Afleveringen
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Men and MS: Navigating Identity, Resilience, and Hope – Episode 201
In this episode we chat with Luis who will share his journey of living with multiple sclerosis and how the disease challenged his identity, career, relationships, and sense of control. Together, Luis and Stephanie explore the unique pressures many men face when living with a chronic illness, including isolation, vulnerability, and redefining strength.
Luis also discusses how he learned to embrace life fully despite the challenges of MS. This honest conversation is a powerful reminder that resilience, purpose, and hope can evolve alongside life’s unexpected changes.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program.
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Redefining Balance with MS – Episode 200
What does balance really look like with MS? Stephanie meets with Lisa Doggett to share honest insights on managing health, work, and family. Also getting into the hidden effort behind staying stable, and why balance is about constant adjustment, not perfection.
Thank you to the generous support of our sponsors of this podcast episode, including Kathleen C Moore Foundation and Novartis.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program.
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Zijn er afleveringen die ontbreken?
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MS & Motherhood: Planning a Family Through Uncertainty – Episode 199
What does family planning look like with MS? Stephanie talks with Emily about her journey from diagnosis and meeting her husband through the MS community to navigating infertility, pregnancy loss, and treatment decisions.
They explore what research says about MS, fertility, pregnancy, and postpartum, along with the real-life challenges of new motherhood including fatigue, support, and finding what works for you.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program
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The Puzzle of Progression – Episode 198
Multiple sclerosis (MS) is evolvingâand so is the way we understand it. In this episode, host Stephanie Buxhoeveden sits down with physicianâs assistant Lisa Fox to unpack one of the most important shifts in MS care: recognizing progression beyond relapses.
They explore the concept of PIRA (progression independent of relapse activity), why patients may feel worse even when MRIs look stable, and how new research, biomarkers, and diagnostic tools are changing the conversation. From distinguishing different progressions to navigating the emotional impact of a changing diagnosis, this episode offers clarity, validation, and hope.This podcast episode was created in collaboration with Novartis.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program
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Trust Your Body: MS, Menopause, and Speaking Up – Episode 197
When MS symptoms donât feel like MS anymore, hormones may be part of the story. Dawn shares her 25-year MS journey, how perimenopause complicated her symptoms, and how lived experience led her from patient to research collaborator with iConquerMS. This episode is a powerful reminder that womenâs voices belong in science.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program
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Cognition and the Science of Non-Invasive Brain Stimulation in MS – Episode 196
Cognitive changes in MS are often misunderstood. In this episode, Stephanie talks with Dr. Leigh Charvet about what cognition in MS really looks likeâwhy processing speed, not memory loss, is the most common challenge, and why symptoms can fluctuate day to day.
They break down what non-invasive brain stimulators are, how it boosts the effects of cognitive rehab, and what research shows about its impact on cognition, fatigue, cannabis use, and depression in people with MS.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program
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MS Beyond the City: Living With MS in Rural and Underserved Communities – Episode 195
Living with multiple sclerosis is shaped not only by the disease, but by where you live.
In this episode, we explore what âruralâ and âunderservedâ truly mean in real life for people with MS. Moving beyond ZIP codes and statistics, the conversation centers on lived experience: long drives to care, delayed diagnoses, limited access to specialists, and the quiet emotional weight many carry.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program.
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Unpacking MS Progression and BTK Inhibitors – Episode 194
In this episode, we will have honest and hopeful conversation about two of the biggest topics in multiple sclerosis today, progression and the next major frontier in treatment: BTK inhibitors. They unpack what makes BTK inhibitors so unique, how they work inside immune cells and the brain, and why they could represent a game-changing step in the MS community. We will also explore how to recognize signs of MS progression, tell the difference between true disease worsening and deconditioning, and have more meaningful conversations with your care team about changes youâre noticing.
Whether youâre living with MS, caring for someone who is, or following the latest research, this episode will leave you informed, empowered, and hopeful about whatâs ahead.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program
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MS, Mindset & the Power of Daily Choices – Episode 193
Why are new habits so hard? Health coach Amy Behimer joins host Stephanie to share practical, compassionate tools for building habits that stick, especially while living with MS. From mindset to movement, learn how to start small, listen to your body, and take action that lasts.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program
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Speech-Language Pathology and MS: Support for Thinking, Communication, and Daily Life – Episode 192
Think speech therapy is just for slurred speech or swallowing? Think again. In this episode, host Stephanie Buxhoeveden chats with Speech Language Pathologist Lauren Schwabish about how speech-language pathologists support people with MS in managing thinking, memory, planning, and communication. They explore real-life strategies like the âFour Pâs,â talk workplace tips, and explain why proactive care matters.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program
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Navigating MS Together: A Patientâs Journey and Her Neurologistâs Insight – Episode 191 – Transcript
In this episode, we explore what itâs really like to be newly diagnosed with MS through the personal story of Fran Peed, who went from MS advocate to MS patient. Fran reflects on the first two years of living with MS â a period of uncertainty, adjustment, and learning how to manage both the medical and emotional sides of the diagnosis. Joining her is Dr. Michelle Betz, Franâs neurologist and a specialist in multiple sclerosis at Sentara Neurology Specialists. Together, they reflect on building a trusting care relationship, navigating the early decisions after diagnosis, and learning how to live well with MS â not just manage it. Whether you’re newly diagnosed or supporting someone who is, this conversation offers honesty, support, and hope.
This podcast episode was created in collaboration with Novartis.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program.
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Addressing Swallowing Difficulties and Nutritional Deficiencies in MS – Episode 190
Swallowing issues and nutrition changes are common in MS but often overlooked. Host Stephanie Buxhoeveden is joined by speech-language pathologist Dr. Corinne Jones and dietitian Carla Cos to explore how MS affects eatingâand what you can do about it. Learn practical strategies to stay safe, eat well, and adapt to changing symptoms without giving up the joy of food.
Thank you to the generous support of our sponsors of this podcast episode, including Kathleen C Moore Foundation, Genentech, and Novartis.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program.
Additional Resources:
National Foundation of Swallowing DisordersIDDSI – International Dysphagia Diet Standardization Initiative -
Weight Loss Drugs and MS: What You Should Know – Episode 189
Weight-loss medications are gaining attentionâbut how do they fit into life with MS? In this episode, host Dr. Stephanie Buxhoeveden talks with Dr. Alise Carlson from the Cleveland Clinic about how these medications work, their potential benefits and risks for people with MS, and what to consider when it comes to hormones, bone health, and access. You’ll walk away with practical insights and questions to bring to your healthcare provider if you’re considering medication as part of your weight management journey.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program
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Disclosing MS: One Advocateâs Journey from Private to Public – Episode 188
In this episode, host Stephanie Buxhoeveden talks with Kenneth Bandler, a longtime communications professional and MS advocate, about his deeply personal journey with multiple sclerosis and the decision to disclose his diagnosisâfirst to close family, and years later, to his workplace. Ken shares how he kept his MS private for over a decade, the emotional and professional considerations behind his decision, and the pivotal moment when he finally told his boss. He also reflects on the support he received, the power of storytelling, and how going public ultimately brought relief and connection. This conversation offers insight and encouragement to anyone navigating career and disclosure decisions with MS.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program.
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Taking the Next Step With Confidence: Navigating Foot Drop and Mobility with MS – Episode 187 – Transcript
In this episode, we are joined by physical therapist Samantha Balistreri and orthotist Spencer Van Wagenen to break down what foot drop is, what devices like AFOs and FES can do for you. Then we will deep dive into how PTs and orthotists work together to find the right supportâwithout sacrificing style or independence.
From early signs to energy-saving tips, supportive shoes and where to get them, this episode is full of practical guidance, encouragement to advocate for your mobility and explaining that using a support is not giving up.
Link from episode: Equipment Distribution Program
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.
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Facing MS: From First Symptoms to First Steps– Episode 186 – Transcript
In this episode, we explore how the landscape of being newly diagnosed with multiple sclerosis (MS) has transformed over the last decade. Thanks to advances in MRI technology, biomarkers, and updated diagnostic criteria, more people are being diagnosed earlier. We break down how diagnosis and treatment options have improved across the board. We also dive into why getting a diagnosis can still take time, and why accuracy is so crucial, even when emotions are high. Youâll hear practical tips on building a strong relationship with your MS care team, how to know when it might be time for a second opinion, and how to navigate that often overwhelming first treatment decision
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.
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Finding Your Calm: Mindfulness and MS– Episode 185 – Transcript
In this powerful and insightful episode, host Stephanie welcomes mindfulness expert Robert Simpson to explore the vital connection between stress, mindfulness, and multiple sclerosis. They also dive into self-compassion, the stress care partners face, and how mindfulness can foster empowerment and deeper connection. Whether you’re new to mindfulness or looking for fresh insights, this episode offers practical takeaways and hope for anyone navigating life with MS.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.
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Living Well With MS While Managing Pain– Episode 184 – Transcript
In this episode, we explore how to manage the different types of pain associated with multiple sclerosis. We discuss the role of behavioral interventions like Cognitive Behavioral Therapy, mindfulness, and behavioral activation in reducing painâs impact and improving quality of life. We also share practical tips for people who donât have access to a CBT therapist and offer a brief relaxation exercise to try together. Tune in to learn how to take control of your pain and reconnect with what matters most, even in the face of MS.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.
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My MS Story– Episode 183 – Transcript
In this episode we join our host Stephanie Buxhoeveden and special guest Ashley Ratcliff Lundy as we dive into the personal journeys of living with Multiple Sclerosis (MS) as we share unique stories of diagnosis, the emotional rollercoaster that follows, and how perspectives on life have shifted since that moment. From the first signs of MS to the life-changing diagnosis, our guest speaks about challenges, the feelings of uncertainty, fear, and hope, while hearing the lessons they’ve learned along the way. With honesty and resilience, we discuss how to redefine goals, priorities, and outlook on life, offering valuable advice to those newly diagnosed. Tune in for an inspiring conversation on adapting to change, embracing strength, and finding a renewed sense of purpose in the face of MS.
A special thank you to our generous sponsor Novartis.
Poppy + Monarch, E-commerce business that supports the chronically ill communityJesus Year, The self-help memoir Ashley wrote about her MS diagnosisWe Are ILL, The patient advocacy organizationDisclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any service, or diet associated with the content of this program.
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Navigating Pediatric MS – Challenges, Treatment, and Hope for the Future– Episode 182 – Transcript
In this episode, we join our host Stephanie Buxhoeveden and two special guests Emily Blosberg with Oscar the Monkey and Harvard Neurology professor Tanuja Chitnis. Together we explore the complexities of pediatric multiple sclerosis and how it differs from the adult form of the disease. Weâll dive into when pediatric MS is typically diagnosed and highlight the early signs that parents and what to watch for. Beyond medical treatment, managing MS as a child can be particularly challenging. We share valuable advice for families on navigating school, sports, and social life, while emphasizing the importance of emotional support and accommodations. We take a look at the future of pediatric MS research, discussing advancements in clinical trials, potential new therapies, and ongoing studies to improve outcomes for children and teenagers with MS.
Tune in for an informative and hopeful discussion about pediatric MS, its challenges, and whatâs ahead for young patients.
Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.
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