&sr= FASD Hope -Instagram - https://www.instagram.com/fasdhope/Facebook - https://www.facebook.com/fasdhope1Twitter - https://twitter.com/fasdhopeLinkedIn-https://www.linkedin.com/in/natalie-vecchione-17212160 HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community -
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder, through the lens of parent advocates with over 21 years of living experience. Episode 176 is a two part episode- Jennifer Wisdahl, COO of FASD United, shares an IMPORTANT FASD Legislative Update and important events during September FASD Awareness Month and future FASD United events.Part 2 of this episode is the last update for the Run FASD 2023 Virtual 5K with Rebecca Tillou of Run FASD. The Run FASD Virtual 5K (your way!) will be held from September 9-17, 2023. EPISODE RESOURCES - FASD United - https://www.fasdunited.org Instagram - https://www.instagram.com/fasdunited/ Facebook - https://www.facebook.com/fasdunited Run FASD - https://www.runfasd.org Instagram - https://www.instagram.com/runfasd/Facebook - https://www.facebook.com/groups/489485015438968 FASD Hope - Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://www.twitter.com/fasdhope HOPE FOR THE FASD JOURNEY MEMBERSHIP COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
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FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty one years of living experience. Episode 175 is a BONUS episode and welcomes back Dr. Jerrod Brown with our "series within the series" - All About FASD. This month's topic is "FASD and Neurocounseling”. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher, and consultant with multiple years of experience in teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS and the Editor-In-Chief of Forensic Scholars Today (FST). This episode is a deep dive into neurocounseling and FASD. Some of the topics covered in this episode include: what is neurocounseling, psycho-physiology, psycho-education, the importance of understanding the neuro/bio/psychosocial connections, the potential benefits of neurocounseling with FASD and other brain based diagnoses, and a CALL TO ACTION for research about FASD & neurocounseling! EPISODE RESOURCES -Dr. Jerrod Brown - [email protected] Institute for the Advancement of Forensic Studies (AIAFS)- https://aiafs.com/Facebook - https://www.facebook.com/AIAFSAssocTwitter - https://twitter.com/AIAFS2011LinkedIn - https://www.linkedin.com/in/aiafs/ FASD Hope -Instagram - https://www.instagram.com/fasdhope/Facebook - https://www.facebook.com/fasdhope1Twitter - https://twitter.com/fasdhopeLinkedIn-https://www.linkedin.com/in/natalie-vecchione-17212160 HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
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FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty one years of living experience.
Episode 174 welcomes back Dr. Jessica Rutherford (Spotlight on FASD podcast in the UK) of NOFASD UK and welcomes Ailsa Clarke of Valiant Minds Education.
Jessica Rutherford, Ph.D. is the Education Coordinator and Researcher with the National Organisation for FASD (UK) and she recently completed her Ph.D. She is an experienced Fetal Alcohol Spectrum Disorder (FASD) specialist focusing on areas surrounding educational engagement and support. Jessica is also the co-host (along with FASD Parent Advocate, Clare Devanney-Glynn) of the podcast Spotlight on FASD.
Ailsa Clarke is a parent to a young son with FASD. She was a high school teacher for seventeen years, until she realized that unless she left her job, her son’s transition to school was unlikely to be successful. In supporting his transition, she realized two things: firstly, that teachers have rarely been made aware of FASD in their training and secondly, that there is often a gulf of misunderstanding between parents and teachers which needs to be bridged by someone who understands the pressures of both roles. The result of this lived experience is Valiant Minds Education, which works collaboratively with caregivers, school staff and young people with FASD to ensure that they have practical supports and strategies to help them succeed in education.
In this enlightening episode, Jessica shares the following: Jessica's update on the completion of her Ph.D., her research and work as Education Coordinator with NOFASD UK, the development and impending launch of their CRITICAL FASD Educational Program, her connection with Ailsa and Valiant Minds and a CALL TO ACTION!
Ailsa Clarke, FASD Parent Advocate and Educator with Valiant Minds Education, also shares: her family's story, how her son is learning to advocate for himself, how her professional background as a teacher is a valuable asset in her dual role as parent / educator in supporting families of those with FASD and other brain-based diagnoses with Valiant Minds Education.
EPISODE RESOURCES -
Jessica Rutherford, Ph.D.
LinkedIn - https://www.linkedin.com/in/jessicarutherford1/
Email - [email protected]
Jessica and Clare Devanney-Glynn's Podcast, Spotlight on FASD, is available anywhere you find your podcasts.
NOFASD UK-
https://nationalfasd.org.uk/
Facebook - https://www.facebook.com/NationalFASD
Instagram - https://www.instagram.com/nationalfasd/
VALIANT MINDS EDUCATION -
https://valiantmindseducation.com/
Facebook - https://www.facebook.com/profile.php?id=100094021083994
Instagram - https://www.instagram.com/valiantmindseducation/
LinkedIn - https://www.linkedin.com/in/valiantmindseducation/
Email - [email protected]
Phone - +44 (0)7917731436
FASD HOPE - Instagram - https://www.instagram.com/fasdhope/Facebook - https://www.facebook.com/fasdhope1Twitter - https://twitter.com/fasdhopeLinkedIn-https://www.linkedin.com/in/natalie-vecchione-17212160 HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community -
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty one years of living experience.
Episode 173 welcomes back Kathryn "Kat" Meinhardt (Episode 99 - "Kansas FASD Support Network") of Dream Acres: An FASD Community. Kathryn is a licensed social worker, foster/adoptive/bio mom, TBRI® Practitioner and FASD speaker/educator. She, along with her husband Cliff, parent 11 children 9 of whom experienced various levels of prenatal exposures. It was out of the realization that the teens would be needing supportive living and an initial plan of tiny houses on the farm for just their children that the idea of a community was birthed and Dream Acres came to life.
Dream Acres is a nonprofit organization and a proud FASD United Affiliate. Dream Acres is developing a brand new, supported living environment for individuals (ages 18-25) living with FASD. The small, family-style living will allow 2-3 residents to have private rooms and common areas in each cabin. Dream Acres will take great care to evaluate every applicant, so that everyone will be set up for success. On-site job training options will also fit the various interests of each resident. Potential career option and training includes food services, animal care, landscaping, agriculture, aquaponics and more!
*NOTE - If you are interested in applying for yourself or a loved one to Dream Acres, please use the code "FASD Hope" to waive the application fee!*
EPISODE RESOURCES:
Dream Acres -http://dreamacresfasdcommunity.orgEmail - [email protected] - https://www.facebook.com/DreamAcresFASDCommunityInstagram - https://www.instagram.com/dreamacresfasdcommunity/ Dream Acres is a proud sponsor of the Run FASD 2023 Virtual 5K! The Dream Acres FASD Mom's Retreat will be held November 3-5, 2023 at DREAM Acres.https://dreamacresfasdcommunity.org/index.php/fasd-moms-retreat/ FASD Hope Resources -Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/
HOPE FOR THE FASD JOURNEY MEMBERSHIP COMMUNITY
with Sandra Flach and Natalie Vecchione -
https://www.justicefororphansny.org/hope-community
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FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty one years of living experience.
Episode 172 features Carl Young of FASD North Dakota and Family Services Network, Inc. Carl Young, a self-described introvert, calls North Dakota home, where he lives with his bride of 29 years, and is close to his five children and three grandchildren. Carl got his start in advocacy more than 15 years ago when he had to fight for care for his youngest son's mental health issues. Over time, he became active in various boards and committees at the local, state and national levels. In 2018, he and his wife founded the Family Services Network, Inc, which would become the home of FASD- North Dakota. For the last 10 years, he has been a lobbyist and educator for his state legislature in all matters related to FASD and mental health. Recently, he was honored to be granted a fellowship at the University of Utah for work on neurodivergent issues, specifically related to FASD. Carl has been on disability since 2013, with a life changing auto-immune disorder called Systemic Lupus. He may need to take frequent breaks, but doesn't let the disease slow his efforts to help others. Learn about the exciting growth, legislation and supports of FASD North Dakota, an FASD United Affiliate! EPISODE RESOURCES -FASD North Dakota - www.fasdnd.comFacebook - https://www.facebook.com/FASDNorthDakotaLinkedIn - https://www.linkedin.com/in/fasdadTwitter - https://twitter.com/[email protected]FASD Hope Resources -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
“HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH"
“Hope for the FASD Journey is a faith-based, membership support community for parents and caregivers of individuals prenatally exposed to alcohol and other substances. Led by Natalie Vecchione of the FASD Hope Podcast and Sandra Flach of the Adoption & Foster Care Journey Podcast— 2 moms living the FASD experience. With more than 20 years of adoptive parenting each, Natalie & Sandra offer abundant knowledge and resources to provide hope to families on this journey.“
TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -
https://www.justicefororphansny.org/hope-community
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FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of living experience.
Episode 171 is an extraordinary bonus episode with award winning author / speaker / musician/ FASD Self Advocate legend, Liz Kulp. Liz has written 3 books, through her adolescence through adulthood, about her living with an FASD. She is a musician and performed at the Minnesota State Capitol. Liz is a wig artist and she began a program called “Liz’s Kitchen” to create videos for people with memory issues. FASD Hope is honored to give Liz a platform to share her journey. This conversation took place while Liz is in the hospital, awaiting a transplant. Episode Resources :Liz Kulp's Books-The Best I Can Be: Living with Fetal Alcohol Syndrome or Effects https://a.co/d/2gzPRY3 Braided Cord: Tough Times In and Out https://a.co/d/jkx9TmY New Beginning: Better Than This https://a.co/d/4X3zAEN Jodee Kulp -Red Shoes Rock - https://redshoesrock.com/Facebook - https://www.facebook.com/RedShoesRockInstagram - https://www.instagram.com/redshoesrock_fasdaware/ Jodee's Books-Our FAScinating Journey: Keys to Brain Potential Along the Path of Prenatal Brain Injury https://a.co/d/ef8kDrz The Whitest Wall (Bootleg Brothers) (Mom's Choice Awards Recipient) https://a.co/d/2sEOqp0 Broken Heart: Dealing with Feelings of Loss and Understanding Grief https://a.co/d/ezINYIM FASD HOPE RESOURCES -Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione -
https://www.justicefororphansny.org/hope-community
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FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of living experience.
Episode 170 welcomes back Dr. Jerrod Brown with our "series within the series" - All About FASD. This month's topic is "Energy Drinks and FASD".
Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher, and consultant with multiple years of experience in teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS and the Editor-In-Chief of Forensic Scholars Today (FST).
This episode is a deep dive into energy drinks and FASD. Some of the topics covered in this episode include: the importance of understanding what effects that energy drinks have in all spheres of health, how energy drink consumption is detrimental to physical / emotional / cognitive functioning, how energy drinks can exponentially affect dysregulation (physical and emotional) with brain-based / whole body diagnoses (particularly FASD) and potential resources and strategies to implement protective factors towards a healthier eating lifestyle.
* NOTE - This episode is for informational purposes and resource sharing purposes only. It is NOT intended to take the place of a medical professional who is knowledgeable in nutrition and FASD.*
EPISODE RESOURCES -
Dr. Jerrod Brown - [email protected]
American Institute for the Advancement of Forensic Studies (AIAFS)- https://aiafs.com/
Facebook - https://www.facebook.com/AIAFSAssoc
Twitter - https://twitter.com/AIAFS2011
LinkedIn - https://www.linkedin.com/in/aiafs/
FASD Hope -Instagram - https://www.instagram.com/fasdhope/Facebook - https://www.facebook.com/fasdhope1Twitter - https://twitter.com/fasdhopeLinkedIn-https://www.linkedin.com/in/natalie-vecchione-17212160 HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community -
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 20 years of living experience. Episode 169 is a BONUS EPISODE with Jennifer Wisdahl , COO of FASD United . Jenn shares an IMPORTANT FASD Legislative Update about The FASD Respect Act and upcoming events with FASD United, which include: - The FASD Respect Act S.1800 / H.R. 3946 which has been introduced in both the US Senate and US House of Representatives- The Vancouver Conference in Seattle in Spring 2024- The National FASD Impact Week / FASD at 50 - September 18-21, 2023- The FASD and Education Survey- Run FASD 2023 Virtual 5K EPISODE RESOURCES - FASD United -https://www.fasdunited.org The FASD Respect Acthttps://nofaspolicycenter.org/the-fasd-respect-act/ The Vancouver Conference in Seattlehttps://fasdunited.org/the-vancouver-conference-in-seattle/ National FASD Impact Week -https://fasdunited.org/national-fasd-impact-week/ FASD & Education Survey -https://www.surveymonkey.com/r/FASDEducation Run FASD Virtual 5Khttps://www.runfasd.org FASD Hope -Instagram - https://www.instagram.com/fasdhope/Facebook - https://www.facebook.com/fasdhope1Twitter - https://twitter.com/fasdhopeLinkedIn-https://www.linkedin.com/in/natalie-vecchione-17212160HOPE FOR THE FASD JOURNEY MEMBERSHIP COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
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FASD Hope is a podcast about FASD (Fetal Alcohol Spectrum Disorder), through the lens of parent advocates with over 20 years of living experience. Episode 168 highlights CAMP FASD with Nicholas Tassone (President and Co-Founder) and Emma Melendez-Scherer (Chief Administrative Officer). The purpose of CAMP FASD is to provide children with FASD a positive and safe environment in which to build skills that will assist them in everyday life. Accordingly, their contributions are recognized and appreciated, thereby creating a constructive experience and increased self-image. The vision of CAMP FASD is to be recognized as a leading resource for FASD by children and their families, demonstrated by the differences made in their lives. (Source - CAMP FASD) In this episode, Nick and Emma share: how CAMP FASD was formed, the growth of CAMP FASD, details about the CAMP FASD experience and how listeners can learn more about CAMP FASD for 2024. (Note -The Registration for this year's 2023 CAMP FASD is full.) Episode Resources :CAMP FASD - Instagram: https://www.instagram.com/fasdcamp (@fasdcamp)Facebook: https://www.facebook.com/fasdcamp @ CAMP- A FASD Community)Website link: https://www.fasdcamp.org/Email at [email protected] Direct Link for Camp FASD Registration Form:https://forms.gle/6jG7d1LkRzSnYrSA7 Donation Link for CAMP FASD: https://www.fasdcamp.org/contribute FASD Hope -Instagram - https://www.instagram.com/fasdhope/Facebook - https://www.facebook.com/fasdhope1Twitter- https://www.twitter.com/fasdhope HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
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FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder, through the lens of parent advocates with over 20 years of living experience. In this two part episode, Jennifer Wisdahl, COO of FASD United first shares an IMPORTANT FASD Legislative Update and upcoming happenings of FASD United. Part 2 of this episode is a kick off for the Run FASD 2023 registration and information discussion with Rebecca Tillou of Run FASD. The Run FASD Virtual 5K (your way!) will be held from September 9-17, 2023 EPISODE RESOURCES - FASD United -https://www.fasdunited.orgInstagram - https://www.instagram.com/fasdunited/Facebook - https://www.facebook.com/fasdunited Run FASD -https://www.runfasd.orgInstagram - https://www.instagram.com/runfasd/Facebook - https://www.facebook.com/groups/489485015438968 FASD Hope -Instagram - https://www.instagram.com/fasdhope/Facebook - https://www.facebook.com/fasdhope1Twitter - https://www.twitter.com/fasdhope HOPE FOR THE FASD JOURNEY MEMBERSHIP COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
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FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of living experience.
Episode 166 welcomes back Dr. Jerrod Brown with our "series within the series" - All About FASD. This month's topic is "Excessive Sugar Consumption and FASD.
Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher, and consultant with multiple years of experience in teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS and the Editor-In-Chief of Forensic Scholars Today (FST).
This episode is a deep dive into excessive sugar consumption and FASD. Some of the topics covered in this episode include: how excessive sugar consumption is detrimental to physical / emotional / cognitive/ regulatory aspects of health, how Prenatal Alcohol Exposure can affect the ability to metabolize sugar, why excessive sugar consumption is craved by individuals with brain-based / whole body diagnoses (particularly FASD) and potential resources and strategies to implement a healthier eating lifestyle.
* NOTE - This episode is for informational purposes and resource sharing purposes only. It is NOT intended to take the place of a medical professional who is knowledgeable in nutrition and FASD.*
EPISODE RESOURCES -
Dr. Jerrod Brown - [email protected]
American Institute for the Advancement of Forensic Studies (AIAFS) -
https://aiafs/com/
Facebook - https://www.faceboook.com/AIAFSTraining
Instagram - https://www.instagram.com/aiafsassoc/
Twitter - https://twitter.com/AIAFS2011
FASD Hope Resources -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione -
https://www.justicefororphansny.org/hope-community
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FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 20 years of living experience.
Episode 165 welcomes back Laura Bedard (Ep. 149 / September 2022) of MASSFAS, an FASD United Affiliate. Laura recently published her second book titled "My FASD Feelings: A Guide to Children's Experience with Fetal Alcohol Spectrum Disorders". Laura is also a Family Navigator with FASD United.
In this hope-filled episode, Laura shares: her family's FASD journey, the inspiration behind her second book, how this book is a resource on different levels, FASD United's "Family Navigator" program (and how many people have been assisted through the Family Navigator program), advocating in the trenches of her family's FASD journey and words of encouragement and hope.
"FASD United Family Navigator is, confidential, and free. We help caregiver, parents, birth parents, professionals, and individuals with FASD. This also includes people who are pregnant or intending to become pregnant that may have questions about alcohol or substance use. We offer one-on-one peer support, referrals to resources and services, information about prenatal alcohol exposure."
EPISODE RESOURCES -
FASD United - https://fasdunited.org
Family Navigator Program through FASD United -
https://fasdunited.org/family-navigator/
The Family Navigator Phone Number that Laura shared in this episode is -
202-785-4584
Mondays - Fridays between 9 am and 10 pm Eastern Time
Laura's Books -
"My FASD Feelings: A Guide to Children's Experience with Fetal Alcohol Spectrum Disorders" by Jennifer Robinson, Ph.D, LMHC and Laura Bedard, MFA
https://www.amazon.com/FASD-Feelings-Childrens-Experience-Disorders/dp/1977260489/ref=sr_1_1?crid=2NIMHG3V6G0DP&keywords=my+fasd+feelings&qid=1683310079&sprefix=my+fasd+feelings%2Caps%2C89&sr=8-1
"My Adoption Feelings: A Guide to Children's Experience with Adoption" by Jennifer Robinson, LMHC and Laura Bedard, MFA
https://www.amazon.com/My-Adoption-Feelings-Childrens-Experience/dp/1478773057/ref=sr_1_1?crid=TR63PXTZVMNX&keywords=my+adoption+feelings&qid=1683310147&sprefix=my+adoptin+feelings%2Caps%2C100&sr=8-1
FASD Hope Resources -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione -
https://www.justicefororphansny.org/hope-community
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FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder, through the lens of parent advocates with over 20 years of living experience.
It's been over 6 months since Natalie Vecchione has released an episode, which was thought to be the last episode. After much prayer and contemplation, Natalie realized that FASD Hope was needed in the FASD Community, even if the frequency of episodes would be reduced.
In this episode, Natalie has a heart to heart conversation with Jennifer Wisdahl, COO of FASD United. Natalie shares her heart and her journey of the past 6 months and what pulled her back to FASD Hope. Jennifer shares a FASD Legislative Update, the MANY new programs and updates with FASD United and upcoming happenings of FASD United. Welcome back to FASD Hope!
"Hope is being able to see that there is light despite all of the darkness."
- Bishop Desmond Tutu
EPISODE RESOURCES -
FASD United -
https://www.fasdunited.org
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione -
https://www.justicefororphansny.org/hope-community
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FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 163 is our FINAL episode of FASD Hope. For over two years, we have been blessed to be a voice for giving IMPORTANT guests a platform to share their journeys, experience, research, clinical work, legislative activity, philanthropy and inspiration for the FASD Community! Thank you for listening to our small but mighty family podcast about FASD. We're certainly not experts and we're still on this journey, too. It’s now time for us to focus even more on our family, navigate what lies ahead, and face uncertainty with faith and fortitude.
We're SO thankful to be ending this amazing journey by leaving over 160+ episodes of FASD Hope! Thank you for listening, take care and always have HOPE!
"The LORD will fight for you; you need only to be still." - Exodus 14:14
Sincerely,
Natalie and John Vecchione
FASD Hope
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FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
November is National Adoption Month and FASD Hope is honored to highlight Andrew Bridge in Episode 162.
Leaving foster care at eighteen, Andrew Bridge attended Wesleyan University, then graduated from Harvard Law School and he was awarded a Fulbright Fellowship. He began his legal career representing children in mental health facilities across Alabama. His work as an attorney and an advocate enforced children's constitutional rights to be free from staff abuse and to receive meaningful psychiatric care.
Andrew returned home to Los Angeles as the CEO of The Alliance for Children's Rights. He defended children at MacLaren Hall, where he was once confined. He won the right for Los Angeles' 60,000 foster children to speak publicly about their treatment. He investigated the excessive removal of African-American babies from their parents, which led to one of the first government initiatives to stop it. Andrew is the Co-Founder of National Adoption Day. He went on to lead one of California's largest recruiters of foster and adoptive parents.
Called to address the unjustified placement of foster children in mental institutions, Andrew has served as a Senior Advisor to the State of Illinois. His educational work resulted in the creation of New Village Girls Academy, California's first all-girls high school for parenting teens. Andrew serves on Arizona's Foster Care Review Board and he consults with child welfare systems and foundations.
Andrew is also the author of the New York Times AND Los Angeles Times BEST SELLER book, "Hope's Boy: A Memoir". The Washington Post named "Hope's Boy" one of it's Best Books of the Year, with a review that called it "filled with vivid scenes and empathetic description...compulsively readable".
In this THOUGHT-PROVOKING episode, Andrew shares: his personal journey and lived experience as a foster child in the Los Angeles Foster Care System, his journey in becoming an attorney and child rights advocate, insights and discussion points from "Hope's Boy", the punitive nature that was / still exists in child welfare systems, his thoughts on how to educate those in the child welfare system about FASD and other brain-based diagnoses, the beginnings of "National Adoption Day" in 2000 and how it's grown, his current work and initiatives and words of hope and encouragement.
EPISODE RESOURCES -
Andrew Bridge -
Hope’s Boy - https://hopesboy.com
LinkedIn - https://www.linkedin.com/in/andrew-bridge-667860210/
FASD Hope Resources -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
“HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH
TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -
https://www.justicefororphansny.org/hope-community
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy
BUY IT NOW!
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FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 161 is the FINAL FASCETS Friday Episode in which Episode 81 Guest, Lynn Alsup of FASCETS and her daughter, Clare, share how their family was transformed by the FASCETS Neurobehavioral Model. Lynn was our first "FASCETS Friday" guest in Episode 81 - airdate September 14, 2021.
In this ENLIGHTENING episode, Lynn and Clare share the following: Lynn's work in FASCETS and the progress of her upcoming memoir, their family's FASD journey / life before Clare's FASD diagnosis, learning about the FASCETS Neurobehavioral Model and how it TRANSFORMED their family, how their family is doing now, Clare's accomplishments / important insight and words of hope and encouragement.
FASCETS RESOURCES -
FASCETS Website - https://fascets.org/
Facebook - https://www.facebook.com/FASCETS
Instagram - https://www.instagram.com/fascets_inc/
Twitter - https://twitter.com/FASCETS2
FASD Hope Resources -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
“HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH
TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -
https://www.justicefororphansny.org/hope-community
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy
BUY IT NOW!
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FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 160 celebrates the AMAZING advocacy, work and fellowship of the Rural FASD Support Network (Ontario, CA). The Rural FASD Support Network was founded by a small group of volunteers with personal knowledge of & lived experience with FASD in rural Ontario (Canada). Today's conversation is with Rob More, Secretary of Rural FASD. Rob and his wife Shelley are proud parents of three amazing young adult children impacted by FASD. Rob, Shelley and four other dedicated volunteers are the co-founders of the Rural FASD Support Network of Eastern Ontario, which is currently the largest, nonprofit, lived disability experience in Canada following "Nothing For Us Without Us".
In this HOPE-FILLED EPISODE, Rob shares the following: the history of the Rural FASD Support Network, the exponential growth & key developments of Rural FASD, the diversity & representation of Rural FASD, the exciting legislative update of the National FASD Framework Legislation in Canada (and how Rural FASD and others advocated on Parliament Hill on October 20th), the blessings (and challenges) of living in a rural area as a family of those with FASD and words of hope and encouragement.
"As you have therefore have received Christ Jesus the Lord, so walk in Him, rooted and built up in Him and established in the faith, as you have been taught, abounding in it with thanksgiving." - Colossians 2: 6-7
EPISODE RESOURCES -
Rural FASD -
https://ruralfasd.ca/
email - [email protected]
Instagram - https://www.instagram.com/ruralfasd/
Twitter - https://twitter.com/FasdRural
FASD Hope Resources -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
“HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH
TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -
https://www.justicefororphansny.org/hope-community
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy
BUY IT NOW!
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