Afleveringen

  • The Powerful Impact of the IBD Community Featuring Katie Neu

    The Powerful Impact of the IBD Community Featuring Katie Neu

    · About IBD

    Episode transcript and more information at: https://bit.ly/AIBD202

    Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel Disease." A survey of more than 500 patients puts a spotlight on the ways IBD affects body image, relationships, intimacy, and mental health. Amber and Katie discuss masking symptoms, the difficulties of working a corporate job, and why having community is critical. Chapters 00:05 — Host Amber Tresca introduces the podcast and her guest, Katie Neu, who lives with Crohn's disease. 01:25 — Amber and Katie discuss the IBD Social Circle, a community for patients, caregivers, and healthcare professionals. 04:25 — The conversation turns to the experience of "faking being well" to manage social and professional expectations with an invisible illness. 10:17 — Katie shares her experiences with the stigma surrounding IBD, from high school and college to the workplace. 13:59 — The discussion focuses on the significant barriers to maintaining a career while living with IBD, including needing accommodations. 23:20 — Amber and Katie discuss the impact of IBD on body image, dating, and intimate relationships. 31:26 — The hosts talk about why people hesitate to join support groups and the mental health benefits of finding community. 37:08 — Katie shares where listeners can find her online, including her Instagram and Substack, to connect and learn more.

    The IBD Social Circle White Paper: The power of community in inflammatory bowel disease

    Find Katie Neu of Badass With a Bad Ass at:

    Instagram: @badass.w.a.bad.ass LinkedIn: @badasswithabadass

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • Yoga Therapy for IBD: Why Acceptance is the Best Teacher With Bari Gratton

    Yoga Therapy for IBD: Why Acceptance is the Best Teacher With Bari Gratton

    · About IBD

    After a devastating Crohn's disease flare, marketing executive Bari Gratton traded a high-stress career for the healing path of yoga therapy in California. Bari joins Amber Tresca to discuss the "Five Layers of Being," the toxicity of "pushing through," and how she is building community for the next generation of IBD patients.

    Episode transcript and more information at: https://bit.ly/AIBD201

    Key Chapters & Timestamps:

    [00:00:00] – Welcome to About IBD with Amber Tresca [00:04:40] – Diagnosis in the late 90s: Life as a teen with Crohn's [00:12:35] – The 2017 Crisis: Three surgeries and a temporary ostomy [00:19:40] – The Barn Door Moment: Finding safety in a yoga studio [00:23:00] – Healing the Next Generation: Camp Oasis and teen advocacy [00:30:30] – Intro to the Pancha Maya Kosha (The 5 Layers of Being) [00:32:15] – Layer 1: Annamaya Kosha (The Physical Body) [00:34:10] – Layer 2: Pranamaya Kosha (The Energy/Breath Body) [00:36:45] – Layer 3: Manomaya Kosha (The Mental/Emotional Body) [00:39:50] – Layer 4: Vijnanamaya Kosha (The Wisdom/Witness Body) [00:42:30] – Layer 5: Anandamaya Kosha (The Bliss/True Nature Body) [00:52:00] – Why "Pushing Through" is a toxic practice for chronic illness [01:03:00] – Girls with Guts and the "Om My Guts" community

    What you'll learn:

    Why the "pushing through" mentality can exacerbate IBD and how to shift toward acceptance. Bari's journey from a high-stress NYC marketing career to becoming a yoga instructor. The profound impact of the Pancha Maya Kosha (Five Layers of Being) on managing chronic pain and anxiety. How a devastating flare led Bari to overhaul her life and work towards remission. The unique benefits of clinical yoga therapy for those with IBD. The importance of community through organizations like Girls with Guts and the Crohn's & Colitis Foundation.

    Resources mentioned in this episode:

    Team Om My Guts Bari Gratton Take Steps Greater Los Angeles/Orange County Chapter of the Crohn's and Colitis Foundation

    Find Girls With Guts at:

    Facebook: @IBDgirls Web: https://girlswithguts.org/ LinkedIn: @ibdgirls Instagram: @ibdgirls Annual Retreat: October 23 - October 26

    Find the Crohn's & Colitis Foundation Los Angeles/Orange County Chapter at:

    Web: Greater Los Angeles/Orange County Chapter of the Crohn's and Colitis Foundation Instagram: @crohnscolitisfoundationla_oc Facebook: @ccflaoc

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

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  • Is Your Eye Pain Actually an IBD Flare?

    Is Your Eye Pain Actually an IBD Flare?

    · About IBD

    Did you know that inflammatory bowel disease (IBD) isn't only a digestive condition? It can also attack your vision. Your host, Amber J Tresca, breaks down some of the most common eye-related extra-intestinal manifestations (EIMs) of Crohn's disease and ulcerative colitis. Learn how to identify the warning signs of episcleritis, uveitis, and scleritis, and find out when you need to see an ophthalmologist right away to protect your eyesight.

    Episode transcript and more information at: https://bit.ly/AIBD200

    Key Chapters & Timestamps 00:00 - Introduction: Protecting your vision with IBD 02:07 - What are Extra-Intestinal Manifestations (EIMs)? 04:21 - How common is eye disease in IBD patients? 05:43 - Condition 1: Episcleritis (Symptoms and treatments) 07:15 - Why episcleritis often tracks with IBD flares 10:14 - Condition 2: Uveitis (Red flags and risks of vision loss) 13:58 - Condition 3: Scleritis (Rare but severe complications) 16:51 - Condition 4: Dry Eyes 18:23 - Risk Factors: Who is most likely to develop IBD eye issues? 20:10 - When to call your doctor and why you need an ophthalmologist 23:25 - Practical tips: Keeping eye drops in the fridge Sources: Vavricka SR, Schoepfer A, Scharl M, Lakatos PL, Navarini A, Rogler G. Extraintestinal Manifestations of Inflammatory Bowel Disease. Inflamm Bowel Dis. 2015;21(8):1982-1992. doi:10.1097/MIB.0000000000000392 Mintz R, Feller ER, Bahr RL, Shah SA. Ocular manifestations of inflammatory bowel disease. Inflamm Bowel Dis. 2004;10(2):135-139. doi:10.1097/00054725-200403000-00012 Crohn's & Colitis Foundation. Eye complications in IBD. Rosenbaum JT, Bodaghi B, Couto C, et al. New observations and emerging ideas in diagnosis and management of non-infectious uveitis: A review. Semin Arthritis Rheum. 2019;49(3):438-445. doi:10.1016/j.semarthrit.2019.06.004 World Health Organization. Vitamin A deficiency and ocular health. Rufo PA, Denson LA, Sylvester FA, et al. Health supervision in the management of children and adolescents with IBD: NASPGHAN recommendations. J Pediatr Gastroenterol Nutr. 2012;55(1):93-108. doi:10.1097/MPG.0b013e31825959b8

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • How to Fuel Athletic Performance In Chronic Illness Featuring T.L. Wright (The IBD Athlete)

    How to Fuel Athletic Performance In Chronic Illness Featuring T.L. Wright (The IBD Athlete)

    · About IBD

    T.L. Wright, known as The IBD Athlete and author of The SCD Athlete Cookbook, tells Amber about her frustrating decades-long journey to a Crohn's disease diagnosis. She explains the health reasons behind her pivot from triathlons and Ironman races to competitive bodybuilding. You'll leave this episode with a better understanding of how to fuel for your sport or workout while managing an immune-mediated condition.

    Episode transcript and more information at: https://bit.ly/AIBD199

    The SCD Athlete Cookbook: Amazon and Bookshop.org

    Chapters: 00:00 - Introduction to the IBD Athlete 02:39 - A Lifetime of Unexplained Symptoms 04:18 - The "Go Hard" Endurance Sports Trap 08:09 - The Overlooked Connection Between IBD and Oral Health 11:04 - The 3-Year Promise 14:26 - Can IBD Patients Compete at an Elite Level? 21:21 - The Pivot to Natural Bodybuilding 26:54 - 5 Tips for Consistency on the SCD Diet 33:04 - The Dangers of AI Recipe Generation 35:29 - The Accidental Influencer 40:44 - Where to Find the IBD Athlete What You'll Learn: How upper GI Crohn's disease can be missed or misdiagnosed. Why the "tough it out" culture in endurance sports can be dangerous for athletes with chronic illnesses. How to transition athletic goals to better support a healing body. Practical tips for managing the Specific Carbohydrate Diet (SCD) as an active person. The importance of advocating for your health and understanding the connection between diet and IBD.

    More resources:

    Breaking the Vicious Cycle: Intestinal Health Through Diet Specific Carbohydrate Diet Association Special IBD diets via The Crohn's and Colitis Foundation

    Find T.L. Wright at:

    Web: The IBD Athlete Facebook: The IBD Athlete Threads: @theibdathlete Instagram: @theibdathlete Tik Tok: @TheIBDAthlete

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • Epidemiology, Big Data, and Biologics in Pregnancy

    Epidemiology, Big Data, and Biologics in Pregnancy

    · About IBD

    Episode transcript and more information at: https://bit.ly/AIBD198

    What does a pregnant woman do when they need a biologic medication, but pregnancy isn't included in drug trials? Dr. Sonia Grandi and Dr. Christina Longo talk to Amber Tresca about the BIONIC study, a groundbreaking project using decades of real-world data to understand how biologics affect a pregnant woman and her baby. The BIONIC study is designed to empower patients to make confident, evidence-based decisions about their own health and their children's future.

    Timestamps 00:00 – Introduction to Dr. Sonia Grandi and Dr. Christina Longo. 04:14 – What exactly is an Epidemiologist? 06:33 – Why childhood asthma research led to the BIONIC Study. 11:05 – Why children and pregnant women are historically excluded from trials. 13:00 – Defining "Remission" in children: Why it's more than just labs. 17:01 – The BIONIC Study explained: Safety and biologics in pregnancy. 22:04 – The Patient Advisory Committee: Why lived experience matters. 25:52 – The "Grind" of Research Funding: How projects actually get built. 32:21 – Fun & Hobbies: Puzzles, running, and the "BIONIC" spirit.

    Find Sonia Grandi, MSc, PhD at:

    The Hospital for Sick Children (SickKids): Sonia Grandi, MSc, PhD Dalla Lana School of Public Health: Sonia Grandi, MSc, PhD Lab: IMPOWER Lab at The Hospital for Sick Children (SickKids) LinkedIn: @sonia-grandi

    Find Cristina Longo , PhD at:

    Université de Montréal: Cristina Longo , PhD CHU Sainte-Justine: Cristina Longo , PhD LinkedIn: @cristina-longo-67656040

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • The Insidious Reasons Why IBD Destroys Sleep

    The Insidious Reasons Why IBD Destroys Sleep

    · About IBD

    Everyone needs sleep, but so many of us struggle to get enough. People living with IBD know that a good night's sleep can feel like a distant dream, whether it's pain, urgent bathroom trips, or racing thoughts keeping you up. But why exactly does IBD disrupt our sleep even during remission? And what is your sleep telling you about the risks of a flare-up?

    Episode transcript and more information at: https://bit.ly/AIBD197

    Chapters: 00:04 Introduction and Host Background 01:32 IBD and Sleep: The Problem 03:00 Why Sleep Matters for IBD 04:14 Defining Sleep Disturbance in IBD 05:23 Inflammation's Role in Sleep Disruption 07:08 Wearables and Sleep Research in IBD 08:29 Mental Health, Pain, and Medication Effects 11:06 Why Prioritizing Sleep is Crucial 12:30 Practical Tips for Better Sleep 14:57 Communicating Sleep Issues and Seeking Support 16:12 Episode Wrap-Up and Resources 16:20 Credits and Outro

    More Information on Sleep:

    Alien: How IBD Inspired an Iconic Movie: 10 Tips to Get More Sleep Talking to Your Doctor About Sleep I Am So Tired Have You Tried Yoga? – An IBD Community Poll A Meditation Journey – Week 1 Struggling to Sleep? These 11 Foods Could Help You Rest Better 13 Foods to Eat Instead of Taking Melatonin for Better Sleep The Best Time to Eat Dinner for Better Digestion and Sleep

    Sources:

    Su XY, Wang YN, Huang YH, Dai C. The sleep quality and its association with disease activity in patients with inflammatory bowel disease: a meta-analysis. Rev Esp Enferm Dig. doi:10.17235/reed.2025.11305/2025. Zhang JZ, Song XZ, Song XN, Shen YL, Tang H, Li H. Prevalence and risk factors of sleep disorders in inflammatory bowel disease: a cross-sectional study. Int J Colorectal Dis. 2024;39(1):140. doi:10.1007/s00384-024-04712-w. Chaemsupaphan T, Pimolsri C, Subdee N, et al. Poor sleep quality is common and independently associated with disease activity and poor quality of life in inflammatory bowel disease: a long-term follow-up study. Therap Adv Gastroenterol. 2025;18:17562848241311142. doi:10.1177/17562848241311142. Kuzoian S, Jerson B, Brimacombe M, Schneeberg L, Hyams JS. Sleep tracking and sleep hygiene counseling improve fatigue in pediatric patients with inflammatory bowel disease. J Pediatr Gastroenterol Nutr. 2025;81(1):62-68. doi:10.1002/jpn3.70066. Xu TY, Zhang Y, Zhao SL. Association of Poor Sleep Quality With Adverse Outcomes in Patients With Inflammatory Bowel Disease: A Systematic Review and Meta-Analysis. J Dig Dis. 2024;25(11-12):664-673. doi:10.1111/1751-2980.13328.

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • How to Harness AI for Good Featuring Michael Tresca

    How to Harness AI for Good Featuring Michael Tresca

    · About IBD

    Artificial intelligence (AI) is being utilized in healthcare for many purposes. Patients are wondering how they can safely and effectively use AI tools to educate themselves and to manage their health. Amber and guest Michael Tresca discuss what AI is, how it works, and why skepticism and source verification are essential. They highlight practical, lower-risk ways patients might use AI, such as organizing personal health data, drafting appointment questions, and explaining medical terms. The emphasis is on ongoing education, privacy concerns, responsible use, and the importance of "trust but verify" when using AI for critical health decisions without professional input.

    Episode transcript and more information at: https://bit.ly/AIBD196

    Sign up for Mike's AI newsletter: AI Unplugged on LinkedIn

    Timestamps:

    00:05 — Introduction and Guest Welcome 01:20 — Recap of Previous Episode and Relationship Disclosure 02:16 — Defining AI and Common Misconceptions 04:14 — AI in Clinical and Patient Use 05:11 — AI in Everyday Search and Unintentional Use 06:39 — AI Hallucinations: What They Are and Why They Happen 10:13 — Importance of AI Showing Its Work and Sources 10:58 — Challenges in Understanding AI's Reasoning 14:33 — AI Training Data and Source Reliability 15:31 — Risks of Outdated or Inaccurate Health Information 21:35 — AI's Responsibility in Providing Answers 23:13 — Tolerance for Error and Regulation in AI 24:02 — Transition to Patient Use Cases 24:19 — Using AI to Organize Medical Information 26:23 — Drafting Questions for Appointments with AI 27:19 — Tracking Symptoms or Diet with AI 28:22 — AI for Coping with Brain Fog or Fatigue 31:10 — Listener Feedback: Avoiding AI 32:31 — Listener Feedback: Privacy, Data Breaches, and Environmental Concerns 34:45 — Listener Feedback: Worry About Errors 36:29 — Listener Feedback: Using AI for Definitions and Basic Research 37:24 — Listener Feedback: Using AI to Explain Test Results 40:31 — Listener Feedback: Healthcare Providers Using AI for Notetaking 43:30 — Ethics of Recording Medical Visits 44:42 — Conclusion and Final Thoughts 46:25 — Outro and Credits Find Michael Tresca at World of Welstar: Twitter: @WorldofWelstar Instagram: @world_of_welstar Facebook: @worldofwelstar MeWe: http://tinyurl.com/MeWeTRPG Threads: http://tinyurl.com/threadsWOW Bluesky: https://blskyl.ink/worldofwelstar Amazon: http://amzn.to/41jMn5h EN World: http://tinyurl.com/ENWRPG Drive Through RPG: http://tinyurl.com/DTRPGMNT Patreon: https://www.patreon.com/talien Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
  • How You Can Improve Intimacy When Living With IBD Featuring Dr Stacy Friedman

    How You Can Improve Intimacy When Living With IBD Featuring Dr Stacy Friedman

    · About IBD

    The bedroom can be a place of anxiety for people of all genders living with inflammatory bowel disease (IBD). How can you boost your confidence and deepen your connection with your partner while living with IBD? Dr. Stacy Friedman is a clinical sexologist and intimacy coach living with ulcerative colitis. She explains how IBD affects intimacy, body image, dating, and relationships. Dr. Stacy shares her personal experiences and professional advice, with a focus on communication, trust, and how to know if a partner will be supportive. In this episode, we talk about why intimacy is more than sex and give tips about how to manage challenges. Dr. Stacy also encourages listeners to seek out support and embrace connection in the ways that work for them. Transcript and more at: https://bit.ly/AIBD195 Get Dr Stacy's book "Confessions & Lessons of a Sexpert: The Ultimate Guide to Intimacy and Better Sex" Timestamps 00:00 — Introduction and Episode Overview 03:10 — Dr. Stacy's IBD Journey 05:30 — Sex and Intimacy Coaching Explained 07:44 — Body Image and IBD 09:59 — Fear, Embarrassment, and Communication 12:26 — Intimacy Beyond Sex 14:32 — Communication and Relationship Dynamics 17:18 — Trust and Emotional Safety in Relationships 17:49 — Embracing Unpredictability 20:38 — Disclosing IBD or Ostomy to Partners 22:53 — Personal Stories of Disclosure 25:12 — Sex Coach vs. Sex Therapist 27:09 — Who Benefits from Sex Coaching 28:51 — Getting Started with Sex Coaching 30:43 — Changing Mindsets About Intimacy 31:32 — What to Expect from Coaching Sessions 33:37 — Resources and The Purple Passion Project 35:13 — Pelvic Floor Therapy and Additional Support 36:54 — Closing Remarks and Appreciation 38:01 — Outro and Credits Key Topics Impact of inflammatory bowel disease (IBD) on intimacy and relationships Personal experiences of living with ulcerative colitis Effects of IBD on mental health and body image Communication and trust in relationships for individuals with IBD Navigating dating and intimacy challenges related to IBD Importance of open discussions about medical conditions with partners Strategies for building supportive and understanding relationships Redefining intimacy beyond sexual intercourse Role of sex coaching versus sex therapy in addressing intimacy issues Resources and support available for individuals seeking to improve intimacy and relationships while managing IBD Find Dr Stacy Friedman on: Web: DrStacyFriedman.com Apple Podcasts: Purple Passion Project Spotify: Purple Passion Project YouTube: @DrStacyFriedman TikTok: @drstacyfriedman Facebook: @drstacyfriedman Instagram: @drstacyfriedman LinkedIn: @drstacyfriedman Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • How to Protect Yourself in the Age of AI

    How to Protect Yourself in the Age of AI

    · About IBD

    Artificial intelligence (AI) is here to stay. How can we approach AI with both curiosity and caution, especially as it becomes more integrated into daily life? If we're not aware of it and looking for it, AI could become inserted into spaces where we aren't comfortable with it. Amber talks with her son Brenden, a computer science student, about recognizing AI-generated content, the importance of media literacy, and the ethical challenges technology brings. This conversation offers some practical uses for AI, such as learning new skills or automating mundane tasks, while pointing out that creativity and critical thinking are human pursuits. We stress how AI isn't a replacement for expertise and that we should all question what we see online to encourage the responsible use of AI tools.

    Episode transcript and more information at: https://bit.ly/AIBD194

    Find Brenden Tresca at:

    LinkedIn: Brenden Tresca WHNU 88.7: Tech Fest radio show

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • How to Bring an Intention to Your 2026

    How to Bring an Intention to Your 2026

    · About IBD

    We explore the idea of setting intentions instead of resolutions in the new year, which are more adaptable for people living with IBD. Amber shares clips from guests who explain their intentions, such as prosper, discipline, generosity, consistency, and the importance of taking breaks. Each guest highlights how intentions guide actions and mindset, emphasizing personal growth, resilience, and kindness, despite unpredictability.

    Episode transcript and more information at: https://bit.ly/AIBD193

    Chapters: 00:05 — Introduction to Intentions Clip Show 01:14 — Why Intentions Over Resolutions 02:31 — Lisa: Prosper and Uplift 04:48 — Rachel: Discipline, Accountability, Generosity 06:46 — Stacey: Grounded Goals and Consistency 10:57 — Jen Hubley: Give Yourself a Break 12:06 — Episode Wrap-Up and Call to Action

    Find Lisa Zawrotny of Positively Productive Systems at:

    Web: Positively Productive LinkedIn: Positively Productive Systems Facebook: Positively Productive Twitter: Positively Lisa Instagram: Positively Lisa YouTube: Positively Lisa TikTok: Positively Living Pinterest: Positively Productive

    Find Rachel Bee of Infusion Hero at:

    Web: InfusionHero.com LinkedIn: Rachel Bee Facebook: @infusionhero Instagram: @infusion_hero TikTok: @infusion.hero

    Find Stacey Collins, MA, RDN/LDN at:

    Web: Stacey Collins Nutrition Twitter: @staceynellc_rd Instagram: @staceynellc_rd LinkedIn: @stacey-cutler-collins

    Find Jen Hubley Luckwaldt and The Job Hopper at:

    Web: The Job Hopper Bluesky: @jenlucky.bsky.social Substack: Old Mom Things LinkedIn: @jen-hubley-luckwaldt

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • Amber's Year in Books 2025

    Amber's Year in Books 2025

    · About IBD

    Looking for your next great read? Host of About IBD, Amber Tresca, gives her year-end roundup of books, with brief summaries and her reflections on each. The selections cover a mix of genres, from speculative fiction and psychological thrillers to memoir and dark fantasy, often touching on themes of trauma, community, self-acceptance, and chronic illness. Amber shares how the stories resonated with her experience as a GenX mom living with a chronic illness, offering both recommendations and caveats. She also discusses practical tips for accessing books affordably through libraries and apps, and encourages exploring local bookstores or thrift shops to boost your reading journey and sense of community.

    Episode transcript and more information at: https://bit.ly/AIBD192

    Find Amber's 2025 books at Bookshop.org

    Chapters:

    00:05 — Introduction and Episode Overview — Amber introduces herself, the podcast, and the year-end book review episode. 01:08 — Book 1: Beautyland by Marie Helene Bertino — Summary, themes, and reflections on the coming-of-age story of an alien observing human life. 03:35 Book 2: The Book of Two Ways by Jodi Picoult — Summary, dual timelines, ancient Egypt, and personal frustrations with the main character. 06:10 — Book 3: Doctor Sleep by Stephen King — Summary, differences between book and movie, trauma, and post-Shining life for Danny Torrance. 09:57 — Book 4: We Used to Live Here by Marcus Kliewer — Summary, psychological horror, reality distortion, and the challenges of ambiguous endings. 12:23 — Book 5: The Midnight Library by Matt Haig — Summary, alternate lives, regret, self-acceptance, and critique of the book's premise. 16:07 — Library Resources and Digital Media Tips — Amber shares how she accesses books via library apps and encourages listeners to use library resources. 17:36 — Book 6: A Sorceress Comes to Call by T. Kingfisher — Summary, dark fantasy, abuse, coming of age, and resilience in a retelling of Goose Girl. 20:40 — Book 7: Death Valley by Melissa Broder — Summary, magical realism, chronic illness depiction, and reflections on escapism and coping. 24:21 — Book 8: One of Us Knows by Alyssa Cole — Summary, dissociative identity disorder, pandemic context, and a unique take on the locked-room thriller. 27:07— Book 9: A Man Called Ove by Fredrik Backman — Summary, community, connection, and critique of the book's tone and humor. 31:06 — Book 10: A Very Punchable Face by Colin Jost — Summary, comedic memoir, personal anecdotes, and recommendation of the audiobook version. 33:44 — Book Shopping, Thrifting, and Community Reflections — Amber discusses supporting bookstores, thrifting, and the importance of reading for community and personal growth. 36:07 — Closing Remarks and Call to Action — Amber wraps up, encourages listener engagement, and provides information about show notes and future book clubs.

    Books Amber Contributed to in 2025:

    Living with Fire: A Patient's Guide to Thriving with Autoimmune and Inflammatory Diseases Wellness Through Words: A Multivocal Anthology on Healthcare, Patient Safety, and Wellness

    Library apps mentioned in this episode:

    Libby Hoopla Freegal Music

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @AboutIBD

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • How To Build Resilience and Manage Life With IBD Featuring Kinsey Beagley

    How To Build Resilience and Manage Life With IBD Featuring Kinsey Beagley

    · About IBD

    Episode transcript and more information at: https://bit.ly/AIBD191

    Kinsey Beagley, a pediatric medical assistant diagnosed with ulcerative colitis at 15, shares about her experiences with IBD, including struggling with symptoms, multiple medication failures, and eventually having J-pouch surgery. Kinsey shares how reframing difficult experiences and adopting a positive mindset—her mantra is "I can do hard things"—has helped her cope.

    Chapters

    00:04 Introduction and Guest Introduction 02:05 Kinsey's Diagnosis Story 04:42 Initial Treatments and Medication Journey 06:06 Decision for Surgery 07:09 Emotional Impact of Taking a Gap Year 09:05 How and When Surgery Was Discussed 10:12 Life After J-Pouch Surgery 12:30 Reframing Difficult Experiences 14:04 Advice on Positive Mindset 15:35 Inspiration for a Healthcare Career 17:38 Applying Patient Experience to Her Work 18:52 Hiking and Bathroom Anxiety 21:19 Managing Hydration and Pouch Function 22:29 Coping with Bathroom Anxiety in Daily Life 26:24 Practicing Pouch Control and Mental Adjustment 27:26 Where to Find Kinsey Online 28:07 Closing Remarks and Outro

    Some of the topics discussed include:

    Personal journey of living with ulcerative colitis from diagnosis to treatment. Decision-making process regarding surgical options and the emotional impact of surgery. Experiences and challenges of living with a J-pouch post-surgery. Importance of maintaining a positive mindset and reframing difficult experiences. Strategies for managing anxiety in social situations and daily activities. Tips for outdoor activities and managing bathroom access while hiking. The significance of community support and patient-centered care in chronic illness management.

    Find Kinsey Beagley at:

    TikTok: @unifyinguc Instagram: @unifyinguc

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • The Truth About Surviving IBD and Incontinence

    The Truth About Surviving IBD and Incontinence

    · About IBD

    Katryna Loewen, a registered nurse diagnosed with ulcerative colitis in 2020, shares her journey through severe flare-ups, incontinence, and her decision to have a colectomy and ileostomy in 2024. She discusses the emotional and physical challenges of living with IBD, the stigma of ostomies, and how these experiences shaped her life, relationships, and career. Katryna also describes managing her mental health, planning her wedding, and preparing for motherhood, offering hope and practical advice to others with IBD.

    Episode transcript and more information at: https://bit.ly/AIBD190

    Chapters:

    00:04 Introduction and Guest Background 02:09 Katrina's Nursing Career 03:08 Ulcerative Colitis Diagnosis 04:48 Remission and Flare-Ups 05:09 Severe Flare in 2023 07:08 Decision for Surgery 10:36 Facing Ostomy Surgery 14:08 Acceptance and Life with an Ostomy 16:08 Impact of IBD on Mental Health 17:18 Incontinence Experiences 23:31 Tracking Symptoms and Advocacy 26:23 Wedding with IBD 28:45 Therapy and Emotional Recovery 32:06 Pregnancy After Ostomy Surgery 37:50 Preparing Pets for Baby 41:54 Support Networks and Advice 43:32 Where to Find Katrina 43:38 Closing Remarks

    Find Katryna Loewen at:

    Instagram: @goingpains88

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • What You Need to Know About IBD and Gastroparesis Featuring Samantha Sauer, BCPA of G-PACT

    What You Need to Know About IBD and Gastroparesis Featuring Samantha Sauer, BCPA of G-PACT

    · About IBD

    Samantha Sauer, BCPA, president of Gastroparesis Patient Association for Cures and Treatments (G-PACT), uncovers the challenges of living with gastroparesis and how it can overlap with IBD or other conditions. Sam shares her personal journey with gastroparesis and gives insights on symptoms, diagnosis, misconceptions, and the daily impact on patients' lives. Topics include the difficulties in getting the right diagnosis, the emotional toll of dietary restriction, and the importance of support communities. Sam also highlights resources offered by G-PACT, including support groups and educational outreach, while encouraging self-advocacy and perseverance for those seeking answers or support for their condition.

    Timestamps on this episode:

    0:04 – Introduction and Guest Background 1:25 – Samantha's Diagnosis Journey 4:17 – What is Gastroparesis? Symptoms and Diagnosis 7:19 – Misdiagnosis and Overlapping Conditions 10:50 – Inflammation and Gastroparesis 12:18 – Impact on Daily and Social Life 16:22 – Social Challenges and Stigma 18:47 – Common Myths and Misconceptions 22:00 – Gastroparesis and IBD Overlap 24:57 – Diagnostic and Treatment Challenges 27:32 – GPACT Resources and Support 31:32 – Advice for Suspected Gastroparesis Patients 33:09 – How to Connect with GPACT 36:18 – Samantha's Treadmill and Movement Routine 38:42 – Closing Remarks and Gratitude

    More information on the topics discussed:

    Surviving Out of Spite Podcast via YouTube Esophagogastroduodenoscopy (EGD) Is a Procedure to Examine Your GI Tract via Verywell Health Metoclopramide: Treatment for Nausea & Vomiting Relationship Between Gastroparesis and Inflammatory Bowel Disease: A United States Nationwide Sized Database Analysis Gastroparesis in patients with inactive Crohn's disease: a case series Surviving Out of Spite Podcast

    Find Samantha Sauer, BCPA and Gastroparesis Patient Association for Cures and Treatments (G-PACT) on:

    Web: www.g-pact.org Facebook: @GPACT Instagram: @4gpact YouTube: @GPACT_nonprofit LinkedIn: @gpact

    Find Amber J Tresca at:

    AboutIBD.com Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music: IBD Dance Party, © Cooney Studio.

    These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • The Truth About Stigma and Acetaminophen Use During Pregnancy Featuring Mariah Leach, JD, MS

    The Truth About Stigma and Acetaminophen Use During Pregnancy Featuring Mariah Leach, JD, MS

    · About IBD

    Amber and Mariah discuss how women with chronic illnesses cope with advice on medication use in pregnancy—especially in light of the confusion around acetaminophen. Mariah shares her experiences with rheumatoid arthritis and pregnancy, focusing on changes in medication safety data. They talk about the pressure, stigma, and lack of support for pregnant women, the need for nuanced guidance, and provide resources.

    Episode transcript and more information at: https://bit.ly/AIBD188

    This episode sponsored by Fathom Care! Fathom is an AI-powered wellness companion made for patients with inflammatory bowel disease. Over 2.4M people in the United States are navigating IBD alone, and Fathom is here to change that. Learn more at: https://fathom.care/

    Chapters:

    00:04 Intro & Guest Introduction 01:26 FDA Statement on Acetaminophen & Pregnancy 02:55 Concerns About Acetaminophen Guidance 04:03 Mariah's RA & Pregnancy Experience 07:13 Impact of Medication Decisions 07:33 Biologics & Medication Safety 09:45 Pressure to Avoid Medications 10:05 Balancing Risks: Medication vs. Flare 12:06 Stigma & Judgment Around Medication Use 13:19 Authority Statements & Social Stigma 15:10 "Tough It Out" Mentality 17:11 Societal Judgment & Pregnancy Experiences 17:53 Infusion Appointments While Pregnant 19:09 Sponsor: Fathom Care App 20:59 History of Blaming Mothers & Autism 22:17 Societal Support & Pregnancy Discrimination 24:04 Expectations vs. Realities of Pregnancy 25:58 Reframing Autism & Neurodiversity 28:15 Resources for Pregnancy & Chronic Illness 30:01 Importance of Up-to-Date Data & Planning 33:20 Medication Changes & Specialist Involvement 34:49 Changing Data & Continuing Education 36:25 Mamas Facing Forward: Community & Support 38:48 Peer Support & Parenting with Chronic Illness 40:08 Mariah's Background & Expertise 41:19 Personal Updates & Closing 42:42 Final Thoughts & Outro

    Concepts discussed on this episode:

    About IBD Podcast Episode 71- I Evaluated What Was Really Important to Me Screaming on the Inside: The Unsustainability of American Motherhood — Jessica Grose Notice to Physicians on the Use of Acetaminophen During Pregnancy — US FDA The IBD Parenthood Project Does taking Tylenol during pregnancy cause autism? The evidence says 'no.' — UCHealth MotherToBaby, a service of the Organization of Teratology Information Specialists Drugs and Lactation Database (LactMed®) PIANO (Pregnancy Inflammatory bowel disease And Neonatal Outcomes) Study

    Find Mariah Leach, JD, MS at:

    Web: MamasFacingForward.com Instagram: @mamasforward Facebook: @mamasfacingforward LinkedIn: @mariahzebrowski

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • How To Stay Active With IBD Featuring Sean Lochran

    How To Stay Active With IBD Featuring Sean Lochran

    · About IBD

    Sean Lochran, who lives with IBD and an ileostomy, describes his IBD journey, including complications such as blood clots and adrenal insufficiency. Sean shares advice for staying active on difficult days, including the importance of personalization, hydration, and tracking health data. He debunks misconceptions about exercise with IBD or an ostomy and describes his client-centered approach to fitness coaching, grounded in empathy and lived experience.

    Episode transcript and more information at: https://bit.ly/AIBD187

    This episode sponsored by Fathom Care! Fathom is an AI-powered wellness companion made for patients with inflammatory bowel disease. Over 2.4M people in the United States are navigating IBD alone, and Fathom is here to change that. Learn more at: https://fathom.care/

    Chapters in this episode:

    00:04 – Introduction and Guest Welcome 01:20 – Sean's Diagnosis Journey 02:59 – Complications: Adrenal Insufficiency and Prednisone 04:08 – Living with Adrenal Insufficiency 05:34 – Blood Clots and IBD 08:36 – Mental Impact of Complications 10:20 – Pre-Diagnosis Fitness and Lifestyle 12:29 – Managing Fatigue and Flare-Ups 14:23 – Sponsor Message: Fathom Care App 16:15 – Coaching Clients: Fatigue vs. Tiredness 17:32 – Tracking and Adjusting Fitness Plans 18:55 – Practical Tips for Staying Active During Flares 23:47 – Weekly Averages and Progress Tracking 25:21 – Misconceptions About Fitness and IBD 26:50 – What It's Like to Work with Sean 30:38 – Learning to Understand Your Body 31:45 – Visiting Scotland: Local Recommendations 34:27 – How to Connect with Sean 36:04 – Closing Remarks and Credits

    Find Sean Lochran at:

    Instagram: @seanlochrancoaching

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • How Patient Stories Change Perspectives and Influence Lawmakers

    How Patient Stories Change Perspectives and Influence Lawmakers

    · About IBD

    Every person living with inflammatory bowel disease (IBD) can help change public policy by sharing their story and participating in advocacy events, such as visiting legislators in Washington, D.C. Amber talks to Kelly E. Dwyer, who teaches us how to prepare an elevator speech and gives us practical tips for Hill Day logistics, working within teams, staying emotionally resilient, and following up with staffers. Advocacy is for everyone, and persistence and collaboration can lead to real policy changes to benefit the IBD and chronic illness communities. By the end of the episode, you'll have the real resources you can use to do this work as a patient advocate both locally and nationally. This episode is sponsored by Connecting to Cure. Transcript and more information: https://bit.ly/AIBD186 Chapters: 00:05 Introduction and Guest Background 01:23 The Role and Nature of Patient Advocacy 02:37 The Long Game of Advocacy: Successes and Challenges 04:37 Advocacy vs. Activism and Personal Motivation 06:05 The Importance of Patient Stories in Advocacy 06:52 Crafting and Delivering Your Elevator Speech 11:46 Managing Emotions and Practicing Your Story 15:42 Preparing for Advocacy Day: Research and Teamwork 18:07 Training and Building Confidence for Hill Visits 20:58 Coordinating with Your Advocacy Team 22:38 Practical Logistics: What to Wear and Security 24:42 Navigating Capitol Hill: Accessibility and Facilities 29:26 Managing the Day: Scheduling and Flexibility 32:17 During the Meeting: Structure and Communication 36:04 Group Dynamics and Respectful Storytelling 40:29 Building Relationships and Following Up 42:12 How to Get Involved with Advocacy Groups 44:42 Financial Considerations and Accessibility 45:17 Encouragement and Closing Thoughts on Advocacy 47:12 Lessons Learned the Hard Way 50:33 Closing Remarks and Gratitude 51:22 Outro and Credits Topics on this episode: Overview of inflammatory bowel disease (IBD), including Crohn's disease and ulcerative colitis. Personal experiences of living with IBD and the impact on daily life. The role of patient advocacy in improving healthcare policies and patient rights. Challenges faced by patients regarding insurance barriers and treatment access. Importance of sharing personal stories with legislators to influence policy change. Distinction between activism and advocacy in the context of healthcare. Strategies for effective communication and preparation for advocacy efforts. The significance of teamwork and collaboration in advocacy initiatives. Resources and organizations that support IBD advocacy and patient education. Emotional aspects of sharing health experiences and the importance of building relationships with legislative staff. Find Kelly E. Dwyer at: Web: https://www.keepingmyshittogether.com Twitter: @keepingmyshitTG Instagram: @keepingmyshittogether Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • Powerful Ways Art Can Help Us Heal from Trauma Featuring Daniel Leighton

    Powerful Ways Art Can Help Us Heal from Trauma Featuring Daniel Leighton

    · About IBD

    Amber interviews artist Daniel Leighton, who shares his journey living with Crohn's disease from childhood. Daniel tells us how he didn't think of himself as an artist, but painting became a vital tool for expressing emotions and coping with complex PTSD related to chronic illness. He offers some advice for those intimidated by starting a journey into creativity and describes how art validates the experiences of people with chronic illness. Daniel's artwork, inspired by his medical journey, helps others with IBD feel seen and less alone, highlighting the role of art in emotional healing and community connection.

    This episode contains a discussion of medical trauma and complex PTSD (post-traumatic stress disorder), so please take care when listening. Check the show notes for a description and time stamps, in case you want to skip certain sections.

    Episode transcript and more information at: https://bit.ly/AIBD185

    Chapters: 00:01 Intro & Content Warning 2:40 Daniel's IBD Journey & Surgeries 5:15 Early J-Pouch Surgery 6:24 Discovering Art as an Outlet 11:24 Art for Processing Trauma 15:21 Getting Started with Art 17:23 Art, PTSD & Chronic Illness 18:43 Connecting to Cure 19:57 Evolution of Artwork 21:30 Depicting Pain in Art 22:39 Trying New Things 23:44 Specific Artworks & Meanings 29:24 First Surgery & Trauma 33:12 Evolving Trauma Over Time 34:22 Art as a Bridge 38:08 Medical Restraint Trauma 40:52 Power of Not Feeling Alone 42:15 Lessons Learned the Hard Way 43:56 "Here Comes the Flood" 46:49 Self-Compassion & Healing Timelines 47:55 Ballroom Dancing & New Experiences 50:38 Where to Find Daniel's Art 51:44 Closing & Credits Topics discussed on this episode: The role of art as an outlet for expressing emotions related to living with inflammatory bowel disease (IBD). Personal experiences of living with Crohn's disease, including diagnosis and surgeries. The therapeutic benefits of using art to process trauma and cope with chronic illness. Practical advice for using art as a form of emotional expression, regardless of artistic skill level. The importance of self-compassion and recognizing individual healing timelines. The impact of trauma on emotional expression and the need for safe spaces to feel emotions. The evolution of personal artwork and its connection to experiences with IBD. Encouragement to embrace intimidating activities as a means of personal growth and healing. The significance of creating visual representations of emotions, such as "pain charts." The importance of community and connection in the journey of living with chronic illness. Links to information mentioned in this episode: Miller-Ocuin JL, Dietz DW. The Evolution of Pelvic Pouch Surgery: Optimal Pouch Design for an Ileal Pouch Anal Anastomosis. Clin Colon Rectal Surg. 2022;35(6):453-457. doi:10.1055/s-0042-1758135. Morgan Check, NP: @morgancheckgastronp Taft TH, Bedell A, Craven MR, Guadagnoli L, Quinton S, Hanauer SB. Initial Assessment of Post-traumatic Stress in a US Cohort of Inflammatory Bowel Disease Patients. Inflamm Bowel Dis. 2019;25(9):1577-1585. doi:10.1093/ibd/izz032. Gomez DA, Ahmad-Waqar M, Brookes MJ, Kumar A. IBD-related mental health disorders: where do we go from here? Frontline Gastroenterol. 2023;14(6):512-520. doi:10.1136/flgastro-2023-102403.

    Find Daniel Leighton at:

    Facebook: @DanielLeightonArt Instagram: @DanielLeightonArt Substack: @danielleightonart Artwork: https://danielleighton.com/art-inspired-by-living-with-crohns-disease-ulcerative-colitis-a-deep-dive-into-personal-experiences/ YouTube: https://www.youtube.com/channel/UCdxRCTh6aPaaEgX07agRsFg Web: https://danielleighton.com/

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker

    Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker

    · About IBD
    Episode transcript and more information at: https://bit.ly/AIBD184 Amber talks with Aaron Blocker, a Crohn's disease patient and advocate, about the importance of finding and creating community for people touched by IBD. Online and in-person groups offer support and serve as platforms to share practical tips and counter misinformation. Aaron points out that it's important to find a balance between advocacy, health, and personal life when offering support to others. Both emphasize the value of authenticity and learning from mistakes. The conversation stresses the importance of caring for mental health, the power of connection, and staying true to one's own reasons for taking part in community. Topics discussed on this episode: Importance of community for people living with inflammatory bowel disease (IBD) Challenges and rewards of sharing disease experiences online Navigating negative comments and misinformation in online communities Strategies for engaging with IBD communities and providing support Balancing community involvement with personal health and family life Mental health considerations when participating in online discussions Importance of authenticity and passion in advocacy work Addressing misinformation and promoting accurate health information within the community Chapters: 0:05 Intro & Sponsor 1:23 Aaron's Background & Group Origin 5:30 Power of Community 8:08 Support in Community 11:44 Getting Involved in IBD Communities 15:16 Before Sharing Online 16:15 Motivation & Authenticity 19:10 Combating Misinformation 25:20 Boundaries & Balance 31:52 Mental Health & Selective Sharing 34:55 Handling Criticism & Mistakes 38:11 Referring Out & Collaboration 39:18 Responding to Criticism 40:13 Aaron's Socials & Closing 41:53 Outro & Credits

    Find Aaron Blocker at:

    Facebook: @SupportIBD YouTube: @aaronblocker Instagram: @AaronBlocker_ Web: https://www.aaronblocker.com

    Find Amber J Tresca at:

    AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd

    Find Mac Cooney (mix, sound design, and theme music) at:

    Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

  • IBD 101: Getting to the Bottom of Inflammatory Bowel Disease Featuring Katie Dunleavy, MB, BCh, BAO

    IBD 101: Getting to the Bottom of Inflammatory Bowel Disease Featuring Katie Dunleavy, MB, BCh, BAO

    · About IBD

    We get back to the basics of inflammatory bowel disease (IBD), including the differences between Crohn's disease, ulcerative colitis, and how IBD is different than irritable bowel syndrome (IBS). IBDologist Dr Katie Dunleavy explains common symptoms, the diagnostic process, and treatment options, focusing on patient advocacy, regular screenings, and open communication with physicians and other healthcare providers. Also included is the importance of diet, stress management, second opinions, and multidisciplinary care in managing IBD. If you or your loved one lives with IBD, you will learn something new, and if there's someone in your life who could use help in understanding IBD, this is the episode to share with them. Episode transcript and more information at: https://bit.ly/AIBD183 Topics discussed on this episode: Definition and overview of inflammatory bowel disease (IBD) Differences between IBD and irritable bowel syndrome (IBS) Types of IBD: Crohn's disease, ulcerative colitis, indeterminate colitis, and microscopic colitis Common symptoms associated with IBD Diagnostic processes and tests for IBD Treatment options and the importance of personalized care Role of diet and lifestyle changes in managing IBD Importance of mental health and stress management in IBD care Ongoing monitoring and screening for colorectal cancer in IBD patients Advocacy for patient-centered care and the need for multidisciplinary approaches in IBD management More information on the topics discussed: Understanding Toxic Megacolon: https://www.verywellhealth.com/toxic-megacolon-1943111 How Inflammatory Bowel Disease (IBD) Is Diagnosed: https://www.verywellhealth.com/ibd-diagnosis-1942637 IBD vs. IBS: Understanding the Differences: https://www.verywellhealth.com/ibd-vs-ibs-11714235 Inflammatory Bowel Disease (IBD) Medications & Treatment: https://www.verywellhealth.com/comparing-biologic-medications-for-ibd-4116127 Understanding Indeterminate Colitis: https://www.verywellhealth.com/what-is-indeterminate-colitis-4142657 Types of Colitis: Everything You Should Know: https://www.verywellhealth.com/types-of-colitis-5198817 Find Katie Dunleavy, MB, BCh, BAO at: Web: Massachusetts General Hospital Twitter/X: @dunleavy_katie Research Gate: Katie Dunleavy, MB, BCh, BAO Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Bluesky: @aboutibd.bsky.social Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio

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