Afleveringen
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This ENCORE episode features host Mary Anne Oglesby-Sutherly and Teepa Snow, discussing honestly about hospice and dementia. Teepa's "The Positive Approach to Care" (PAC) is by far the greatest influence for Mary Anne's vision and work-ethic, otherwise known as "The Veranda Ministries."
www.verandaministries.org
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This is part two continuing with the true story about a remarkable man Mary Anne Oglesby-Sutherly cared for, for almost two years. She briefly discussed him in episode 62, finishing the story today.
Randy’s sad journey and experience into a geriatric psych unit is not rare. Mary Anne has a large box of files documented with stories just like Randy's. Some geri psych units have good outcomes, but "good" has not been the Veranda's experience with their clients in some geri psych programs.
Better skills through "Relationship-Based Care" and training to combat behaviors is the right thing to do. Residents of Tennessee need to stand up for those dying of inappropriate care, especially in the field of dementia care.
www.verandaministries.org
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Zijn er afleveringen die ontbreken?
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Nadine will be long remembered as a faithful volunteer and servant. She was a true friend of Veranda Ministries and a true treasure to everyone who knew her.The best part of this story is listening to Mary Anne Oglesby-Sutherly share her bond with Nadine as her advocate, EOLD/Dementia Doula. Relationship-based care was in full operation, and there's no doubt that we all can learn from this example of love.
This episode also includes part one of Randy’s story, a journey no family wants to take. His treatment in an emergency room and the care he received in a specialized unit are ones no family should have to endure.
Mary Anne's outrage over his care (and lack thereof) is the result of a disheartening and unfortunate commonplace experience of how those living with dementia are treated in some medical facilities and specialized units around the country. PLWD deserve better care.
www.verandaministries.org
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Research tells us how people think about aging, the elderly, and abuse - finds that people very quickly and unconsciously draw a line between older people and the “rest of us.” This mindset isn’t restricted to how we think about the elderly and the problems it creates; it contributes to a range of social issues, including racial and economic discrimination. But why does it seem more prevalent in this particular aging group we call "seniors", no matter the color of their skin?
Mary Anne Oglesby-Sutherly and producer, Sue Duffield, take the word "advocacy" to heart and to a new level. It's time for non-profits, churches and ministries to seriously examine how they treat, care and recognize the elderly in their organizations.
Also mentioned on this episode is the new video release from the Veranda Ministries, "Dementia's Hidden Heroes", available on YouTube - https://youtu.be/lemoJAp8Yos?si=oOpwXPpMhb3N7M7h
The amazing story of "The Fifth Sparrow", also mentioned on this episode, is a great reminder of the value each soul has in the kingdom of God, no matter what side of the tracks you're from. Reference made at about the 15 minute mark on this church's YouTube episode: https://www.youtube.com/live/4OYIIkUV-F4?si=X8_zbRHb7ZghqYc9
www.verandaministries.org
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The Veranda Ministries truly knows that every caregiver is desperate for any single sign of hope and joy regarding their loved one’s dismal future of a dementia diagnosis. Telling their stories is one way to ensure a message of optimism and encouragement is paramount to everyone. For a loved one whose world is collapsing, this is the best therapy — telling the truth about the disease but loving the individual more, no matter what stage.
Mary Anne Oglesby-Sutherly and Sue Duffield share personal stories of family along with clients of Veranda Ministries. And while culturally, what isn’t as frequently discussed – if at all – are the bright and deeply emotional experiences of dementia. It’s a challenging disease, often destroying families. Socialization is one, if not THE most important way you can help a loved one. Many family members are fearful and not very comfortable around their family member with dementia, and as a result, tend to stop visits or even abandon them altogether. It’s important to continue finding ways to help them feel loved and socially connected. It doesn’t always have to be all bad.
www.verandaministries.org
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Host Mary Anne Oglesby-Sutherly and producer, Sue Duffield revisit the amazing and healing story of one of Mary Anne's exceptional clients, Martha. It was Martha's dignity that was challenged with incontinence, but to the quick thinking of those around her, she was spared the horror of the embarrassment of losing bodily functions in a public place.
One day you may find that someone you care about — a spouse, parent, relative, or close friend — needs help negotiating the very simple daily tasks of life. Perhaps that day has already come. There is so much to learn here in this episode. Caregivers worldwide deal with this kind of thing every day. But understanding that the loved one with a cognitive disability is always forefront, doing whatever it takes to make them comfortable, even using a brand new coat to cover and protect the new seat in a truck, is quite okay.
www.theverandaministries.org
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This episode starts out chaotic, fun, frivolous and hilarious - talking carrot cake and nudist camps - all in the same breath! Host Mary Anne Oglesby-Sutherly and producer Sue Duffield, take the rabbit trail down that crazy path of spilled medicine caplets, Mark Lowry's giant custom pill box container, to even talking (as friends do) about the dilemma of knowing whether or not you're taking the right pill at the right time, or if you took it at all, for that matter!
Also discussed on this episode is Electroconvulsive therapy (ECT) that is recently becoming the "go to" therapy in treatment-resistant depression, or those with dementia and compromised brain health. The safety, however, of ECT has been consistently questioned, particularly among elderly patients with cognitive impairment. Mary Anne greatly questions the use of this kind of therapy with dementia patients and has seen personally the "not so good" results.
The Veranda Ministries is a compassionate oasis allowing caregivers to entrust their loved ones with care on a daily basis. And so is the heart of this podcast, to "do the right thing, for the right reason."
www.theverandaministries.org
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Mary Anne Oglesby-Sutherly and her sidekick-producer Sue Duffield, take this episode down a memory lane right from the start. The one thing that stands out the most is not only their reminiscent ways reliving the corner drug store experience, but also the difficulty of navigating the larger box store pharmacies, especially for the elderly.
With an average of 11,000 people turning 65-years-old every single day, understanding and meeting the diversified needs of a new generation of older adults has never been more important, especially with medication and pharmacies. The desire for specialty pharmacies plays a critical role engaging with these older patients, but only if they are able to completely understand this generation’s needs, changing their preconceived notions about aging, and delivering services that are designed to meet them where they are.
Bottom line: We need a community-driven, caring experience for all those in the aging population, especially when it comes to medication. As Mary Anne says, "We're making it too hard to be kind."
www.verandaministries.org
mailto:[email protected]
Thursday Night 7pm - July 18th, 2024 Veranda Ministries Benefit with Mark Lowry, Hillcrest Baptist Church,621 Hartsville Pike, Lebanon, TN37087
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Episode 56 is a continuation from previous episode 55 (Unmerited Favor: A Daughter's Love Caring for Both Parents with Dementia) with Mary Gail Anderson, an adult child of two parents suffering with dementia and Parkinson's. This is caregiving to the absolute ultimate. Her exact words, when dealing with the medical professionals are, "question everything." Seriously, question everything.
As someone ages with dementia-like diseases and/or Parkinson's, their health appears to deteriorate in a way that can seem slow at first. It's as if they are inching toward a cliff — and when they fall off, they find themselves on another health cliff, and another, and another. With each cliff, it gets more difficult for a family member to catch them.
Mary Gail's compelling story hopes to encourage all caregivers to constantly do in-depth research when it comes to medical care for their loved ones.
www.verandaministries.org
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People with Alzheimer’s disease and related dementias are usually cared for by family members or friends. The majority of people with Alzheimer’s disease and related dementias receive care in their homes. Each year, more than 16 million Americans provide more than 17 billion hours of unpaid care for family and friends with Alzheimer’s disease and related dementias.
In 2023, these caregivers provided an estimated 18.5 billion hours of care. Approximately two-thirds of dementia caregivers are women, about one in three caregivers is age 65 or older, and approximately one-quarter of dementia caregivers are the “sandwich generation” caregivers, meaning that they care not only for an aging parent, but also for children under age 18.
...And then there's Mary Gail. This episode will uncover the enormous level of grace and mercy that Mary Gail gave in caregiving for her parents. You will cry; you will laugh; and mostly, you'll be shocked at how benevolent and merciful this daughter of two parents is, serving and doing what she believed to be "the right thing to do."
This is part one... Part two is coming in the next episode.
www.verandaministries.org
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An exceptional and informative episode with guest, Anna Marie Adams (Certified End-of-Life Doula and founder of the International Doula Life Movement) will encourage all caregivers to realize the value of the extensive care a doula can bring to every member of a family. Host Mary Anne Oglesby-Sutherly and Anna understand the impact of helping thousands of families during their most critical times when dementia and death happens with their loved ones.
Questions answered during this episode are: What does it mean to be an End-of-Life doula? What are some of the ways to work through obstacles of helping families and their communities? And what are the top three important characteristics of relationship-based care when it comes to end-of-life?
Anna's goal is to ensure that every person in her care receives the comfort, dignity, and respect they deserve during this most sacred transition called death.
www.theverandaministries.org
www.internationaldoulalifemovement.com
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Sue Duffield, producer of the Aging Angst and Alleuias Podcast as well as newly appointed board member of the Veranda Ministries, takes her frivolity on-location broadcasting to one of the biggest days on the Veranda Calendar - Derby Day! Imagine staff and volunteers using wheeled walkers with inflated horses' heads attached, racing on the parking lot, creating howling applause and laughter by all attendees, especially those with dementia! This was a day filled with hee-haw-like joy, and this episode just gives a small glimpse into the world of dementia and the desperate need for those with cognitive impairment to have a day to be normal. As Barbara, one of the precious clients of the Veranda, says at the very end, "It's good for my brain. I love coming here."
www.theverandaministries.org
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Host Mary Anne Oglesby-Sutherly is definitely “The Keeper of Their Stories”. This realm and reality of her clients and the family of caregivers with dementia, enhances the dignity of physical hygiene and bathing to the understanding of routine. Dementia care is never an excuse for mistreatment or disrespect.
Mary Anne is also a clinician on the road, taking her workshops and speaking to places like Lipscomb University, Welch College and also the Timesavers’ Proactive Aging Event at Southern Kentucky University’s WCPL Memory Café. Mary Anne’s visionary force of encouraging “on-the-road” facilitating has her experiencing many young people’s interest in relationship based care and the value of education and training in the ProActive aging field.
Coming soon is a brand new video featuring the stories and people behind those stories from the Veranda Ministries. For more information get on www.verandaministries.org
Other resources worth visiting: www.dementiaminds.org and www.sokyhappenings.com/2024/03/timesavers-announces-proactive-aging-series-event/
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Sometimes dealing with dementia and the end-of-life process can be as clear as mud. But today’s guest, Helen Bauer, comes as an expert in hospice care with exceptional detail that every care-partner needs. You’ll hear phrases like “senile degeneration of the brain” and “the difficulty in assessing someone with dementia at end-of-life with only a snap chat” and “the importance of education and mutual understanding of grief.” All this, and a whole lot more, during this episode includes the value of “touch, gentleness, respect and how the patient is spoken to." This is the personhood and perspective of Helen Bauer.
Helen Bauer, BSN RN CHPN, End of Life Educator and Advocate (The Heart of Hospice, LLC) has worked in nursing for over 30 years, specializing in hospice and end-of-life care since 2009. She is a Certified Hospice and Palliative Care Registered Nurse with a background in compliance and consulting. As owner of The Heart of Hospice, she provides end-of-life education and consulting for services for both hospice providers and consumers. The Heart of Hospice Podcast is in its eighth season as a high-ranking international podcast, heard on many networks.
More about Helen Bauer: www.theheartofhospice.com
www.theheartofhospice.com/podcast
www.theheartofhospice.com/services
www.theverandaministries.org
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It’s not unusual to have difficulty finding the right word or remembering where you put things. But persistent problems with memory or the ability to perform everyday tasks might be signs of something more serious.
An "Early Onset of Dementia" or "Mild Cognitive Impairment" diagnosis can be a sudden blow to any family. In this case and on this episode, gospel musician, Josh Singletary, shares about his Mom with a recent diagnosis of dementia. His honesty of the unknown road ahead makes this a vulnerable story of a family trying to pull together for their loved one.
Josh’s love for his Mom, his knowledge of music and faith in the Lord and his family's desire to walk this unknown territory with their eyes wide open, is encouraging for any family walking this dementia journey.
www.verandaministries.org
www.joshsingletary.com
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This episode with guest, Gay Gingrich, RN, BSN, and host Mary Anne Oglesby-Sutherly, shares how both women met through their studies with Teepa Snow's “Positive Approach to Care.” The discussion begins with two new friends with shared interests and passion for those with dementia as well as Gay’s obvious love of her work as a Geriatric Psych Nurse.
Gay’s approach to caring for those living with dementia is that of relationships, compassion, and a different perspective of care. She discusses how she believes it’s a better approach when these principles are adhered to. Gay’s faith is of utmost importance to her daily walk and the care given to her patients. It's an unwavering belief that there is a better more compassionate way to care for and give hope to families along with those living with dementia. There is a much better way to help those with no voice in today’s society. We must all come together and seek that better way.
www.verandaministries.org
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Mary Anne Oglesby-Sutherly's mother's homegoing happened on a Leap Year. As with any family losing a loved one, the anniversary of that loved one's death comes in a tsunami-like wave of great proportion each year. But February 29th only happens every four years, and obviously, it can make the intensity of the weight of grief even more difficult.
Take a drive "across that Memphis Bridge" with Mary Anne as she revisits the most difficult days of her life. She shares how the broken system of her parents' care throttles her passion in offering hope for caregivers by fascillitating The Veranda Ministries respite program for those with dementia and Alzheimer's.
Supportive friends and family, along with your own quality of health and well-being, can play a role in how grief impacts you following bereavement. It’s important to know that there are healthy ways to cope with grief. Life may never be quite the same again, but honoring your loved one on those anniversaries can bring hope and optimism as you move forward with your life.
www.verandaministries.org
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Mary Anne Oglesby-Sutherly's guest is Brenda Powers, a registered nurse specializing in geriatric care, with a strong focus on supporting the aging population, especially those with dementia. Brenda has actively contributed enhancing geriatric care through workforce development panels, aiding in devloping dementia education programs like the Vanderbilt Nurse Practitioner School and participating on boards dedicated to the health care improvement within the aging community.
This episode is a difficult reality to hear, speciifically addressing the truth about unment needs and the use of medications for those living with dementia. Families of demetia loved ones need to heed and be aware. Practical, insightful and filled with hands-on advocacy, this episode is just the beginning of the dialogue between Brenda and Mary Anne.
www.verandaministries.org
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Episode 46 from the #agingangstandalleluiaspodcast, featuring host Mary Anne Oglesby-Sutherly and Teepa Snow, is a candid and vulnerably honest dialogue about hospice and dementia. The hunger for knowledge to help others began with Mary Anne's desire to experience Teepa and The Positive Approach to Care (PAC) Team, bringing it to fruition, for without this team, there would be no Veranda Ministries.
www.verandaministries.org
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With relationship-based approach for individuals with dementia, human touch plays an important role in promoting overall well-being. There's nothing quite like a hug or holding hands to promote a physical relaxation response. It's known to reduce levels of cortisol, a hormone released during times of stress. And there's no difference between those with or without dementia in that response.
The Veranda Ministries offers caregivers the role of "Second Family", as each day, clients are treated with great care and personal attention. When one of the Veranda "chosen" passes on, it's not unlikely that the remaining friends and staff also go through their own kind of grief. Much like Miss Jane, Yvonne and Ricky, you will hear the heart-felt journey that each one took, as Mary Anne Oglesby-Sutherly tells their moving stories.
Caregivers need aftercare too.
www.theverandaministries.org
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