Afleveringen
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🔴 "Early symptoms of autism spectrum disorder (ASD) in 1-8 year old children with sex chromosome trisomies (XXX, XXY, XYY), and the predictive value of joint attention*" PART 2.
Research over the past decade has established that neurodiversities such as Autism are far common in people with an Extra 47th X or Y chromosome than in the average population. At the same time, most are not Autistic.
What does this mean in practice for parents who have a young child diagnosed with an extra chromosome?
Groundbreaking research published in 2022 shows that Autism in Extra X&Y children be predicted as early as the age of 1. This matters, because it means early monitoring of social adaptive functions of children with Extra chromosomes should be done as routine care within the first years of life.
Not only may it allow to avoid an irreversible cascade of negative lifelong effects, it could also significantly improve parent wellbeing with relief from stress and uncertainty regarding their own parenting and offer the opportunity to learn effective coping strategies when interacting with their child.
Part 1 featured the abstract, introduction and methods that allowed to come to this conclusion. Part 2 explains the study’s results and discusses its important implications.
* Bouw N, Swaab H, Tartaglia N, Wilson RL, Van der Velde K, van Rijn S. Eur Child Adolesc Psychiatry. 2022 Sep 15. doi: 10.1007/s00787-022-02070-y. Epub ahead of print. PMID: 36107256.
🙏 Chromodiversity™ is a listener funded podcast. Make a difference by donating here: https://buy.stripe.com/3csg07g8LbaB5X2dQW
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🟢 "I'm a thunderstorm kind of guy" - Gary Glissman, 1950 - 2023.
In this podcast you’ll hear two back-to-back episodes with Gary Glissman, recorded October 2022 and re-edited into a single full 45 minute version in tribute to Gary's passing.
It is possibly the most important Chromodiversity podcast to date: Gary discusses with brutal honesty the life and death of his son Michael, and highlights the urgency of changing the way common genetic difference is considered and supported around the world.
Few people made a bigger difference in the lives of many thousands of families and individuals living with #chromodiversity than Gary.
A powerful advocate for awareness, #education, #research and effective #medical care, Gary became involved with #neurodiversity and #Klinefelter syndrome (KS) after his son Michael was diagnosed with an Extra 47th X chromosome in 2008 at the age of 24.
Gary was a Senior Health Care Executive his entire life. He was involved clinical operations for major organizations such as Walgreens, CHD Meridian Healthcare, Interim HealthCare Inc. and the University of Nebraska Medical Center.
Gary served on the Board of Directors of AXYS (Association for X and Y chromosome Variations) and was named Board Chair in 2017. He retired from that position in 2021 and joined the Chromodiversity Foundation Advisory Board in 2022.
Gary was instrumental in the coming of age of the Chromodiversity movement launched January 2022, and the setting of our vision for a new approach to global healthcare for people with common genetic differences.
Born in Omaha Nebraska September 21, 1950, Gary Glissman is survived by his loving wife of 42 years, Paula Glissman. He is preceded in death by his son Michael Glissman, June 23, 2022 at the age of 37.
💜 Gary and Michael, you meant so much to so many. Your inspiration will remain with us forever.
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Zijn er afleveringen die ontbreken?
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🔴 "Early symptoms of autism spectrum disorder (ASD) in 1-8 year old children with sex chromosome trisomies (XXX, XXY, XYY), and the predictive value of joint attention.*" Although not many medical professionals may be aware, research over the past decade has established that neurodiversities such as Autism are far common in people with an Extra 47th X or Y chromosome than in the average population. At the same time, most are not Autistic.
What does this mean in practice for parents who have a young child diagnosed with an extra chromosome? Is it possible to predict in advance if their own child is more likely than not to be Autistic? If so, is there a way to predict which Autistic traits are most likely? And is there anything that can be done to change outcomes for the better.
Remarkably, as this groundbreaking research published in 2022 shows, the answer to all of these questions is YES.
In today's first of two parts you’ll hear the abstract, introduction and methods that allowed to come to this conclusion. The second part, to be released next week, will explain the study’s results and discuss its implications.
* Bouw N, Swaab H, Tartaglia N, Wilson RL, Van der Velde K, van Rijn S. Eur Child Adolesc Psychiatry. 2022 Sep 15. doi: 10.1007/s00787-022-02070-y. Epub ahead of print. PMID: 36107256.
🙏 Chromodiversity™ is a listener funded podcast. Make a difference by donating here: https://buy.stripe.com/3csg07g8LbaB5X2dQW
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🟢 "Don't ever underestimate what even 5 minutes of just listening and validating someone's experience can lead to (...). It is the best gift (a doctor) can give any patient."
Historically seen as a rare genetic difference of little interest to medical professionals - taught to "look for horses, not zebras" - Ehlers-Danlos Syndrome (EDS) may be be far more common than previously thought, particularly in its 14th Hypermobility (HSD) form . It is increasingly understood not only to result not only in physical challenges but also potentially neurodiversity like Autism and ADHD.
Fortunately, thanks to improved classification of symptoms and better awareness of its wide variability, EDS and HSD are starting to appear on the radar of doctors and diagnosis is increasing.
This matters, because although treatments are still lacking, diagnosis alone can provide enormous relief and improve quality of life by
Freeing from sometimes decades long diagnostic odysseys
Providing life changing recognition and validation
Giving access to highly supportive communities
Allowing for well-informed self-management
Avoiding potentially damaging mistreatments.
Thanks to Professor Lara Bloom's success in uniting the Ehlers-Danlos Society into single global organization, it has been able to act as a one-stop source of information and support for people with EDS, accelerate health care provider awareness, increase diagnosis rates, raise millions of dollars for research, and fast-track the perspective of future treatments and cures.
* Professor Lara Bloom is President and CEO of The Ehlers-Danlos Society and responsible for globally raising awareness of rare, chronic, and invisible diseases related to Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). Lara manages coordinated medical collaboration, raising funds for research, and focusing on the global progression of EDS and HSD. She speaks at conferences all over the world, lecturing to medical students and professionals, and supports specialists in the field by offering her experience as a leading Patient Expert. Commemorating ten years in the field of patient advocacy, Lara was officially appointed a Professor of Practice in Patient Engagement and Global Collaboration at Penn State College of Medicine, USA, on March 11, 2020.
🙏 Chromodiversity™ is a listener funded podcast. Make a difference by donating here: https://buy.stripe.com/3csg07g8LbaB5X2dQW
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🟢 "Great genetic progress", "exciting early neurocognitive interventions", but "grave deficiency in current testing and care models" around the world. Listen to an easy to understand 25 minute summary of the very latest research on the most common chromosomal differences in humans, authored by 10 of the world's leading researchers and clinicians. You'll hear how new science brings more questions than answers, but also exciting breakthroughs for early age support and improved quality of life including:
Fast changing understanding of how supernumerary chromosomes result in multiple genome wide effects, debunking the traditional thinking that widespread increased health risks are primarily due to hormonal effects, opening novel perspectives for prevention of heightened lifelong health risks
Breakthroughs in early age identification of Autism, ADHD & emotional regulation developmental trajectories specific to Extra X&Y chromosomal differences, with the first evidence-based interventions shown to improve quality of life both of young children and their parents
Recognition of the importance advocacy organization priorities in research and clinical care, highlighting enormous burden on families facing ill equipped health, educational and social systems due to grave, persistent deficiencies in current genetic testing and care models around the world.
* Gravholt CH, Ferlin A, Gromoll J, Juul A, Raznahan A, van Rijn S, Rogol AD, Skakkebæk A, Tartaglia N, Swaab H. New developments and future trajectories in supernumerary sex chromosome abnormalities: a summary of the 2022 3rd International Workshop on Klinefelter Syndrome, Trisomy X, and XXY. Endocr Connect. 2023 Jan 1:EC-22-0500. doi: 10.1530/EC-22-0500. Epub ahead of print. PMID: 36598290. Copyright 2023: the authors
Click here for link to full written article, including figure 1
🙏 Chromodiversity™ is a listener funded podcast. Make a difference by donating here: https://buy.stripe.com/3csg07g8LbaB5X2dQW
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🟢 “Had I been diagnosed earlier, how much more could I have accomplished?”
In our previous episode “47,XXY: a 63 Year Diagnostic Odyssey”, Peter Street from Australia compares his seemingly endless diagnostic odyssey to getting a boxing ring with as your opponent the invisible man - not knowing where the next punch will come from.
In this second of two episodes, he shares key takeaways from years of hard earned experience such as:
For people with chromodiversity: it's ok to feel different, important not to compare yourself to others, and essential to find the right support networks.
For parents: let your children make mistakes, get them the best education you can, encourage their independence, and be wary of endless negative information on the Internet.
For doctors: listen, listen and listen again. Family practitioners need better training about genetic differences, as do teachers. The earlier the diagnosis, the better, provided there is easy access to up to date information & help.
For researchers: interview more parents and take the unique insights of lived experience into account.
This episode concludes Season 2 about “Growing Up With Chromodiversity” featuring a mix of groundbreaking early age research and lived experience.
At a time of blistering advances in genetics and digital healthcare, tune in next week for Season 3 on the topic of "New Science and New Support."
🙏 Chromodiversity™ is a listener funded podcast. Make a difference by donating here: https://buy.stripe.com/3csg07g8LbaB5X2dQW
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🟢 “95% of my life has been spent not knowing of my 47,XXY. It was like getting into a boxing ring with as your opponent the invisible man. You never saw where the punches were coming from.”
In this exceptional podcast with Peter Street, you’ll hear the remarkable story of a man from Australia who found out 3 years ago, at the age of 63, that he happens to have an Extra X chromosome, also referred to as 47 double XY, Klinefelter syndrome or KS.
While this may seem late in life to discover a genetic difference that affects almost every aspect of one’s growth and well being, in fact the vast majority of people with common X&Y chromosome variations are never diagnosed at during their lifetime.
As far as we know, this is the first time ever a person with an X or Y chromosome variation accepts to speak publicly about a diagnosis so late in life - and Peter was understandable hesitant to do so.
Once he agreed, he spent many months preparing this interview, working hard to put to paper over half a century of experience in the rear view mirror of an entirely unexpected life changing discovery.
This is why, as you will hear, most of Peter’s answers are not improvised, but read out from his pre-prepared written notes.
🙏 Chromodiversity™ is a listener funded podcast. Make a difference by donating here: https://buy.stripe.com/3csg07g8LbaB5X2dQW
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🟢 "Kindness Kills..." Despite all the talk about diversity and inclusion, why are children with genetic differences and disabilities still socially excluded? And what do we plan to do about it?
In this second of two episodes, Jodi Samuels, author, speaker, disability advocate and mother of a teen daughter with Down syndrome, explains why she "hates kindness", relentlessly questions our current approach to diversity, and calls for "radical inclusion".
* ABOUT JODI
Jodi Samuels is an author, speaker, serial entrepreneur, world traveler, disability advocate, super mom and wife living in Jerusalem. She challenges mindsets and brings her passion for life to her work as a not-for-profit leader, community activist, disability advocate and entrepreneur. Her message is simple: Go be unstoppable.
Jodi’s highly regarded memoir is called Chutzpah, Wisdom and Wine: Journey of an Unstoppable Woman. She is currently working on a new book dedicated to concrete, practical advise for parents with children who have disabilities. Learn more on www.jodisvoice.com and https://twitter.com/cailysworld.
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🟢 "YOUR CHILD IS A PERSON FIRST, NOT A MEDICAL CONDITION." In this first of two episodes, Jodi is brutally honest about the challenges she faced...
coming to terms with her daughter’s diagnosis of Down's syndrome ("Trisomy 21": 3 copies of chromosome 21 instead of the usual 2, thought to occur in 1 in 800 infants);
dealing with seemingly endless stream of negative information shortly after birth
and lack of positive information how children with Down's can live happy, increasingly healthy long lives.
You'll also hear about
how Jodi came to accept and embrace her daughter's differences and strengths;
her skepticism of "performative kindness" that can mask the absence of real, meaningful action;
and - facing the reality of social exclusion - how she has come to advocate for what she calls "radical inclusion".
Perhaps the biggest takeaway of this episode is her belief that for parents, the single thing that matters most is to see your child as a person first, not a medical condition.
ABOUT JODI
Jodi Samuels is an author, speaker, serial entrepreneur, world traveler, disability advocate, super mom and wife living in Jerusalem. She challenges mindsets and brings her passion for life to her work as a not-for-profit leader, community activist, disability advocate and entrepreneur.
Her message is simple: Go be unstoppable.
Jodi’s highly regarded memoir is called Chutzpah, Wisdom and Wine: Journey of an Unstoppable Woman.
She is currently working on a new book dedicated to concrete, practical advise for parents with children who have disabilities.
Learn more on www.jodisvoice.com and https://twitter.com/cailysworld.
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🟢 "We're not a disorder. We're not a syndrome. We're people." [Warning: this episode contains explicit language]. Toby Whittington is a successful social entrepreneur from Australia who found out he has an Extra X chromosome at the age of 32 - a discovery that changed almost everything in his life.
In this second of two episodes, he explains why he believes it is important not to become the victim of diagnosis, rejects considering Klinefelter’s as a "syndrome", and identifies as a part of the wider Intersex community - on the premise that diversity in humans is the norm not the exception.
This straight talking conversation covers a wide variety of topics including
the rise of the Intersex movement
what it's like to live with synaesthesia that turns touch into 3-D images
how he believes it in our power to turn our lives into "heaven" or "hell".
🎁 Your weekly podcast Chromodiversity™ will be back Tuesday January 3 2023 with fresh content featuring world leading researchers, authors and advocates. Thank you for your interest and support in 2022 and Happy Holidays to all!
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🟢 "Everything that you took for granted is about to be reviewed." Former street performer and fashion designer Toby Whittington is a successful social entrepreneur and well-known public figure in Australia who has not hesitated to speak openly about genetic difference and identity since diagnosis with an Extra X at the age of 32.
In this first of two episodes, you'll hear how Toby's diagnosis changed almost every aspect of Toby's life, resulting in shock and grief, but also unlocking remarkable growth and a powerful drive to make purposeful change in the world.
Toby calls for systematic screening at birth, better health care provider awareness, and the need to address heightened risk of long term unemployment and poverty.
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🟢 Who can parents turn to when they learn that their child has Extra X or Y chromosomes?
Why are so few people ever diagnosed, and health care provider awareness still low? How does AXYS fill the gaps for families and chromodiverse individuals?
What’s the golden standard today for care and research? How reliable is non-invasive prenatal screening?
Where can I meet other concerned people, families and experts? Is the neurodiversity call for “nothing about us without us” coming to chromodiversity?
To find out the answer to these and other urgent questions, listen to this highly informative conversation with Carol Meersheart, Executive Director of AXYS, the leading family association for X and Y chromosome variations based in the US.
For more information, check out the AXYS website featuring an abundance of useful resources and a hotline for one-on-one queries at genetic.org.
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🟢 "He struggled with addiction all his life but was currently on a much better path." In our last episode, Gary Glissman told the story of his son Michael, diagnosed with an Extra X at the age of 24, found dead earlier this year at 37.
In this 2nd episode of two, Gary calls for parents to be assertive advocates for the needs of their children, and for policy makers to invest in systematic early detection, information and intervention.
You’ll hear how in the future, most issues associated to X&Y chromosomes could be prevented or limited, allowing the vast majority of people with such differences to go on to live long, happy, productive lives.
The episode concludes with short eulogy to Michael found in his truck after his death, as written by Michael himself.
Warning: this episode may contain triggering content.
Gary Glissman is a senior healthcare executive who started his career as a registered nurse. From 2017 to 21 he was the the Chairman of AXYS, the leading parent advocacy Association for X&Y chromosome variations based in the USA. Few people have made a bigger difference for thousands of families and individuals with chromodiversity around the world. Gary is a member of the global Chromodiversity™ Foundation Advisory Board.
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🟢 "A premature death that could've been avoided in so many ways." Gary Glissman, ex-Chairperson of AXYS, tells the heartbreaking story of his son Michael, diagnosed with an Extra X at the age of 24 and found dead earlier this year at the age of 37.
In this first of two episodes, you'll hear what Michael was like growing up, the challenges he faced as an adult and the circumstances of his death.
You'll also hear how what might seem to be initially minor challenges in children can result in compounding health, social and professional issues... with irreversible - sometimes fatal - consequences.
Gary has agreed to speak out is to convey a simple, urgent message: that the absence of systematic early screening, intervention and support of common genetic differences comes at unacceptably high cost.
Warning: this episode may contain triggering content for some.
Gary Glissman is senior healthcare executive who started his career as a registered nurse. From 2017 to 21 he was the the Chairman of AXYS, a leading parent advocacy association for X&Y chromosome variations based in the USA. Few people have made a bigger difference for thousands of families and individuals with chromodiversity.
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🟢 “After diagnosis you are still the same person as before.” Diagnosed at the age of 31 with an Extra X, Alfred Jonker is the President of the Dutch Klinefelter Association and a pioneer in helping to change lives of people with common genetic variations. Not only is his work making a difference in the Netherlands, his patient-centric approach that combines science with lived experience provides a compelling starting point for other regions in the world.
In this second of two episodes, you’ll hear his urgent recommendations for parents, partners, physicians and policy makers at a time of exploding diagnosis.
The episode concludes with Alfred’s unexpected answers to our “James Lipton” quiz and a short story about the importance of stepping out of one’s comfort zone.
🙏 … we have a small favor to ask. Since our charity My XXY | Chromodiversity™ Foundation started the Chromodiversity™ Podcast in July 2022, over 2000 people in 30+ countries have learned more about little known yet common genetic variations in children & adults by listening to our readouts of original research and our lived experience interviews.
Unlike many others, our charity has no industry backers. Just the determination and passion to deliver authoritative information that is always free from commercial influence. Information like this is vital to change lives - and for demanding better for families, children and adults living with chromosomal differences at a time of exploding diagnoses.
We know not everyone is in a position to pay for podcasts. But as a listener funded podcast, we rely on the backing of those who can. When you donate, you’re supporting our mission to change the way the world considers and supports common genetic diversity. Millions more can benefit from quality information about how to prevent adverse outcomes and live better lives.
Show your support by donating to our podcast today. With your help, we will ensure an easy listening experience so you can access engaging and quality information, notified to you weekly in your inbox. Thank you.
Support Chromodiversity™️* https://buy.stripe.com/3csg07g8LbaB5X2dQW
*Monthly subscriber donation $4.99 in the currency of your choice.
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🟢 “Is it one floor you will build, or is it twenty? Early diagnosis is the foundation.” Alfred Jonker is the President of the Dutch Klinefelter Association and a visionary in his holistic approach to supporting people with common chromosomal differences.
In this first episode of two, you’ll hear the bizarre story of how he found out about his own Extra X, the challenges he faced and coping mechanisms he discovered growing up with chromodiversity, and why he believes early detection is the key to unlocking better futures.
Next week's second episode will discuss his pioneering approach to supporting individuals and families, and include urgent takeaways for parents, professionals and policy makers.
🙏 … we have a small favor to ask. Since our charity My XXY | Chromodiversity™ Foundation started the Chromodiversity™ Podcast in July 2022, over 2000 people in 30+ countries have learned more about little known yet common genetic variations in children & adults by listening to our readouts of original research and our lived experience interviews.
Unlike many others, our charity has no industry backers. Just the determination and passion to deliver authoritative information that is always free from commercial influence. Information like this is vital to change lives - and for demanding better for families, children and adults living with chromosomal differences at a time of exploding diagnoses.
We know not everyone is in a position to pay for podcasts. But as a listener funded podcast, we rely on the backing of those who can. When you donate, you’re supporting our mission to change the way the world considers and supports common genetic diversity. Millions more can benefit from quality information about how to prevent adverse outcomes and live better lives.
Show your support by donating to our podcast today. With your help, we will ensure an easy listening experience so you can access engaging and quality information, notified to you weekly in your inbox. Thank you.
Support Chromodiversity™️* https://buy.stripe.com/3csg07g8LbaB5X2dQW
*Monthly subscriber donation $4.99 in the currency of your choice.
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🟢 "My brain nearly fell out of my head." Listen to remarkable ADHD & Autistic music educator for neuroatypical children Kate O’Brien
share her 20+ year diagnostic odyssey with Ehlers-Danlos Syndrome (EDS) - a somewhat common yet often ignored set of genetic variations with potentially wide ranging implications;
explain how it can be detected with a simple 20 to 30 second test and
why better awareness and understanding of EDS can save and improve lives.
For more information on EDS see ehlers-danlos.com.
🙏 … we have a small favor to ask. Since our charity My XXY | Chromodiversity™ Foundation started the Chromodiversity™ Podcast in July 2022, over 2000 people in 35+ countries have learned more about little known yet common genetic variations in children & adults by listening to our readouts of original research and our lived experience interviews - the result of countless hours of hard work to help raise awareness of health care providers, educators & families and change lives.
An initial endowment made by a Memorial Fund in memory of Elsje Werner-Polak, gassed by the Nazis in 1943 at age 5, combined with contributions from a circle of early adopters in a handful of countries keeps us open to all and independent of any commercial interests. However these funds are limited and we need your help in order to continue our mission.
Unlike many others, our charity has no pharmaceutical industry or other for profit backers. Just the determination and passion to deliver clear, evidence-based information that is always free from commercial influence. Information like this is vital to change lives - and for demanding better for families, children and adults living with chromosomal differences at a time of exploding diagnoses.
We know not everyone is in a position to pay for podcasts. But as a listener funded podcast, we rely on the backing of those who can. When you donate, you’re supporting our mission to change the way the world considers and supports common genetic diversity. Millions more can benefit from quality information about how to prevent adverse outcomes and live better lives.
Show your support by donating to our podcast today. With your help, we will ensure an easy listening experience so you can access engaging and authoritative information, notified to you weekly in your inbox. Thank you.
Support Chromodiversity™️* https://buy.stripe.com/3csg07g8LbaB5X2dQW
*Monthly subscriber donation $4.99 in the currency of your choice.
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🟢 "Celebrate Strengths!" Did you know that having more than one genetic code is relatively common?
Few people better are qualified than Jessica Langenhoff, a Biomedical Information Specialist from the Netherlands, to help us understand why this matters.
Listen to Jessica tell the story how she found out that she has not one or two but three different sets of DNA, what growing up with chromodiversity what like for her, how she learned to embrace her differences - and key takeaways for parents, educators and clinicians gained from her unique, combined perspective of biomedical science and lived experience.
🙏 … we have a small favor to ask. Since our charity My XXY | Chromodiversity™ Foundation started the Chromodiversity™ Podcast in July 2022, over 1500 people in 30+ countries have learned more about little known yet common genetic variations in children & adults by listening to our readouts of original research and our lived experience interviews - the result of countless hours of hard work to help raise awareness of health care providers, educators & families and change lives.
An initial endowment made by a Memorial Fund in memory of Elsje Werner-Polak, gassed by the Nazis in 1943 at age 5, combined with contributions from a circle of early adopters in a handful of countries keeps us open to all and independent of any commercial interests. However these funds are limited and we need your help in order to continue our mission.
Unlike many others, our charity has no pharmaceutical industry or other for profit backers. Just the determination and passion to deliver clear, evidence-based information that is always free from commercial influence. Information like this is vital to change lives - and for demanding better for families, children and adults living with chromosomal differences at a time of exploding diagnoses.
We know not everyone is in a position to pay for podcasts. But as a listener funded podcast, we rely on the backing of those who can. When you donate, you’re supporting our mission to change the way the world considers and supports common genetic diversity. Millions more can benefit from quality information about how to prevent adverse outcomes and live better lives.
Show your support by donating to our podcast today. With your help, we will ensure an easy listening experience so you can access engaging and authoritative information, notified to you weekly in your inbox. Thank you.
Support Chromodiversity™️* https://buy.stripe.com/3csg07g8LbaB5X2dQW
*Monthly subscriber donation $4.99 in the currency of your choice.
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🟢 “Early intervention is the absolute key.” If having one child with an Extra 47th chromosome is relatively common and can happen to anyone, to have three is extraordinarily unlikely. Listen to Anita Deutsch, a Clinical Nurse from Australia, share unique insights gained from raising three Extra X boys including an 11 year old and 9 year old identical twins, as well as her takeaways from nearly a decade of experience counseling other parents.
🙏 … we have a small favor to ask. Since our charity My XXY | Chromodiversity™ Foundation started the Chromodiversity™ Podcast in July 2022, over 1500 people in 30+ countries have learned more about little known yet common genetic variations in children & adults by listening to our readouts of original research and our lived experience interviews - the result of countless hours of hard work to help raise awareness of health care providers, educators & families and change lives.
An initial endowment made by a Memorial Fund in memory of Elsje Werner-Polak, gassed by the Nazis in 1943 at age 5, combined with contributions from a circle of early adopters in a handful of countries keeps us open to all and independent of any commercial interests. However these funds are limited and we need your help in order to continue our mission.
Unlike many others, our charity has no pharmaceutical industry or other for profit backers. Just the determination and passion to deliver clear, evidence-based information that is always free from commercial influence. Information like this is vital to change lives - and for demanding better for families, children and adults living with chromosomal differences at a time of exploding diagnoses.
We know not everyone is in a position to pay for podcasts. But as a listener funded podcast, we rely on the backing of those who can. When you donate, you’re supporting our mission to change the way the world considers and supports common genetic diversity. Millions more can benefit from quality information about how to prevent adverse outcomes and live better lives.
Show your support by donating to our podcast today. With your help, we will ensure an easy listening experience so you can access engaging and authoritative information, notified to you weekly in your inbox. Thank you.
Support Chromodiversity™️* https://buy.stripe.com/3csg07g8LbaB5X2dQW
*Monthly subscriber donation $4.99 in the currency of your choice.
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🟢 “You're enough... just as you are.” Listen to Brock Vestrum from Minnesota tell his inspiring story about growing up with an Extra X chromosome: how he found out about his difference, overcame his challenges, found his strengths and gained key takeaways for families and individuals from hard earned experience. Brock is a Product Owner at the leading provider of telemedicine care in substance use and behavioral health treatment in the U.S., a mental health advocate and Chromodiversity Ambassador.
🙏 … we have a small favor to ask. Since our charity My XXY | Chromodiversity™ Foundation started the Chromodiversity™ Podcast in July 2022, over 1000 people in 30+ countries have learned more about little known yet common genetic variations in children & adults by listening to our readouts of original research and our lived experience interviews - the result of countless hours of hard work to help raise awareness of health care providers, educators & families and change lives.
An initial endowment made by a Memorial Fund in memory of Elsje Werner-Polak, gassed by the Nazis in 1943 at age 5, combined with contributions from a circle of early adopters in a handful of countries keeps us open to all and independent of any commercial interests. However these funds are limited and we need your help in order to continue our mission.
Unlike many others, our charity has no pharmaceutical industry or other for profit backers. Just the determination and passion to deliver clear, evidence-based information that is always free from commercial influence. Information like this is vital to change lives - and for demanding better for families, children and adults living with chromosomal differences at a time of exploding diagnoses.
We know not everyone is in a position to pay for podcasts. But as a listener funded podcast, we rely on the backing of those who can. When you donate, you’re supporting our mission to change the way the world considers and supports common genetic diversity. Millions more can benefit from quality information about how to prevent adverse outcomes and live better lives.
Show your support by donating to our podcast today. With your help, we will ensure an easy listening experience so you can access engaging and authoritative information, notified to you weekly in your inbox. Thank you.
Support Chromodiversity™️* https://buy.stripe.com/3csg07g8LbaB5X2dQW
*Monthly subscriber donation $4.99 in the currency of your choice.
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