Afleveringen
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Maurice Ahern and his family were living in China in 2010 when his 1 year old son Micah was diagnosed with Neuroblastoma. Maurice will talk about quickly moving his family to Orlando to have Micah's surgery and his 6 year ordeal fighting this disease which ended with his passing in July of 2016. Maurice will also talk about his love for the Food Industry and for Baking, which he has used for the past 7 years to help honor the memory of Micah and keep his legacy alive.
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Hearing loss is a very well known side effect and long term effect that survivors of Pediatric Cancer must be aware of, especially if they are being treated with Cisplatin during Chemotherapy, which is a very effective medicine in helping to save lives of these children and adolescents . Holly Reames and Eric Meyer, who work at Fennec Pharmaceuticals will talk about the ramifications of this hearing loss, which if it happens, is always permanent.
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Zijn er afleveringen die ontbreken?
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For the past 3 years Mariah Forster Olson and Mary Beth Collins have been working on a Toolkit to help Pediatric Cancer survivors and their families try and navigate through the period when they have gone past the 5 year mark since their cancer diagnosis, but have many issues to conquer both physically and mentally because of what they went through during their cancer experiences. This toolkit is now available and has already helped many patients and their families who have entered the Survivorship phase.
Mariah and Mary Beth are both members of the very important and successful Non-Profit known as the Coalition Against Childhood Cancer or CAC2. -
Tabitha Odom thought that her 2 year old daughter Sailor might have the flu when she brought her to a Walk In Clinic in November of 2022 as she had not been feeling well. Later that night Tabitha became worried when she received a phone call at 9:00 PM and said that Sailor needed to go to a hospital emergency room. After that she was sent to UTMB Hospital in Galveston Texas where Tabitha was told that Sailor had B Cell Acute Lymphoblastic Leukemia. Tabitha will talk about Sailor's successful treatment protocol in which she is expected to complete her maintenance program in January of 2025.
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In April of 2023 Vickie Stevens and Don McCarthy's little son Rio was experiencing a loss of appetite, limping instead of walking, and losing energy. After a stay at a local hospital did not solve the question of what was wrong with Rio, he was transferred to a large hospital in London and was finally diagnosed with Stage 4 Neuroblastoma. Rio is now into his 8th month of treatment and the hope is that he will at some point be able to travel to Memorial Sloan Kettering in New York to take a drug that has proven to be highly successful in treating Rio's form of Neuroblastoma . Vickie and Don will also talk about the organization Solving Kids Cancer which has proven to be very helpful for their family and many others in England. www.solvingkidscancer.org.uk/children/rio+1
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Abby Wagle and Ella Bresee met in 2019 when they played competitive basketball against each other. They quickly became best friends and then in 2021, Ella was diagnosed with the Pediatric Brain Cancer Medulloblastoma. Abby is now a sophomore in high school and will talk about the close friendship that she and Ella had, and how difficult it was when Ella passed away in September of 2022. Abby will talk about the many ways that she has honored her friend since then and will continue to honor her in the years to come.
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After little Charlie Stevens was taken to his doctor after he developed a lesion in his right eye, it became apparent that he had too many white blood cells, but an X Ray and ultrasound showed him to be healthy in the early days of 2020. Just six weeks later Charlie was diagnosed with Acute Myeloid Leukemia. A very aggressive treatment protocol led to his remission that year but just before Christmas Charlie relapsed and he passed away on January 27th, of 2021, just 2 days after his 3rd birthday. Charlie's mother Kelly will talk about her beloved son, and how she has become an activist in her native home of Adelaide Australia to help other AML and Pediatric Cancer patients and their families.
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Brian Burkhardt and his family left their home in Miami and went to the Florida Keys during Spring break in early in 2020 where they had to isolate because of Covid. Two days after they returned home his son Oliver was having trouble breathing which sounded like a Covid issue, but turned out to be the Pediatric Blood Cancer Acute Lymphoblastic Leukemia. Brian will talk about this diagnosis, Oliver's successful treatment , and the more than creative Non-Profit called the Oliver Patch Project. which Brian and his wife Trish started in Oliver's honor.
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When Vara James was 9 years old in 2016 she was diagnosed with the Kidney Cancer Wilms Tumor. Now 17 years old, Vara has been cancer free since February of 2018 and has many options to look at as she is able to live as normal of a life as possible. Vara and her mother Emily Gordon will talk about these past 8 years which include helping to start the Rock Cancer program along with Neuro Oncologist Dr. Carl Koschmann, which gives Pediatric Cancer patients the opportunity to gain confidence and a sense of accomplishment by learning to Rock Climb.
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It took 5 years after waking up each day feeling tired and sick, but Kim Denice was finally diagnosed with Hodgkins Lymphoma as a senior in high school in 2013. Kim will talk about the struggles that she had while she was in treatment and even to this day, as she has been cancer free for over 10 years. Kim will also talk about her involvement in the Leukemia and Lymphoma Society and the fact that she is able to live her life in the best manner possible.
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Christen Gray's 5 year old son Finn complained of back pain in the day's before he was to go to kindergarten in 2018. As Christen drove Finn to school for his first day, his back was hurting so much that he had trouble sitting in his car seat. Just a few days later Finn was diagnosed with the Pediatric Bone Cancer Ewings Sarcoma. Christen will talk about Finn's all too short life which ended on January 21st of 2020, and the non- profit Finn's Fighters which her family started in 2019 and its mission, which is to raise awareness for the cause of Pediatric Cancer and to help Tampa Bay area families who are going through their own cancer issues with their children.
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When 10 year old Oliver Smith was trying out for his under 11 hockey team in the fall of 2016 his father noticed that Oliver was not as agile, fast, and flexible as he normally was. He also complained of pain in his groin area. Other symptoms arrived and in early 2017, Oliver was diagnosed with Ewings Sarcoma which was already at Stage 4. Oliver fought his battle for nearly 2 and half years before passing away on June 27th of 2019, just 1 day after his 12th birthday. Oliver's parents Bryan and Shauna will talk about their beloved son and the Ollie Bots Project that they started in his honor, which is helping to fund research for Ewings Sarcoma and to help local families fighting Pediatric Cancer.
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It took a confirmation from St. Jude Children's Research Hospital to finally confirm that 6 year old Mia Falvey had Medulloblastoma after waiting for an official diagnosis for more than 30 days. Since the summer of 2022 Mia has been under treatment for this most common form of Pediatric Brain cancer and is waiting for an upcoming MRI which will tell the doctors what her next treatment protocol will look like.
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Bothered by pain in her shoulder blade since the fall of 2020 while she was a member of her high school volleyball team, 14 year old Eliy Simmer saw many doctors but did not get diagnosed with Ewings Sarcoma until May 12th of 2021. Eliy spent the rest of that year undergoing treatment for this form of pediatric cancer and in January of 2022 her treatment protocol successfully ended. Now a high school senior, Eliy is looking forward to the next steps in her life in which she has a variety of choices to look at. Along with these choices, Eliy will continue her Eliy's Sunflowers Non-Profit, which she started to help fellow teenage cancer patients have as much comfort as they can while trying to get through their own pediatric cancer battles.
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Maggie Schmidt was a 16 year old seemingly healthy teenager when she competed in a Tough Mudder race in the summer of 2016. 18 days after that, Maggie started experiencing symptoms that would lead to a diagnosis of Malignant Rhabdoid Tumors in October of that year. As she tried to overcome whatever setbacks came her way, Maggie had one bad break after another and passed away from this form of Pediatric Cancer on June 1st of 2017, just 6 weeks after her 17th birthday. Her mom Donna will talk about her beloved daughter and will also discuss Maggies Mission, a Non-Profit that her family started just 4 months after her passing and means so much to Donna.
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Parker Watson was diagnosed with Acute Lymphoblastic Leukemia when he was 4 1/2 years old and is now a Pediatric Cancer survivor. His parents Michelle and Mike found out about Team Impact and Parker was connected with the Harvard Men's Hockey Team, has been their Team Impact Representative since January 31st of 2023.
Noah Janfaza in his 3rd year of being the Student Manager for the Harvard Hockey team and is also the Liason between Team Impact and Harvard. Parker and Noah will both talk about the great experiences they have had since Parker became a full member of the Harvard team. -
Michelle Watson's 10 year old son Parker was diagnosed with Acute Lymphoblastic Leukemia when he was 4 1/2 years old in 2017. Now 10 years old, Parker was connected through Team Impact with the Harvard Men's Hockey team and he has been an official Team Member of the Crimson since January 31st of 2023. Michelle talks about how much Team Impact has meant to her family and how much joy that Parker has felt being with a group of college athletes that take their role of accepting Parker very seriously.
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Amanda Cruz has the difficult task in explaining all the things that went wrong during her son Zioniah's treatment for Lymphoma which started in late 2022 and lasted until his passing on September 19th of 2023. Amanda will talk about the myriad of mistakes that were made medically which led to Zioniah unnecessarily being in a great deal of pain during much of his treatment protocol. Amanda will also discuss the lack of support that she has received since Zioniah passed away as she is not even five months into her grieving period.
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After an original diagnosis of A Typical Pneumonia after a persistent cough sent Dominique Epthorp's son Ashton to see his doctor in the late summer of 2022, a recheck of his symptoms after Ashton had a shortage of breath after running, showed that his real diagnosis was T Cell Acute Lymphoblastic Leukemia. Ashton has been in his Maintenance program for 8 months and is looking forward to ringing the bell at his hospital, signifying No Evidence of Disease on September 9th.
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Nora Schmidt noticed that her daughter Maddie's right eye was crossing inward, one day after she had gone to her eye doctor for a simple eye appointment in which everything looked fine. This situation, which according to her Eye Doctor and a Pediatric Opthamologist could have been a common condition known as Strabismus, but instead turned out to be DIPG. Nora will talk about Maddie's journey which lasted for just over 10 months before her passing from this Pediatric Brain Cancer on December 31st of 2022.
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