Afleveringen
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From childhood memories to global aspirations, every plunge counts in the fight against ovarian cancer. Dive into our latest episode with Jim Shepard to learn more!
#MakingWaves #GOSHpodcast
Bio: Meet Jim Shepard. The co-chairs of Plunge for the Cure. The Plunge for the Cure Foundation is a registered Canadian charity that was established to raise funds for drug and treatment development targeting ovarian cancer. Jim initiated the foundation motivated by a family member's diagnosis and the alarming five-year survival rate of under 40 percent.The foundation's focal point is an annual event held on the last Sunday in May, where individuals and teams engage in fundraising and take part in celebrating the arrival of summer by plunging into the water. These funds are directed towards the world-renowned UBC/VGH research facilities in Vancouver.
The episode aims to spotlight ovarian cancer issues, sharing the inspiring stories and efforts of individuals like Jim Shepard. Their collective goal is to increase awareness and improve outcomes for ovarian cancer, making a meaningful impact in the ongoing fight against this challenging disease.
Resources:
Plunge for the Cure Foundation website - https://www.plungeforthecure.com/
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
Delve into the complexities of endometriosis with Dr. Paul Young, a distinguished gynecologist and researcher. Gain insights into diagnosis, treatment, and ongoing research efforts in our latest podcast episode!
#EndometriosisAwareness #PelvicHealth #MedicalResearch
Bio: Dr. Paul Yong (MD, PhD, FRCSC) is a distinguished Gynaecologist, directing the Research Program at the BC Women’s Centre for Pelvic Pain & Endometriosis. Dr. Young’s clinical focus lies in pelvic pain, with a particular expertise in endometriosis, painful periods, sexual pain, and associated bladder, bowel, and musculoskeletal issues. Dr. Yong's commitment extends to the academic realm, where he serves as an Assistant Professor in the UBC Department of Obstetrics & Gynaecology.His translational research endeavors include spearheading bio-banking initiatives for endometriosis, conducting gene sequencing studies to unravel underlying mechanisms, and investigating nerve formation in the pelvis as a potential source of pain. Beyond his clinical and research roles, Dr. Yong actively contributes to medical education, imparting his knowledge and experience to the next generation of healthcare professionals. His multifaceted approach underscores a holistic commitment to advancing the understanding and treatment of pelvic pain and endometriosis.
Resources:
Endometriosis and Pelvic Pain Laboratory: https://endopain.endometriosis.org/_
For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
Zijn er afleveringen die ontbreken?
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Delve into the world of endometriosis education with Dr. Natasha Orr as she shares insights on research, advocacy, and patient-centered care. #EndometriosisAwareness #HealthcareEmpowerment
Meet Natasha Orr, a researcher at the University of British Columbia (UBC) with a passion for understanding and helping people with endometriosis and chronic pelvic pain. Natasha finished her PhD in 2022, where she studied central sensitization and endometriosis associated pain. During her PhD, she spearheaded the development of endometriosis educational videos and a workshop for people with lived experience of endometriosis and their loved ones. Now, as a Postdoctoral Research Fellow, her work centers on developing online resources about endometriosis and chronic pelvic pain for healthcare providers in training using patient-oriented research and user-centered design.Her collaborative approach involves working with patient partners throughout each step of her project, making her research not only academically significant but also accessible and engaging for the public. Natasha's commitment to reducing the delay in endometriosis care and improving healthcare providers' understanding of endometriosis and chronic pelvic pain makes her a valuable contributor to both research and advocacy in women's health.
Her Postdoctoral work has received 3 grants to support project costs, a UBC Health Innovation Funding Investment award, a Michael Smith Health Research BC Convening and Collaborating Award, and a WHRI Catalyst award. She is also supported by a CIHR Postdoctoral Fellowship.
Resources:
Dr. Orr's Website: https://natashaorr.com/
Endometriosis and Pelvic Pain Laboratory: https://endopain.endometriosis.org/_
For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
Join us in a powerful conversation with Anna, as she shares her journey with endometriosis, breaking down misconceptions and fostering awareness.🎙️
News Alert! GOSH podcast is now streaming in video format on YouTube.✨ Try out our new format through the link: https://youtu.be/qg5QQb0pyq8
Anna's Bio:Anna Leonova is a dedicated researcher currently pursuing a PhD in Women+ and Children’s Health Sciences at UBC. She holds a BSc in Biochemistry and Molecular Biology from Trent University and an MSc in Medical Sciences with a specialization in Physiology and Pharmacology from McMaster University. Anna's academic journey has been intertwined with her personal experience, having battled endometriosis for nearly 18 years.
For the past seven years, Anna has focused her research on endometriosis, emphasizing the importance of knowledge translation. She believes in the responsibility of researchers to effectively communicate their findings to those directly affected by their work. Alongside her academic pursuits, Anna engages with the endometriosis community through social media, sharing informative posts to raise awareness and foster connection. Anna's pragmatic approach and commitment to bridging the gap between research and personal experience make her a valuable contributor to the understanding of endometriosis.
Resources:
Book: “The Doctor Will You See Now” by Dr. Tamer SeckinEndometriosis Network Canada: https://endometriosisnetwork.com/
Resources, educational videos, research opportunities, and community eventsUpcoming event: Run to end endo (in support of The endometriosis network Canada) – June 9 in Vancouver – follow the lab for more informationMarch – endometriosis awareness month: learn and share about endometriosis!
Endometriosis and Pelvic Pain Laboratory: https://endopain.endometriosis.org/_
For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative
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Welcome to the first episode of the new year!
Meet Geneviève Allaire-Stacey, Researcher behind eSense-Cancer 🌱👩🔬 Delve into the insightful work of Geneviève, focusing on adapting therapy modules in sexual health for gynecologic cancer survivors. Her commitment to nuanced, patient-centric research is at the heart of eSense-Cancer
Geneviève Allaire-Stacey is currently doing her Master's of Science in Women+ and Children’s Health Sciences under the supervision of Dr. Lori Brotto. In 2022, she graduated from McGill University after completing her Bachelor of Arts as a double major in Psychology and Gender, Sexuality, Feminist and Social Justice Studies as well as a minor in Behavioural Science. Through her studies at McGill, Geneviève developed a marked interest for women, sexuality, and health, and it is with the goal of having a direct impact on women’s health that she applied for the WACH program. Genevieve’s focus at UBC and in the Sexual Health Research Laboratory is centered on treatments for sexual dysfunction in cancer survivors. Specifically, she works on eSense-Cancer, a branch of the eSense study, which seeks to adapt the original digital therapy modules to gynecologic cancer survivors’ lived experiences with female sexual dysfunction. Geneviève hopes to continue onwards doing work related to sexual health and advocacy once she is done her master’s degree.
Geneviève’s presentation won Barbara Berthon Ovarian Cancer Presentation Award at the annual GCI Trainee Research Day conference.
Sexual Health Lab at UBChttps://brottolab.med.ubc.ca/
https://brottolab.med.ubc.ca/genevieve-allaire-stacey/
eSense Cancer
https://brottolab.med.ubc.ca/studies/esense-cancer/
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
GOSH Podcast survey:
https://ubc.ca1.qualtrics.com/jfe/form/SV_9vJ2Jt3Mr6OPJBk
In our previous episode, we heard from Amanda’s mother, Anita, who told her story of her ovarian cancer diagnosis. Today we will hear from Amanda, a beloved daughter and one of Anita's caregivers.Amanda is a Registered Massage Therapist with nearly three decades of experience in her field. She is happily married and the proud mother of a 15-year-old son. Her family extends beyond her immediate household, with a younger sister residing out West near her mother, Anita. However, Amanda's journey has also been marked by loss, as she lost her older brother in 2016 due to a heart-related condition.
Today, Amanda will share her perspective as a caregiver and a loved one, shedding light on the journey that came with supporting a family member through a gynecologic cancer diagnosis.
Anita’s TikTok: @tastyentertaininghttps://www.tiktok.com/@tastyentertaining
Anita’s Instagram: @tastyentertaining
https://www.instagram.com/tastyentertaining/
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative
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GOSH Podcast survey:
https://ubc.ca1.qualtrics.com/jfe/form/SV_9vJ2Jt3Mr6OPJBk
In this emotionally resonant episode of the GOSH podcast, we are honored to introduce you to Anita Wright, widely known as 'TikTok Nana.' Explore how Anita's open and sincere sharing on TikTok has not only increased awareness but has also created a supportive community of followers who rallied behind her. This episode provides a chance to draw inspiration from Anita's experiences and gain valuable insights into early detection, cancer advocacy, and the enduring strength of a TikTok Nana who transformed her journey into a platform for change.Bio: Anita Wright is a 76-year-old cake artist from New Westminster. With more than 600 thousand followers on TikTok, Anita, known as 'TikTok Nana,' has captured hearts with her mesmerizing "acrylic piping art." Once a marketing manager, she found her artistry after retiring and starting her own event business in Toronto. Upon moving to Vancouver in 2017, she ventured into baking custom cakes and shared her creations online. In 2022, Anita received a stage four ovarian cancer diagnosis. She openly communicated this diagnosis to her followers and now uses her platform to document her ovarian cancer journey, aiming to increase awareness about this type of cancer.
Anita’s TikTok: @tastyentertaining
https://www.tiktok.com/@tastyentertaining
Anita’s Instagram: @tastyentertaining
https://www.instagram.com/tastyentertaining/
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
GOSH Podcast survey:
https://ubc.ca1.qualtrics.com/jfe/form/SV_9vJ2Jt3Mr6OPJBk
Description: In this episode, we delve into the dynamic world of cancer research, where artificial intelligence (AI) meets oncology to shape the future of healthcare. Our guest, Ali Khajegili Mirabadi, a PhD student in Bioinformatics at the University of British Columbia, takes us on a captivating journey through the impact of AI in cancer research and its potential to revolutionize the field. Discover how AI serves as a powerful ally in the battle against cancer, particularly rare and complex forms. Ali sheds light on the challenges of handling vast amounts of complex data and how AI helps identify patterns and similarities that may be imperceptible to the human eye. These insights have the potential to lead to groundbreaking discoveries in the world of cancer subtyping and personalized treatment.
Bio: Ali Khajegili Mirabadi is a second-year PhD student in Bioinformatics at the University of British Columbia. His research focuses on Artificial Intelligence (AI)-based cancer patient similarity learning to advance clinical precision medicine. He primarily targets rare cancers across all organs, utilizing microscopic tissue images, clinical data, and genome information to enhance AI models' ability to identify patient similarities and trends in treatment. Supported by the UBC Four Year Fellowship in Dr. Bashashati’s research lab, Ali's work carries significant potential for improving patient care. Before joining UBC, he simultaneously achieved two undergraduate degrees in Electrical Engineering and Applied Mathematics with honors from the Isfahan University of Technology, Iran.
Link to the Dr. Ali Bashashati's lab website:
https://aimlab.ca/team/
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
GOSH Podcast survey:
https://ubc.ca1.qualtrics.com/jfe/form/SV_9vJ2Jt3Mr6OPJBk
Welcome to the first episode marking the 4th season of the GOSH podcast! We are excited to share with you more fascinating discussions with researchers and physicians, and inspiring patient stories.Today we have the founders of Down there aware(or DTA in short) podcast which was launched in 2020 to propagate a real and relevant discussion about women’s health. Meet Alex Massey who with her mother Mary co-founded and host Down there aware podcast. Alex was born and raised in Florida and currently resides in the capitol city, Tallahassee, with her perfect pooch, Sadie Mae. At the age of 32, she was diagnosed with endometrial cancer. Her journey with gynecologic cancer motivated her to become an Women's Health advocate and encourage women to be aware of their bodies and become their own best health advocate.
Meet Alex’s mom, Mary Massey is the co-founder of DTA and a retired, career teacher. She began her career as a music teacher and, after earning masters and doctoral degrees, she wrapped up her teaching career as a college professor, training future teachers. Having experienced several serious, and some unusual, medical issues, personally, and through her family members, Mary has developed a keen interest in all things medical, researching and delving deeply into causes, treatments, and outcomes of various health issues. Her incentive to become involved in DTA was to support Alex after her cancer diagnosis and to help inform, educate, and advocate for other young women.
Down There Aware website - https://www.downthereaware.com/
Down There Aware episode: Alex’s Cancer Story - https://www.downthereaware.com/podcast/episode/f4e3dd31/my-cancer-story
Down There Aware episode: A Mother's Perspective - https://www.downthereaware.com/podcast/episode/2bced4d9/a-mothers-perspective
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
GOSH Podcast survey:
https://ubc.ca1.qualtrics.com/jfe/form/SV_9vJ2Jt3Mr6OPJBk
In the last episode of Season 3 of the GOSH podcast, we are honored to have our co-host Nicole Keay sharing her fertility journey as a cervical cancer survivor. Nicole shares her personal experiences with fertility loss and the challenges she had to navigate along the way. Nicole takes us on a heartfelt journey sharing her decision-making process, shedding light on the financial and legislative aspects of surrogacy and egg donation in Canada. Nicole provides valuable tips and resources for others facing similar situations. Join us for this inspiring episode as Nicole's story offers hope and resilience on the path to parenthood.CancerConnection from the Canadian Cancer Society:
https://cancerconnection.ca/s/
Fertile Future - Charity that provides a reduction in cost for fertility preservation for cancer patients:
https://fertilefuture.ca/programs/power-of-hope/
If you would like to reach out to Nicole, please reach out at:
[email protected] -
Join us for the final episode of our collaborative series with Ovarian Cancer Canada (OCC), where we delve into the incredible work being done to support ovarian cancer patients across Canada. In this episode, we're honored to have Stephanie, a program director at OCC, and Starla, a patient partner, as our special guests.
Starla shares her personal experience as an ovarian cancer patient and reveals how she utilizes social media to document her cancer journey and foster connections with fellow patients. Her story is one of strength, resilience, and the power of community.
Stephanie, the program director at OCC, sheds light on the range of resources and initiatives available to support ovarian cancer patients. From awareness campaigns to tailored programs, Stephanie provides valuable insights into the diverse ways OCC is making a difference in the lives of those affected by ovarian cancer.
Bio:
Stephanie Gosselin
Stephanie Gosselin is the Programs Director at Ovarian Cancer Canada. She has a passion for building community and supporting those diagnosed with ovarian cancer, ensuring that no one is alone on this journey. Stephanie is committed to making sure that everyone in the ovarian cancer community has access to the most up to date and accurate information through a wide variety of education and support programs. She is proud to call Shellbrook, SK her home, where she lives on a farm with her husband and three kids. In her spare time you will find her running the trails of northern SK.
Starla Fiddler
Starla Fiddler was diagnosed with a rare form of ovarian cancer at age 23. Since being diagnosed, Starla has faced multiple recurrences and rounds of treatments. She is a strong advocate for ovarian cancer awareness by making connections through social media engagements, speaking at events, and doing media interviews. She is from Saskatoon Saskatchewan where she shares her life and makes memories with her 5-year-old son.
Ovarian Cancer Canada (OCC) Website - https://ovariancanada.org/
OCC Patient Resources - https://ovariancanada.org/creating-connections
OVdialogue - https://ovdialogue.ovariancanada.org/
Teal Tea - https://ovariancanada.org/events/teal-tea-for-everyone-diagnosed-with-ovarian-cancerOCC email:
Follow OCC on social media:
https://www.instagram.com/ovariancancercanada/
https://twitter.com/OvarianCanada
https://www.facebook.com/OvarianCancerCanada/
https://www.youtube.com/user/OvarianCancerCanada
https://www.linkedin.com/company/ovarian-cancer-canada/
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
Continuing our collaborative series with Ovarian Cancer Canada (OCC), we are pleased to welcome our next guest, Dr. Alicia Tone. In this episode, Dr. Tone shares the personal story of how her work with real women living with ovarian cancer continues to inspire and motivate her work. Dr. Tone elaborates on the critical role of patient involvement in advancing ovarian cancer research and how OCC ensures patient-centeredness in many areas of their work. She also outlines the resources available for scientists in the ovarian cancer field such as an extensive collaborative network of researchers, clinicians, trainees, and patients, funding opportunities, specimen bank and others.
Bio: Dr. Alicia Tone is Scientific Advisor at Ovarian Cancer Canada. Dr. Tone has been in the ovarian cancer field for 20 years. Her history prior to joining Ovarian Cancer Canada includes a PhD at the University of Toronto in Ontario, post-doctorate training at BC Cancer, and 7 years as a Scientific Associate in the Division of Gynecologic Oncology at Princess Margaret Cancer Centre. In 2020, Dr. Tone started her work with Ovarian Cancer Canada where she runs the national OvCAN research initiative and performs collaborative research to understand and improve care along the ovarian cancer continuum (prevention, diagnosis, treatment, supportive care).
Ovarian Cancer Canada (OCC) Website:
https://ovariancanada.org/
OCC email:
Follow OCC on social media:
https://www.instagram.com/ovariancancercanada/
https://twitter.com/OvarianCanada
https://www.facebook.com/OvarianCancerCanada/
https://www.youtube.com/user/OvarianCancerCanada
https://www.linkedin.com/company/ovarian-cancer-canada/
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
We are excited to announce the first episode of our collaborative series with Ovarian Cancer Canada (OCC). In this series, we will have the opportunity to speak with patient partners, research scientists, and program coordinators from OCC, who will share about the research, awareness, and advocacy work they are doing in OCC. As the only registered Canadian charity solely dedicated to overcoming ovarian cancer, the organization provides leadership in research, advocacy, and support, so that women live fuller, better, longer lives.
To kick off our collaborative series with OCC, we have Donna Peppin sharing her personal experience with low-grade serous ovarian cancer and her advocacy work with OCC. Donna emphasizes the significance of patient-centered research and how patient involvement has led to a greater research focus on rare subtypes of ovarian cancer. She also provides valuable information on OCC's support services and other resources available for patients. By the end of this episode, we hope that you will feel empowered and inspired, just as we did.
Bio: Donna Pepin of Toronto, Ontario, faced a serous borderline ovarian cancer diagnosis at the age of 49. During her cancer journey, Donna realized that most women she knew were not informed or aware of ovarian cancer, and that there were very few ovarian cancer advocates. So, she decided to become one. She began volunteering with Ovarian Cancer Canada in 2008. From speaking publicly about her experience with ovarian cancer to planning gala events, she focused on raising the profile of this cause. Donna had a vital role in successfully advocating alongside Ovarian Cancer Canada for a historic federal investment in research. Today, she is the Patient Representative on the Governing Council of Ovarian Cancer Canada's OvCAN research initiative and the Patient Lead for OvCAN’s national Patient Partners in Research Team.
Ovarian Cancer Canada (OCC) Website:
https://ovariancanada.org/OCC upcoming events:
https://ovariancanada.org/events-support/find-local-events
OCC guide on clinical trials:
https://ovariancanada.org/Research/Clinical-Trials
OCC support serives:
https://ovariancanada.org/Living-with-Ovarian-Cancer/Find-Support
Follow Ovarian Cancer Canada on social media:
https://www.instagram.com/ovariancancercanada/
https://twitter.com/OvarianCanada
https://www.facebook.com/OvarianCancerCanada/
https://www.youtube.com/user/OvarianCancerCanada
https://www.linkedin.com/company/ovarian-cancer-canada/
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
We're delighted to welcome Dr. Farhia Kabeer as our featured guest, where she shares her expertise on pre-clinical models for research and chemotherapy resistance. Additionally, she highlights some of the promising research projects that aim to enhance treatment strategies and reduce toxicity levels for patients with high-grade serous ovarian cancer.
Bio:
Dr. Farhia Kabeer is a gynae surgeon from Pakistan. Her cancer research took off from MSc at McGill University studying the metastatic potential of breast cancer cells. Farhia’s PhD research encompassed the fields of cancer evolution and translational breast cancer research. She obtained a real-time look at how cancers evolve and why chemotherapies that are initially effective fail over time. Currently, Farhia is a post-doctoral fellow at OVCARE and her work focuses on high-grade serous ovarian cancer pre-clinical models to test novel combinations therapies.
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
In today's episode, we welcome Dr. Melanie Altas. Melanie talked about the struggles gyne cancer survivors face with sexual health. She also outlined useful resources and tools around sexual health available for patients as well as for healthcare providers.
Originally from the Maritimes, Dr. Melanie Altas finished her residency in Obstetrics & Gynaecology at UBC in 2007. Currently, Dr. Altas is a Director of BC Centre for Vulvar Health and a Clinical Associate Professor at the UBC in the Department of ObGyn. Her current clinical practice is dedicated to cancer survivorship, menopause, and sexual pain disorders. She is committed to empowering women with education and tools to heal themselves and is a passionate advocate for patient collaboration and shared decision-making.
Links:Cancer & Sexual Health Clinic
https://bcvulvarhealth.ca/cancer-sexualhealth/
BC Centre for Vulvar Health:
https://bcvulvarhealth.ca/about/people/
Hello Vulva! Instagram page:
https://www.instagram.com/hello.vulva/?hl=en
Dr. Lori Brotto GOSH podcast episode:
https://www.buzzsprout.com/1387837/episodes/8056177
Dr. Lori Brotto’s book:
https://www.loribrotto.com/
OHNUT- wearable tool to adjust the depth of the penetration during sexual intercourse:
https://ohnut.co/
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
This episode of the Season 3 GOSH podcast features Lexi Mestas. Lexi shares her struggles of navigating a rare type of cancer as a young adult including feelings of isolation and infertility. You can learn how family support, community, and advocacy through social media helped Lexi in her journey.
Lexi is a creative with a background in city development, urban food access, community health, social media campaigns, fundraising, and state-wide project management. In her late teens, Lexi was suffering from symptoms of ovarian cancer but didn’t know they were related to ovarian cancer until undergoing the necessary tests. She was diagnosed with a rare type of ovarian cancer, Low-Grade Serous Ovarian Cancer when she was 27 years old. Lexi became her own advocate pursuing her passions, raising over $72K and spreading awareness through social media campaigns, a weekly newsletter, media appearances, and community partnerships.
Lexi's Social Media accounts:
https://www.instagram.com/leximestas/?hl=enhttps://www.tiktok.com/@leximestas?lang=en
STAAR fundraiser for women with low-grade serous ovarian cancer:
https://staarovariancancerfoundation.flipcause.com/secure/cause_pdetails/MTQzODY5_
For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
Welcome Patrick Mehr to today’s episode of the GOSH podcast!
On the last episode of the GOSH Podcast, we met Helen and learned more about her journey with endometrial cancer during the COVID-19 pandemic. This week, we are back with Patrick Mehr, Helen's husband, to share his experiences as a caregiver during and after his wife’s endometrial cancer diagnosis. In this episode, you will hear about how Patrick took care of Helen and himself during the journey as well as some useful tips for whoever is undertaking the role of a caregiver for a cancer patient.
Born and educated in Paris, France, Patrick Mehr is a graduate of École Polytechnique and of France's civil service Corps des Mines. Patrick moved to Cambridge, Massachusetts in 1982 to become a strategic consultant. He then worked for the Boston Consulting Group before running his own consulting practice, advising industrial and high-technology companies on business development and strategy. For the past 15 years, Patrick has been running Plunkett Lake Press which publishes eBooks of non-fiction, including biographies and memoirs. His wife of 40 years is Helen Epstein, author of Getting Through It: My Year of Cancer During Covid. They live in Lexington, Massachusetts, have two grown children, and two grandchildren.
Helen's book "Getting Through It: My Year of Cancer during Covid ":https://plunkettlakepress.com/gti
Learn more about Helen’s works:
http://www.helenepstein.com/
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
Welcome to the second episode of the Season 3 GOSH Podcast! Today we are featuring Helen Epstein, endometrial cancer survivor and the author of the book “Getting Through It: My Year of Cancer During Covid”. In this episode, Helen talks about her experiences navigating endometrial cancer during the COVID-19 pandemic and her motivation behind writing the book.
Helen Epstein is the author, co-author, translator or editor of ten books of narrative nonfiction. She became a journalist at the age of 20 and became the first tenured woman journalism professor at New York University, teaching about 1000 students over 12 years. She guest lectures extensively at universities, libraries, and religious institutions in North America and abroad. Just after Covid arrived in North America, journalist Helen Epstein was diagnosed with endometrial cancer — one of a predicted 66,570 new cases of cancer of the uterine body in the United States in 2021. Helen wrote a memoir called “Getting Through It”, a candid and eye-opening account of a medical steeplechase of surgery, chemo, and radiation therapy, bringing together reporting, research, and elements of memoir to tell an important story.Helen's book "Getting Through It: My Year of Cancer during Covid ":
https://plunkettlakepress.com/gti
Learn more about Helen’s works:
http://www.helenepstein.com/
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
To start off Season 3 of the GOSH Podcast, we are excited to share the story of a new educational resource for gynecologic cancer patients entitled "Gynecologic Cancers: Your Journey". This resource was developed in partnership between the Gynecologic Cancer Initiative and BC Cancer to help support gynecologic cancer patients in finding easy-to-understand information and resources after being diagnosed with gynecologic cancer.
The resource presents the entire gynecologic cancer journey to them upon diagnosis and points them to relevant information and resources. Through a series of working group meetings and interviews, the resource was developed in collaboration with multidisciplinary teams at BC Cancer and GCI patient partners. This resource was built by gynecologic cancer patients for gynecologic cancer patients but at every step of the way, we received a lot of important insight from Gynecologic Oncology Specialists, Palliative Medicine Specialists, BC Cancer Supportive Care Manager, Plain Language Specialists, Library Services and many others.The resource is now available on the BC Cancer website:
http://www.bccancer.bc.ca/library-site/Documents/Gynecologic-Cancer-Your-Journey.pdf
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Welcome the three patient partners Nancy Cleveland, Siv Klausen, and Nicole Keay, who played a really important role in making this resource a reality.Nicole Keay is an experienced communications professional and a patient partner with the Gynecologic Cancer Initiative (GCI). She also co-hosts the Gynecologic Oncology Sharing Hub (GOSH) podcast alongside Stephanie Lam. In her early 30s, Nicole was diagnosed with cervical cancer and underwent intense treatment including surgery, radiation, and chemotherapy resulting in the loss of her fertility. Nicole now uses her experiences to help guide, support, and be a voice for women who have been diagnosed with gynecological cancers.
Nancy Cleveland has lived in Vancouver for her entire life and is married and the mom to two beautiful adult children. In her professional life, she spent 35 years as a teacher with the Vancouver School Board. In May 2019, Nancy was diagnosed with Stage 3C Primary Peritoneal Serous Ovarian Cancer after going through what she thought of as a routine laparoscopic surgery for a gallstone. Her journey has had its ups and downs, but she continues to believe that there is a lot of hope for gynecologic cancer patients and survivors. Nancy has had some great experiences with clinical drug trials and research that continues to improve outcomes for patients across BC.
Siv Klausen is a Patient Partner with the Gynecological Cancer Initiative. After experiencing vulvar cancer in 2018, she underwent surgery, chemotherapy, and radiation at the BC Cancer Agency in Vancouver. Siv lives in Tsawwassen with her husband and son, and JoJo the poodle.
Stephanie Lam is the Research Coordinator for the Gynecologic Cancer Initiative (GCI), a province-wide initiative aimed to accelerate transformative research on the prevention, detection, treatment, and survivorship of gynecologic cancers. Currently, Stephanie supports a broad range of research activities within the GCI including clinical trials, knowledge translation, and educational programs. An important part of her role is in the area of patient engagement and patient-oriented research.
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative -
The final episode of Season 2 features Jessica Dietcher. Jessica is a fourth-grade teacher and a cervical cancer survivor. She is the happiest when teaching yoga, journaling, and creative hands-on projects. Jessica shares how these activities helped her navigate her diagnosis, treatment, and her recovery from cervical cancer just over two years ago.
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For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]
Where to learn more about us:
Twitter – @GCI_Cluster
Instagram – @gynecancerinitiative
Facebook – facebook.com/gynecancerinitiative - Laat meer zien
