Afleveringen
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Besides seizures, people with developmental and epileptic encephalopathies experience a wide variety of symptoms, including sleep problems, vision problems, and behavioral issues. Dr. Scott Demarest discusses how neurologists may be able to address some of these, improving outcomes and quality of life.
The 2024 e-forum series from ILAE starts June 10th with a session on outcomes beyond seizures in the childhood onset epilepsies. The forum feature several experts, examining the topic in detail with live Q&A sessions and key learning points. Registrants also get access to relevant research papers and a self-paced virtual course to consolidate their learning. Visit ilae.org/congresses and click on the webinar tab to see more information and register.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Seizure action plans can help people with epilepsy manage their seizures and address emergencies. They often are aimed at a subset of people with epilepsy, particularly children. Dr. Lucretia Long discusses how seizure action plans can be used to engage and educate all people with epilepsy, as well as their families and the larger community.
Seizure action plan examples: English, Spanish, Simplified Chinese, Korean, Tagalog, Ukrainian, Vietnamese
Online fillable seizure action plan - English (PDF)
Plan de acción de incautación en línea - espanol (PDF)
List of published research on seizure action plansSupport the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Zijn er afleveringen die ontbreken?
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What is the Human Brain Project and how might it advance epilepsy research? Dr. Maryam Nouri speaks with Dr. Philippe Ryvlin about the project in terms of the Human Intracerebral EEG Platform and how compiling these unique data from around the world could lead to new breakthroughs and understanding of epilepsy.
The Human Intracerebral EEG Platform is an open-source platform designed for collecting, managing, analyzing, and sharing iEEG data at an international level. Its primary mission is to promote the development of large-scale iEEG research projects by facilitating international collaborations in the field.
Links:
Human Brain Project
Human Intracerebral EEG Platform
The Virtual BrainThe 2024 e-forum series from ILAE starts June 10th with a session on outcomes beyond seizures in the childhood onset epilepsies. The forum feature several experts, examining the topic in detail with live Q&A sessions and key learning points. Registrants also get access to relevant research papers and a self-paced virtual course to consolidate their learning. Visit ilae.org/congresses and click on the webinar tab to see more information and register.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Counseling of teens and young adults with epilepsy about reproductive issues is not happening often enough. Conversations about pregnancy are almost non existent. Sharp Waves spoke with authors of a recent paper that details these findings and discusses possible solutions.
Read the study: A retrospective textual analysis of sexual and reproductive health counseling for adolescent and young adult people with epilepsy of gestational capacity - Epilepsy & Behavior (epilepsybehavior.com)
Related articles by the same authors:Sexual and reproductive healthcare for adolescent and young adult women with epilepsy: A qualitative study of pediatric neurologists and epileptologists - Epilepsy & Behavior (epilepsybehavior.com) (2020)
A survey of child neurologists about reproductive healthcare for adolescent women with epilepsy - Epilepsy & Behavior (epilepsybehavior.com) (2021)
Sexual and reproductive health concerns of women with epilepsy beginning in adolescence and young adulthood - Epilepsy & Behavior (epilepsybehavior.com) (2021)
A Survey of Healthcare Providers About Reproductive Healthcare for Adolescent Women With Epilepsy - Journal of Pediatric and Adolescent Gynecology (jpagonline.org) (2022)
Pediatric Neurologists’ Perspectives on Sexual and Reproductive Health Care for Adolescent and Young Adult Women With Epilepsy and Intellectual Disability (2022)
Preferences and experiences of women with epilepsy regarding sexual and reproductive healthcare provision - Epilepsy & Behavior (epilepsybehavior.com) (2022)
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
People with epilepsy don't always know when they have had a seizure - and yet establishing seizure frequency is a key part of epilepsy management. When Dr. Mark Cook's father was diagnosed with epilepsy, Dr. Cook realized that a system to identify and predict seizures could improve care and change people's lives. Dr. Parthvi Ravat talks with him about entrepreneurship in epilepsy and ways to advance the field through innovation.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Is surgery for pediatric epilepsy "worth it"? What factors determine quality of life in families with a child who has epilepsy? Dr. Kette Valente talks with Dr. Mary Lou Smith, whose work has implications for clinical treatment decisions, as well as expectations for the impact of treatments in children with epilepsy.
The 2024 e-forum series from ILAE starts June 10th with a session on outcomes beyond seizures in the childhood onset epilepsies. The forum feature several experts, examining the topic in detail with live Q&A sessions and key learning points. Registrants also get access to relevant research papers and a self-paced virtual course to consolidate their learning. Visit ilae.org/congresses and click on the webinar tab to see more information and register.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
EEG training varies within countries as well as between them; in many countries, there is no training available. Dr. Bruna Nucera talks with Dr. Sandor Beniczky about the present and future of clinical neurophysiology training, including a recent review that calls for harmonizing this type of training across the globe.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Seizures are common in neonates, but there is substantial management variability. The Neonatal Task Force of the International League Against Epilepsy (ILAE) developed evidence-based recommendations about anti-seizure medication management in neonates in accordance with ILAE standards.
Dr. Emma Carter speaks with first author Dr. Ronit Pressler about the guidelines and recommendations, and how they were established.
Treatment of seizures in the neonate: Guidelines and consensus-based recommendations—Special report from the ILAE Task Force on Neonatal SeizuresThe 2024 e-forum series from ILAE starts June 10th with a session on outcomes beyond seizures in the childhood onset epilepsies. The forum feature several experts, examining the topic in detail with live Q&A sessions and key learning points. Registrants also get access to relevant research papers and a self-paced virtual course to consolidate their learning. Visit ilae.org/congresses and click on the webinar tab to see more information and register.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
In the 1990s, there was more funding for leprosy research in the United Kingdom than for epilepsy research. It was around that time that Dr. Edward (Ted) Reynolds, then president of ILAE, recognized that as a global problem, epilepsy required global solutions.
His idea blossomed into the Global Campaign Against Epilepsy and established a partnership among ILAE, the World Health Organization, and the International Bureau for Epilepsy that continues to this day through the Intersectoral Global Action Plan for Epilepsy and Other Neurological Disorders (IGAP).
Dr. Reynolds is interviewed by Dr. Edward Bertram, ILAE Secretary General.The 2024 e-forum series from ILAE starts June 10th with a session on outcomes beyond seizures in the childhood onset epilepsies. The forum feature several experts, examining the topic in detail with live Q&A sessions and key learning points. Registrants also get access to relevant research papers and a self-paced virtual course to consolidate their learning. Visit ilae.org/congresses and click on the webinar tab to see more information and register.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
For her podcast, Epilepsy Sparks Insights, Torie Robinson interviews epilepsy clinicians and scientists from around the world. Diagnosed with epilepsy at age 10, Torie is working to share knowledge with people with epilepsy, their families, and the public. Her episode topics range widely, from the biochemistry of epilepsy, to the importance of epilepsy nurses, to epilepsy as an autoimmune condition, to sexual issues.
Listen to Epilepsy Sparks Insights wherever you get your podcasts, including YouTube.
Finding Torie:
Podcast
Website
YouTube
Facebook
Instagram: @TorieRobinson10
X (formerly Twitter): @TorieRobinson10Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Dr. Luis Oliviera is parent to a son with an ultra-rare developmental and epileptic encephalopathy. He's also a researcher with the Michael J. Fox Foundation. He created an organization bringing parents and researchers together to better understand his son's disorder, which is part of a group of disorders caused by rare mutations in v-ATPase genes. Dr. Oliviera was interviewed by Dr. Alina Ivaniuk.
Visit the v-ATPase Alliance website
Contact the v-ATPase Alliance
What is v-ATPase?The 2024 e-forum series from ILAE starts June 10th with a session on outcomes beyond seizures in the childhood onset epilepsies. The forum feature several experts, examining the topic in detail with live Q&A sessions and key learning points. Registrants also get access to relevant research papers and a self-paced virtual course to consolidate their learning. Visit ilae.org/congresses and click on the webinar tab to see more information and register.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
The Idea of Epilepsy, published in 2023, covers the history of epilepsy from multiple perspectives over the past 160 years. It ends with a tantalizing question: Does epilepsy actually exist? Dr. Phillip Pearl interviews author Dr. Simon Shorvon about why and how he wrote the book and what it has to offer clinicians, researchers, and non-scientists alike.
More about The Idea of Epilepsy (from the publisher)The 2024 e-forum series from ILAE starts June 10th with a session on outcomes beyond seizures in the childhood onset epilepsies. The forum feature several experts, examining the topic in detail with live Q&A sessions and key learning points. Registrants also get access to relevant research papers and a self-paced virtual course to consolidate their learning. Visit ilae.org/congresses and click on the webinar tab to see more information and register.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Are people who have their first seizure during sleep at greater or lesser risk for future seizures, compared with people who have their first seizure when they're awake? Dr. Laurent Sheybani interviews Dr. Elaine Pang, author of a 2023 paper in Epilepsia that analyzed data from 1,312 adults visiting a first-seizure clinic.
This episode also discusses a 2015 evidence-based guideline on managing a first unprovoked seizure in adults. The guideline was developed by the American Academy of Neurology and the American Epilepsy Society.Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Dr. Raphael Mechoulam was an organic chemist at the Hebrew University of Jerusalem, and the father of cannabis research. His team was the first to elucidate the structure of cannabidiol, or CBD.
Dr. Mechoulam passed away in March 2023. This episode is a remastering of a conversation between Dr. Mechoulam and Dr. Meir Bialer, held in 2018 at the 13th European Congress on Epileptology. They spoke about CBD, THC, the endocannabinoid system, and the effects of cannabinoids in epilepsy and other conditions.Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Nearly one-third of people with autism also have epilepsy. Researchers aren't sure why.
For people on the spectrum, epilepsy can prompt unique challenges. Seizure symptoms can be misinterpreted as common autistic behaviors. Treatment may also be difficult due to the stress of a clinical setting, or the impact of anti-seizure medications on autism symptoms. Currently, some experts argue that there is a lack of research in assessing these care pathways.
To learn more about diagnosis and treatment for people with autism and epilepsy, Joy Mazur spoke to Dr. Colin Reilly and Dr. Stéphane Auvin.
Related studies/links:
Epilepsy in patients with autism: links, risks and treatment challenges Besag FMC, et al., 2017
Neurobehavioral Comorbidities in Children with Active Epilepsy: A Population-Based Study Reilly C, et al., 2014
Traditional and non-traditional treatments for autism spectrum disorder with seizures: an on-line survey Frye RE, et al., 2011
Epilepsy and autism - National Autistic SocietyThe 2024 e-forum series from ILAE starts June 10th with a session on outcomes beyond seizures in the childhood onset epilepsies. The forum feature several experts, examining the topic in detail with live Q&A sessions and key learning points. Registrants also get access to relevant research papers and a self-paced virtual course to consolidate their learning. Visit ilae.org/congresses and click on the webinar tab to see more information and register.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Dravet syndrome is a rare, severe epilepsy caused by changes in a gene called SCN1A. The changes cause the gene to stop functioning normally. But not everyone with this type of genetic change develops Dravet syndrome, and people with Dravet also have a wide range of clinical characteristics, which can't be fully explained by these changes. What else is going on? We spoke with Dr. Sanjay Sisodiya about a recent publication on genomic influences in Dravet syndrome.
This episode is based on a recent publication in the journal Brain:
Widespread genomic influences on phenotype in Dravet syndrome, a ‘monogenic’ condition
Dravet syndrome is a rare severe epilepsy typically caused by loss-of-function SCN1A variants. Despite a recognizable core phenotype, Dravet syndrome also has phenotypic heterogeneity, which cannot be explained by clinical factors or SCN1A variants.
This relatively small study (34 adults) found that additional genomic variation contributes to the diversity of phenotypes found in Dravet syndromes. The authors suggest that the SCN1A variant may need to act against a "broadly compromised genomic background" to generate the full Dravet syndrome phenotype, and that genomic resilience may contribute to a reduction in mortality risk among adults with Dravet syndrome.The 2024 e-forum series from ILAE starts June 10th with a session on outcomes beyond seizures in the childhood onset epilepsies. The forum feature several experts, examining the topic in detail with live Q&A sessions and key learning points. Registrants also get access to relevant research papers and a self-paced virtual course to consolidate their learning. Visit ilae.org/congresses and click on the webinar tab to see more information and register.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Sara Staggs was a civil rights attorney and pregnant with her second child when her doctors told her to stop practicing law: her seizures had become too frequent. Staggs' 2023 novel, Uncontrollable, fictionalizes her experiences with epilepsy and provides insight into how epilepsy affects families, careers, and relationships.
Staggs talked with Dr. Alina Ivaniuk about her epilepsy history, her surgical evaluation experiences, and how she pivoted from attorney to author.The 2024 e-forum series from ILAE starts June 10th with a session on outcomes beyond seizures in the childhood onset epilepsies. The forum feature several experts, examining the topic in detail with live Q&A sessions and key learning points. Registrants also get access to relevant research papers and a self-paced virtual course to consolidate their learning. Visit ilae.org/congresses and click on the webinar tab to see more information and register.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
We'll frame today's talk around a paper recently published in the European Journal of Neurology: "The incidence and risk factors associated with seizures in cerebral amyloid angiopathy." With us today is the first author of the article, Dr. Brin Freund.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Diet treatments are often used with the aim of reducing seizure frequency and severity — but they may have other benefits as well.
Findings from a recent study conducted in Norway suggest that dietary treatments may normalize emotional symptoms and that health-related quality of life (HRQOL) might be an indicator of successful diet treatment in the future. Joy Mazur spoke with Dr. Magnhild Kverneland about the study's results and its implications.
Health-related quality of life in adults with drug-resistant focal epilepsy treated with modified Atkins diet in a randomized clinical trial was published in Epilepsia in March 2023.
Related studies:
Anxiety and depressive disorders in people with epilepsy: A meta-analysis Scott A, et al., 2017
Modified ketogenic diets in adults with refractory epilepsy: Efficacious improvements in seizure frequency, seizure severity, and quality of life Roehl K, et al., 2019Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. -
Some published data suggest that besides their effect on cholesterol, statins also may play a neuroprotective role in some neurological disorders, including epilepsy. Dr. Bruna Nucera interviews Dr. Anthony Marson and Dr. Emilio Russo about whether and how to test statins as potential anti-epileptogenic drugs.
Support the Show.
Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.
Let us know how we're doing: [email protected].
The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn. - Laat meer zien