Afleveringen
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Allison Breininger became a caregiver for her husband, Sean, during his battle with a rare genetic disease. Through her experiences and the founding of The Negative Space, she has become a voice for those who often go unheard, providing a platform to discuss, support, and empower caregivers.
Today, we talk about the unique challenges spousal caregivers face, the importance of community support, and how society can better acknowledge and assist these vital yet often invisible pillars of strength. We talk through some hard-hitting questions: How does one navigate the emotional landscape of caring for a spouse? What misconceptions about self-care and support do caregivers encounter? How can friends and family offer meaningful help?
Allison will share her insights, shedding light on the reality of caregiving, offering advice, and discussing how her organization, The Negative Space, is paving the way for a future where caregivers receive the recognition and support they deserve. Join us as Allison shares about the strength and love at the heart of caregiving. Thank you, Allison!
Learn more at www.thenegativespace.life
Listen to our episode HERE.
Don't miss Allison's podcast In Sickness- Listen HERE.
Check out more of Allison's story on KARE 11 HERE.
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
*This episode is brought to you by Gigi Betty co., a boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!
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What does it look like to bring generations together under one roof? Today, we are having a conversation around family, care, and compassion intertwining in the most unique way. We're exploring the concept of multi-generational living – a solution that's gaining traction in a world where the traditional boundaries of home and care are constantly evolving. It's not just about sharing a space; it's about reshaping the idea of what a home can be.
My guest today is Danniel Fuchs, Caregiver and Founder of Multi Gen Homes. Danniel's life took a turn when he sought suitable care for his father living with Alzheimer's. Unconvinced by other care options, he decided to create Multi-Gen Homes. More than an architectural concept, it blends hope, heart, and thoughtful design with profound care, functionality, and addressing the intricate dynamics of a family.
In today’s conversation, we talk about how Danniel's personal journey with his father's Alzheimer's diagnosis led to an innovative approach to care and family living. From the emotional and logistical challenges of transitioning to multi-generational living to maintaining resilience during loss, adversity, and uncertainty, we’ll explore it all. This discussion isn't just about constructing homes; it's about constructing lives, managing stress, and drawing lessons from a family’s experience.
Danniel, thank you for sharing about resilience, innovation, and the enduring strength of family bonds.
Learn more at www.multi-gen.com
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
*This episode is brought to you by Gigi Betty co., a boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!
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Zijn er afleveringen die ontbreken?
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On Saturday, April 6, 2024, caregivers gathered at ActivAge Sarasota and The Tribute at the Glen in Virgina for a supportive event, the Caregiving Forum. The forum offered a valuable opportunity for caregivers to connect, learn, and be encouraged.
We podcasted LIVE from this event and my guests share about the work they are doing to uplift caregivers. This is a great episode highlighting all of the important initiatives that are taking place- you don't want to miss it! See all of my guests listed below.
The highlight of the event was the keynote address by Dr. Rosemary Laird, who captivated the audience with her insights on self-care and the importance of prioritizing one's well-being, aptly titled "The Caregivers Toolkit: Self-Care and Taking Your Oxygen First." Dr. Laird's engaging presentation provided practical strategies and encouragement for caregivers, emphasizing that taking care of oneself is crucial to effectively caring for others.
In addition to the keynote, attendees enjoyed a free breakfast, which provided a warm and welcoming start to the morning. The event also featured various giveaways and access to a wealth of community resources, making it an invaluable experience for all who attended.
The Caregiving Forum was a wonderful opportunity for caregivers to come together, share experiences, and gain knowledge to support their caregiving journeys.
Special thanks to the event sponsors and the dedicated team at ActivAge Sarasota for organizing this impactful event. This podcast was made possible by these wonderful sponsors.
Be sure to stay tuned for future events and resources by visiting ActivAge.
This episode was made possible by:
Alzheimer's Association
willGather
Seni
ActivAge
Caregiving Worldwide
Tribute Senior Living
Comfort Keepers
The Medical Team
CarePatrol
Brookdale
Intercoastal Research Clinic
81 Oaks
TrustCo Bank
Right Fit Reality
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
*This episode is brought to you by Gigi Betty co., a boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!
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Have you stopped to think about what the later years of your life will look like? Today, we're diving into a conversation that touches each of us, directly or indirectly. Aging is a journey we all go on, but how often do we pause to really understand what it entails, not just for ourselves but also for those we love? This conversation aims to peel back the layers of aging, bringing not just insights but practical advice on navigating these years.
Joining us is Dr. Rosanne Leipzig, an internationally recognized geriatrician with over 40 years of experience in the field. Dr. Leipzig's journey in geriatrics is not just professional but deeply personal, inspired by her grandmother who showed her that no matter your age, life can be rich and full.
She holds the prestigious title of Gerald and May Ellen Ritter Professor and Vice Chair, Emerita, of the Brookdale Department of Geriatrics and Palliative Medicine at the Icahn School of Medicine at Mount Sinai. During her career as a doctor, she has received numerous awards. She has been repeatedly named as one of the Best Doctors in America (Woodward/White, Inc.), America’s Top Physicians (Consumers Research Council of America), a New York Times SuperDoc, and one of New York Magazine’s Top Doctors for Geriatric Medicine. She has appeared on The Today Show, CBS Evening News, CBS Sunday Morning, CNN, and AARP Webinars, and has been published in TIME magazine, the New York Times, the Wall Street Journal, Bottom Line Health, AARP The Magazine, Consumer Reports, and American Medical News, among others. Dr. Leipzig brings a treasure trove of knowledge, shaped by a career dedicated to improving how we approach aging.
Today, we'll explore her latest book, "Honest Aging: An Insider’s Guide to the Second Half of Life," published by The Johns Hopkins University Press. The book is a candid look at what aging really involves—physically, psychologically, functionally, and emotionally—and how to adapt to these changes. Through a mix of scientific insights, patient stories, and Dr. Leipzig’s own experiences, the book challenges common myths and provides invaluable tools for anyone navigating or caring for someone in their later years.
As Martha Stewart says about the book, "It is essential reading for anyone who is growing older or whose loved ones are growing older ― in other words, for all of us!"
Thank you, Dr. Rosanne, for encouraging us to approach aging with more awareness and preparedness. I loved my visit with you!
Learn more at www.rosannemd.com
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
*This episode is brought to you by Gigi Betty co., a boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!
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What is it like living with a condition that affects both your mind and body, yet remains relatively unknown to many? Today, we are shedding light on Lewy Body Dementia, a complex condition that challenges individuals and families in unique ways.
We're thrilled to have Julia Wood, a dedicated occupational therapist who specializes in neurodegenerative diseases, particularly Parkinson’s and related dementias. Julia's extensive experience, including her role as the director of Professional & Community Education at the Lewy Body Dementia Association, equips her with valuable knowledge and compassion for those affected by LBD. She’s here to share her expertise and provide guidance on navigating the complexities of LBD care.
In today’s conversation, we’ll explore everything from the symptoms and behavioral changes associated with LBD to practical strategies for communication, safety, and overall well-being. We talk all about the support systems available and look at how families can engage in advance care planning. Plus, Julia will share touching personal stories, shedding light on the resilience and challenges faced by individuals and families navigating LBD. Thank you Julia for sharing your knowledge with us!
Learn more at www.lbda.org
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
*This episode is brought to you by Gigi Betty co., a boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!
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Today, we're going to explore how we communicate and interact with older adults and how cultural diversity shapes their experiences and quality of life.
My guest today is Dr. Rose Joudi, who brings over 15 years of expertise as an Aging and Ethnic Diversity Consultant. She is currently the Research Lead on an ethnocultural elder abuse awareness project with Carya (Calgary, AB), she brings a rich academic and research background to her roles in esteemed organizations like the Canadian Network for the Prevention of Elder Abuse. Her commitment to enhancing the lives of older adults through educational strategies and compassionate care is crucial for our understanding of older adult care in diverse communities.
Throughout our conversation, we discussed how to communicate with older adults with dignity and respect, the importance of cultural competence among caregivers, and the challenges and opportunities presented by the cultural diversity of those in senior living communities. Dr. Judy shared insights into how we can honor the personal and cultural histories of our older adults and those who care for them. She offered valuable advice for caregivers and professionals working in this field.
Whether you're a caregiver, a professional in senior living, or someone interested in the well-being of older adults, this conversation is for you. Here is my interview with Dr. Rose Joudi.
Learn more https://drrosejoudi.com/
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
*This episode is brought to you by Gigi Betty co., a boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!
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How can we transform care into a holistic journey that not only addresses practical needs but also integrates well-being, resilience, and comprehensive support systems to empower caregivers and enhance the quality of aging life?
Today, my guest is Mary Jo Saavedra, a nationally recognized gerontologist, author, and Aging Life Care Professional. With over a decade of experience in the aging and healthcare industry and walking alongside her mom who was living with Alzheimer's, Mary Jo founded Fireside Group, becoming a guide for care management services for seniors and their families. Grounded in values of compassion, innovation, and connection, Mary Jo's approach has deeply resonated with clients, families, solo agers, business professionals, and community members, establishing her as a trusted advocate and thought leader in the field.
Throughout our conversation, we look at Mary Jo's holistic approach to caregiving, discussing why it's essential and how it can be effectively implemented. We'll navigate through the often complex legal and financial challenges caregivers face and share strategies to prioritize health and wellness for both caregivers and their loved ones. From leveraging community resources to fostering emotional and social connections, addressing our own views on aging and sustaining caregiver resilience, we're covering it all. Plus, we'll get an exclusive insight into Mary Jo's resources including her HomeLife Design program and The Six Pillars of Aging Wellbeing, along with her latest passion project, the Soul Shift Journey Tours, and learn about her vision for the future of gerontology.
Thank you, Mary Jo, for supporting us in our holistic caregiving and for bringing Radical Amazement to us!
Learn more at www.maryjosaav.com
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
*This episode is brought to you by Gigi Betty co., a boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!
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How does the rapid evolution of technology affects the lives of older adults? In a world where a new gadget appears every day, how do our seniors keep up, and why is it crucial that they do and have support?
My guest for this fascinating and vital topic is Vida Roozen, Chief Operating Officer at The Smarter Service. With over two decades of experience in consumer technology and a personal journey that has deepened her understanding of the tech challenges faced by aging adults, Vida brings a wealth of knowledge and a unique perspective to the discussion. The Smarter Service, renowned for its personalized tech concierge services for older adults and senior living communities, stands at the forefront of this field, championing the cause of tech literacy and digital equity for older adults.
In today's episode, we talk all about the world of technology literacy among older adults. We explore the growing importance of tech in ensuring independence, connectivity, and a thriving lifestyle for seniors. It's not just about having the latest devices; it's about how these tools are integrated into their lives and the support available to make this integration seamless and empowering. We'll talk about the challenges in bridging the digital divide, the role of caregivers, and the crucial need for a shift in our approach to tech education for older adults.
Thank you, Vida, for bringing intentionality, care, and love to all you do! I LOVE any opportunity I get to talk and learn from you, my friend!
Learn more at www.thesmarterservice.com
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
*This episode is brought to you by Gigi Betty co. A boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!
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Today, we're exploring a topic close to our hearts: the indispensable role of diversity, equity, and inclusion in healthcare, with a special focus on language access and community empowerment. We are looking at the heart of healthcare, not just through the lens of medicine, but through the vital perspective of connection and understanding.
My guest today is Mauricio Montes de Oca, a remarkable individual with over two decades of experience in the healthcare industry. He is not only a certified medical interpreter; but a visionary who has bridged communication gaps, ensuring equitable access to healthcare services for all. Through his work, he has touched lives, eased tensions, and fostered a deeper understanding across diverse cultures, all while advocating tirelessly for fair and inclusive healthcare practices.
In today's conversation, we talk about the complexities of care and caregiving informed by personal experience, the evolving role of medical interpreters, the humane necessity of language access, and the legal frameworks that support it. We'll explore how healthcare can be more inclusive for non-English speaking minorities, discuss the impact of language barriers on caregivers, patient safety, and share strategies for advocating diversity in healthcare settings. Thank you, Mauricio, for teaching us how we can all contribute to a more equitable and empathetic healthcare system.
Connect with Mauricio on LinkedIn HERE.
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
*This episode is brought to you by Gigi Betty co. A boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!
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How does the experience of aging and caregiving differ across cultures and continents? How does creativity play into the aging process, and what can we learn from the wisdom and experiences of our elders? Today we talk all about the world of caregiving, creative aging, and the transformative power of participatory arts and wellness programs.
Today my guest Ryan Reid, Founder of Bream. Ryan's journey began with experience in memory care as a teenager and life with her grandfather, which set the trajectory for her life's work. From the stages of off Broadway to the rural communities of Nepal, Ryan has dedicated her career to enriching the lives of older adults and their caregivers. Her brainchild, Bream, is a testament to her commitment, offering a holistic platform designed to alleviate loneliness and promote wellbeing among our senior community.
In our conversation today, we'll explore Ryan's personal and professional journey, from her early experiences with Alzheimer's research to her Fulbright studies in Nepal. We'll discuss the intricacies of caregiving across different cultures, talk about the philosophy of creative aging, and the role of arts and wellness in the lives of older adults. Ryan will also share insights into the mission and operations of Bream, how it tailors its offerings to meet the diverse needs of older adults, and her vision for the future of caregiving. Thank you, Ryan!
Learn more at https://www.hellobream.com/
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
*This episode is brought to you by Gigi Betty co. A boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!
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What if I told you that there's a way to 'live long, die short'? What inspires someone to undertake this mission, and how does it transform the aging process? My guest today is Charles De Vilmorin, co-founder of Linked Senior, an organization dedicated to changing the experience of aging. Linked Senior supports person-centered care through life enrichment and dementia engagement, using technology and non-drug therapy. Together, we talk about a variety of topics including dementia care, ageism, and the quest for purpose in our later years.
We talk about the concept of "live long, die short," We'll also touch upon the vital role of agency and support in senior living, with a focus on empowering families to advocate for their loved ones. We share our perspectives on ageism and how it's a challenge we must confront head-on and that purpose should be a basic human right, regardless of age.
With a personal connection to the challenges of dementia and a desire to make a positive impact, Charles has dedicated himself to changing the experience of aging and ensuring that every older adult in senior living finds purpose and joy. Thank you, Charles!
Learn more at www.linkedsenior.com
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
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What steps have you taken to ensure your healthcare wishes are honored, especially in times when you might not be able to express them? This question often pushed to the back of our minds, is crucial for our peace of mind and for those we love.
We're honored to have Rachel Schromen with us today, an accomplished estate planning and elder law attorney, and the owner of Schromen Law, LLC. Recognized as one of the Top 3 Best Rated Estate Law firms in St. Paul, Rachel's professional work and her commitment to the community, as a volunteer as an end-of-life doula gives her a unique perspective to today's conversation.
In our conversation today, we'll talk about what a healthcare directive really means and why it’s vital. We'll hear Rachel's personal story with her father, explore the balance between legalities and emotions, and understand the practical steps of creating a healthcare directive. Whether you're looking to prepare for the future or navigating these decisions with a loved one, this conversation promises to be interesting, practical, and, most importantly, deeply human.
Learn more at Schromen Law.
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
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The most heartwarming connections can lead to impactful movements. Today is all about serendipity, strength, and solidarity.
Joining me today is Maria Kent Beers, the co-founder of Remember Me and the Remember Me podcast, along with Rachel Martinez. These two incredible women's paths crossed in the most extraordinary way: Rachel, from Los Angeles, a trained marriage and family therapist, and Maria, living in Boston, found each other while caregiving for their parents, both diagnosed with frontotemporal dementia (FTD).
Today, our conversation focuses not only on the Remember Me community and podcast but also on how these remarkable women transformed their personal struggles into a beacon of hope and support for many from the early days of caregiving for their parents. From the launch of their podcast in the whirlwind of 2020 to their ongoing efforts to foster a community for FTD awareness, their story is as inspiring as it is enlightening.
We explore the road to FTD diagnosis, reminisce about the times before, and embrace the good that emerges from life's toughest challenges. These women are on a mission to share stories, educate about symptoms, and raise FTD awareness. This is a story of love, grief, and the relentless pursuit of a future without FTD. Now, I have a new friend in Maria.
Maria has a heart of gold, full of compassion, and I can't wait for all of you to hear her story, her insights, and to join their community, Remember Me.
Learn more at www.remembermeftd.com
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
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What magic happens behind the scenes at one of the world's largest events, particularly those that shine a light on our aging population and the tech revolutionizing their lives? You're in the right spot! We're excited to take you with us as we re-cap the innovation, technology, and stories that are impacting the future of care.
Carrie Aalberts and Nicole Will, are at the forefront of amplifying and exploring the people and companies that are transforming care through technology. Carrie, known to many as Dementia Darling, brings a decade of expertise in senior care and a passion for supporting dementia caregivers with resources and education. She's a beacon of hope for many navigating the dementia journey.
Nicole Will, founder of willGather, a platform dedicated to enriching the lives of older adults and those who care for them. Nicole's multifaceted approach to advocacy and innovation, rooted in her personal and professional experiences, offers a fresh perspective on the care economy.
Together, they share their experiences at the AgeTech Collaborative From AARP at CES, share stories behind the missions, and highlight the inspirations that drive impactful work in the agetech space. So, sit back, relax, and join us as we share, laugh, cry and give you a personal and insightful journey into the world of aging, innovation, and the human stories that connect us all.
Learn more at AARP & AARP AgeTech Collaborative.
To learn more about AgeTech Collaborative From AARP at CES and connect with many of the companies we mentioned, visit HERE
To connect with Carrie Aalberts visit HERE.
To connect with Nicole Will visit HERE.
To learn more about CES visit HERE.
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
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What does it mean to live a good life when the very essence of your memory and autonomy begins to fade? In a world where aging is inevitable, the challenges of neurodegenerative diseases like Alzheimer's pose profound questions about identity, care, and dignity.
Today, I'm honored to have a conversation with Dr. Jason Karlawish. He is the author of The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. As a professor of medicine, medical ethics, health policy, and neurology at the University of Pennsylvania's Perelman School of Medicine, Dr. Karlawish's work transcends the traditional boundaries of science and ethics, offering new perspectives on how we care for those living with Alzheimer's and other forms of dementia.
His journey has led him to pivotal roles at the Alzheimer's Disease Research Center and the Penn Memory Center, where he provides leadership in the Penn Program on Precision Medicine for the Brain (P3MB). He addresses the ethical challenges of aging brains and explores how diseases like Alzheimer's and Lewy body disease affect autonomy and self-determination through innovative projects. Dr. Karlawish is reshaping how we understand and support the Alzheimer's community.
His essays on ethics and aging have appeared in publications such as The Hill, The New York Times, The Philadelphia Inquirer, STAT News, The Washington Post, and more. In our conversation today, we discuss the evolution of Alzheimer's from a misunderstood condition to a widely recognized crisis, the vital role of caregivers, and the transformative impact of storytelling and advocacy in changing the narrative of dementia care.
Dr. Karlawish's insights not only highlight the complexities of Alzheimer's disease but also celebrate the human spirit's resilience. Join us as we discuss the journey of caregiving, the challenges and opportunities in research and policy, and how we can collectively foster a society that supports all aspects of aging with grace and dignity.
Thank you, Dr. Karlawish, for your compassionate care, for infusing humanity into your practice, and for engaging in this meaningful conversation with me. I am grateful for your dedication and advocacy. Thank you!
Learn more at www.jasonkarlawish.com
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
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How do we harness modern technology to truly touch lives, especially when addressing the silent epidemic of social isolation in our aging population?
Today, I am privileged to introduce to you my colleague and friend, Kyle Rand. He is the CEO of Rendever, a visionary who took personal inspiration from his grandparents' experiences and turned them into a revolutionary solution.
Drawing from his extensive research at Duke University on neural prosthetics and the intricate workings of the aging brain, Kyle founded Rendever, an award-winning virtual reality platform recognized by Forbes' 30 Under 30 and listed on Time's 100 Most Influential Companies.
This groundbreaking innovation isn’t just tech for tech's sake. It is a beacon of hope, reducing social isolation and bringing the vast expanse of the outside world to older adults, irrespective of their physical boundaries.
As we visit today, we talk about our time at CES and seeing AgeTech Collaborative from AARP and the momentum, recognition, and excitement we observed. We also uncover the heart and the science behind Rendever, the stories from senior living communities, family caregivers, and older adults, and the ripple effects that this platform is creating in reshaping the future of care. You don’t want to miss this conversation as we talk about the journey of our emotions and the intersection of technology, empathy, and human connection.
Kyle, I deeply admire your work, and I feel incredibly fortunate to count you as a friend. Thank you for weaving magic into our lives with Rendever. I'm thrilled about what the future holds and am celebrating this week's exciting new features and releases with you. Thank you!
Learn more at www.rendever.com
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
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Have you considered the profound impact that medication can have on our well-being as we age? Over one-third of older adults take five or more medications, and at least one of them may be completely unnecessary. As a result, approximately 2 million adverse drug events requiring hospitalization occur every year.
My guest today is Dr. Donna Bartlett, a board-certified geriatric pharmacist with over 17 years of clinical experience and 20 years in the retail pharmacy sector, she has made it her life's mission to tackle this issue. She is the author of Med Strong: Shed Your Meds for a Better, Healthier You - Aging Well with Less Prescribing. She is also a professor of pharmacy practice at the Massachusetts College of Pharmacy and Health Sciences University. In addition, she co-hosts a podcast called "The Med List," extending her expertise to a multitude of critical areas, including polypharmacy, medication access, and fall prevention.
Today, we'll talk about the essential reasons why deprescribing is vital for both older adults and their caregivers, the complex factors contributing to medication overprescription, the practical ways we can become advocates for appropriate medication management, and we'll discover the medication optimization plan. We'll learn how we can ask important questions and work effectively with our healthcare providers. This conversation will give us a glimpse into medication management and empower you to make informed healthcare decisions.
I've loved getting to know you, Donna, and I'm so grateful for your work and how you support others. Looking forward to cheering you on in all you do!
Learn more at www.donnabartlett.com
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
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Love and loss can lead us to become champions for a cause we never expected to face. My guest today is Mary Lou Falcone, an internationally renowned classical music publicist and strategist, who has spent five decades shaping the careers of prominent artists and institutions.
However, it's her personal story that brings an added layer of depth to her illustrious career. Faced with her partner's diagnosis of Lewy Body Dementia, Mary Lou found herself in the most challenging role of her life – that of a caregiver. Her journey through love, loss, and caregiving has led her to become an advocate for Lewy Body dementia awareness, turning her personal struggle into a beacon of hope and inspiration for others.
Throughout our conversation, Mary Lou will share insights from her book, 'I Didn’t See It Coming: Scenes of Love, Loss, and Lewy Body Dementia.' Mary Lou shares how her early life experiences prepared her for caregiving, the challenges she faced while caring for her late husband, Nicky Zann, a popular 1950s rock ’n’ roll musician who became a world-renowned cartoonist, illustrator, and painter, and why she chose to share their story with the world.
We talk about Nicky's life, the profound loss, and the awakening to advocacy. We talk about the complex and often misunderstood world of Lewy Body Dementia (LBD), a condition that affects millions yet remains in the shadows. We'll explore not just the medical aspects of LBD, but the deeply personal experiences that come with caring for someone living with this condition.
Mary Lou also shares about the importance of spreading awareness about LBD, the difficulties caregivers face, and the resources available for those battling this condition. This episode promises to be not just an exploration of LBD, but a testament to the power of love, resilience, and the human spirit in the face of adversity.
To help increase awareness about Lewy body dementia, an often misdiagnosed neurodegenerative disease affecting approximately 11 million people worldwide, the film FACING THE WIND follows the journeys in real time of three families dealing with LBD. The film is scheduled to be released in late 2024 or early 2025.
It was a delight to meet you and interview you, Mary Lou. Thank you for all you do to raise awareness and the many ways you advocate for those living with Lewy Body disease.
Learn more at www.maryloufalcone.com
*This episode is brought to you by Gigi Betty co. A boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
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At the 2023 Positive Approach to Care conference, I had the opportunity to interview Carolyn Barnes, with Scrunch Cloth.
Have you wondered how a simple change in our daily routine items can significantly enhance the quality of life for many? Today we explore an innovation that makes the seemingly mundane tasks of daily living safer, easier, and more inclusive. We're diving into a product that's redefining personal care for individuals across a spectrum of needs.
My guest today is Carolyn Barnes, a seasoned Certified Occupational Therapist Assistant with a passion for empowering individuals through effective, personalized care. Carolyn's expertise in adaptive equipment along her with father, inventor Paul Barnes, has led to the creation of a revolutionary product that stands out in simplicity and functionality: the Scrunch Cloth. Unlike any ordinary washcloth, Scrunch Cloth's design is a testament to the power of thoughtful innovation in enhancing daily life for those with physical, mental, or visual disabilities, as well as their caregivers.
Today, we explore the journey behind Scrunch Cloth, from its inception to becoming an indispensable tool in rehabilitation and maintenance therapies. We talk about its unique "No Grip, No Drop" design, how it assists individuals dealing with conditions like dementia, Alzheimer's, arthritis, and more, and the impact it has on fostering independence and dignity. Join us as we unfold the story of Scrunch Cloth, a simple yet transformative solution for daily living.
This episode is powered by Seni, which provides support and products for those caring for their loved ones.
Learn more at www.scrunchcloth.com
*This episode is brought to you by Gigi Betty co. A boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
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There is a critical aspect of Alzheimer's that often goes under-discussed: the financial implications. What should families know about the economic burden of this disease and how can they prepare for it?
Today's guests share all about Alzheimer's care, advocacy, and awareness, a journey both heart-wrenching and hopeful. We're peeling back the layers of this complex issue to uncover the impact, challenges, and strides being made in the fight against this condition.
Joining us are three wonderful guests, each bringing a unique perspective to our discussion. Jenna Pogorels, an expert with over a decade of experience in dementia program services, is the Associate Director of Community Services for the Alzheimer’s Association Minnesota-North Dakota chapter. Tara Ambrose, Vice President and Senior Manager of Client Risk Prevention at RBC Wealth Management brings her extensive experience in protecting vulnerable clients from financial exploitation. Wally Chapman, Senior Vice President at RBC Wealth Management, combines his professional expertise with a personal commitment to Alzheimer's advocacy, influenced deeply by his family's involvement in the cause.
In today's conversation, we'll navigate through various topics, including the personal connections of our guests with the Alzheimer's Association, the collaborative efforts between the Alzheimer's Association and RBC Wealth Management, and the prevalence and impact of Alzheimer's and dementia. We'll also explore the types of support offered by the association, early warning signs of the disease, the financial implications for older adults and caregivers, and practical tips for navigating this challenging journey. Plus, we'll discuss how you, our listeners, can get involved and make a difference.
Learn more at www.alz.org
This episode is sponsored by RBC Wealth Management. Thank you for being so committed to supporting older adults and their caregivers. It is so appreciated!
We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
Please follow for updates, rate & review!
For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
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