Afleveringen
-
In this episode of the Childhood Cancer Perspective, CurtisVallier shares his journey as a parent of a child diagnosed with brain cancer.He discusses the importance of community support, the mission of the RallyFoundation, and the need for increased funding and awareness for childhoodcancer research. Dean Crowe, the CEO of the Rally Foundation, shares personalstories and insights into the challenges faced by families dealing withchildhood cancer, emphasizing the importance of advocacy and remembrance. Inthis conversation, Curtis Vallier and Dean Crowe discuss the critical role ofadvocacy in childhood cancer, emphasizing the importance of buildingrelationships with staffers, understanding the challenges of diagnosis, and thenecessity of parental instincts in navigating the healthcare system. Theyhighlight the significance of social workers and the need for a unified voicein advocating for childhood cancer research and funding. In this conversation,Dean Crowe and Curtis Vallier discuss the emotional journey of dealing withchildhood cancer, the impact of treatments, and the importance of advocacy andcommunity support. They emphasize the need for unified voices in raisingawareness and funding for research, while also providing advice for familiesnew to the community.
-
In this conversation, Curtis Vallier and Laura discuss thechallenges and realities of navigating childhood cancer. Laura shares herpersonal journey with her daughter Cecilia's leukemia diagnosis and emphasizesthe importance of advocacy, support, and self-care for parents. They explorethe emotional toll on families, the significance of sibling involvement, andthe need for open communication about the illness. The discussion highlightsthe necessity of creating a new normal amidst the chaos and the power ofpositivity in coping with the journey. Laura's upcoming book, 'The CancerParents Handbook,' aims to provide guidance and resources for families facingsimilar challenges.
Takeaways
The podcast serves as a platform for unfiltered discussionsabout pediatric cancer.
Parents often lack guidance and support when navigatingchildhood cancer.
Advocacy is crucial in medical settings to ensure children'sneeds are met.
Survivorship discussions should begin early in treatment.
Faith and community support play significant roles in copingwith cancer.
Awareness of childhood cancer is essential as diagnosescontinue to rise.
Self-care for caregivers is vital to avoid burnout.
Siblings of cancer patients need support and involvement inthe journey.
Creating a new normal is important for families duringtreatment.
Positivity and open communication can help families copewith the challenges of cancer.
-
Zijn er afleveringen die ontbreken?
-
In this episode, Curtis Vallier speaks with Avah Sunflower, a13-year-old cancer survivor who shares her journey with Wilms tumor. Theydiscuss the importance of community, sibling support, and advocacy in thepediatric cancer world. Ava emphasizes the role of CureFest in connectingfamilies and the significance of child life specialists in making hospitalexperiences less daunting. The conversation also highlights Ava's efforts inraising awareness through blood drives and care packages for other children battlingcancer, as well as her aspirations for future advocacy work.
-
In this heartfelt conversation, Bianca shares the emotionaljourney of her son Aiden, who was diagnosed with hepatoblastoma at just ninemonths old. The discussion covers the challenges of navigating the medicalsystem, the impact of cancer on family dynamics, and the resilience required toface ongoing treatment and setbacks. Bianca reflects on the emotional toll ofher son's illness, the importance of community support, and the hope thatcontinues to drive their journey. In this conversation, Bianca shares herfamily's journey through her son Aiden's battle with pediatric cancer,detailing the emotional highs and lows of treatment, the importance ofcelebrating small victories, and the challenges of navigating the healthcaresystem. She emphasizes the need for awareness and advocacy in the childhoodcancer community, reflecting on the isolation many families feel and thecritical role of support networks. The discussion highlights the resilience offamilies facing such challenges and the importance of sharing their stories tofoster understanding and support. In this conversation, Curtis Vallier andBianca discuss the challenges and realities of navigating childhood cancer,emphasizing the importance of awareness, support systems, and the emotionaltoll on families. They share personal experiences, advocate for betterhealthcare practices, and highlight the need for ongoing support even aftertreatment ends. The conversation underscores the resilience of children facingcancer and the vital role of community in providing hope and resources.
-
In this heartfelt conversation, Bianca shares the emotionaljourney of her son Aiden, who was diagnosed with hepatoblastoma at just ninemonths old. The discussion covers the challenges of navigating the medicalsystem, the impact of cancer on family dynamics, and the resilience required toface ongoing treatment and setbacks. Bianca reflects on the emotional toll ofher son's illness, the importance of community support, and the hope thatcontinues to drive their journey. In this conversation, Bianca shares herfamily's journey through her son Aiden's battle with pediatric cancer,detailing the emotional highs and lows of treatment, the importance ofcelebrating small victories, and the challenges of navigating the healthcaresystem. She emphasizes the need for awareness and advocacy in the childhoodcancer community, reflecting on the isolation many families feel and thecritical role of support networks. The discussion highlights the resilience offamilies facing such challenges and the importance of sharing their stories tofoster understanding and support. In this conversation, Curtis Vallier andBianca discuss the challenges and realities of navigating childhood cancer,emphasizing the importance of awareness, support systems, and the emotionaltoll on families. They share personal experiences, advocate for betterhealthcare practices, and highlight the need for ongoing support even aftertreatment ends. The conversation underscores the resilience of children facingcancer and the vital role of community in providing hope and resources.
-
In this episode of the Childhood Cancer Perspective, CurtisVallier and Brian Burkhardt discuss the journey of the Oliver Patch Project,which was inspired by Brian's son Oliver's battle with leukemia. They explorethe importance of community support, the various programs offered by the OliverPatch Project, and the challenges faced in raising awareness and funding forpediatric cancer initiatives. The conversation emphasizes the need for love andsupport in the treatment process and highlights the impact of small gestures onthe lives of children battling cancer. In this conversation, Brian Burkhardtand Curtis Vallier discuss the importance of community and collaboration in thenonprofit sector, particularly in the context of pediatric cancer support. Theyshare personal experiences and challenges faced in funding and outreach,emphasizing the need for love, support, and advocacy. The discussion highlightsthe impact of personal connections, the role of politics in raising awareness,and the necessity of empowering families affected by cancer. They also stressthe significance of partnerships and community involvement in making adifference
-
In this episode, Curtis Vallier speaks with Lulu, the motherof Raymond, an eight-year-old boy battling leukemia. Lulu shares the harrowingjourney of Raymond's diagnosis, the misdiagnosis he faced, and the emotionaltoll it has taken on their family. They discuss the importance of parentaladvocacy, the misconceptions surrounding childhood cancer, and the need forsupport systems. Raymond's desire to help other children facing medicalchallenges is highlighted, along with the challenges of starting a foundationto assist others. The conversation emphasizes the ongoing fight againstchildhood cancer and the resilience of families navigating this difficultjourney.
-
In this episode, Curtis Vallier speaks with Lulu, the motherof Raymond, an eight-year-old boy battling leukemia. Lulu shares the harrowingjourney of Raymond's diagnosis, the misdiagnosis he faced, and the emotionaltoll it has taken on their family. They discuss the importance of parentaladvocacy, the misconceptions surrounding childhood cancer, and the need forsupport systems. Raymond's desire to help other children facing medicalchallenges is highlighted, along with the challenges of starting a foundationto assist others. The conversation emphasizes the ongoing fight againstchildhood cancer and the resilience of families navigating this difficultjourney.
-
In this conversation, Curtis Vallier and Dr. AshleighKussman discuss the multifaceted impact of pediatric cancer, drawing frompersonal experiences as a survivor and a parent. They explore the emotional andpsychological aspects of healing, the challenges faced during medical training,and the importance of empathy in healthcare. The discussion emphasizes the needfor increased awareness, funding, and research for pediatric cancer,highlighting the long-term effects on survivors and the families affected. Theyadvocate for a more compassionate approach in medical care and the necessity ofunderstanding the emotional struggles of patients and their families. Thisconversation delves into the profound challenges faced by families dealing withpediatric cancer, emphasizing the critical importance of early detection, theharsh realities of treatment side effects, and the urgent need for increasedresearch funding. Both speakers share personal experiences that highlight theemotional and physical toll of cancer on children and their families, whilealso advocating for greater awareness and systemic change in pediatriconcology. The discussion culminates in a hopeful vision for the future, whereimproved treatments and a better understanding of long-term effects can lead toenhanced quality of life for survivors.
-
In this conversation, Curtis Vallier and Dr. AshleighKussman discuss the multifaceted impact of pediatric cancer, drawing frompersonal experiences as a survivor and a parent. They explore the emotional andpsychological aspects of healing, the challenges faced during medical training,and the importance of empathy in healthcare. The discussion emphasizes the needfor increased awareness, funding, and research for pediatric cancer,highlighting the long-term effects on survivors and the families affected. Theyadvocate for a more compassionate approach in medical care and the necessity ofunderstanding the emotional struggles of patients and their families. Thisconversation delves into the profound challenges faced by families dealing withpediatric cancer, emphasizing the critical importance of early detection, theharsh realities of treatment side effects, and the urgent need for increasedresearch funding. Both speakers share personal experiences that highlight theemotional and physical toll of cancer on children and their families, whilealso advocating for greater awareness and systemic change in pediatriconcology. The discussion culminates in a hopeful vision for the future, whereimproved treatments and a better understanding of long-term effects can lead toenhanced quality of life for survivors.
-
In this episode, Curtis Vallier and Alex share the harrowingjourney of Alex's son, Willie, who has battled stage four hepatoblastoma. Theydiscuss the emotional and psychological toll of a cancer diagnosis on families,the challenges of navigating hospital stays, and the importance of supportsystems. Alex expresses her desire to become a nurse to help other familiesfacing similar struggles, while both Curtis and Alex emphasize the need forgreater awareness and recognition of childhood cancer. They confront themisconceptions surrounding pediatric cancer and advocate for better researchand protocols to improve outcomes for affected children. In this conversation,Alex and Curtis discuss their experiences with pediatric cancer, focusing onadvocacy, the importance of early detection, and the emotional toll onfamilies. They share personal stories about navigating diagnoses, the strain onrelationships, and the significance of sibling bonds during such challengingtimes. The dialogue emphasizes the need for awareness, support systems, and theimportance of asking for help in difficult situations.
-
In this episode, Curtis Vallier and Alex share the harrowingjourney of Alex's son, Willie, who has battled stage four hepatoblastoma. Theydiscuss the emotional and psychological toll of a cancer diagnosis on families,the challenges of navigating hospital stays, and the importance of supportsystems. Alex expresses her desire to become a nurse to help other familiesfacing similar struggles, while both Curtis and Alex emphasize the need forgreater awareness and recognition of childhood cancer. They confront themisconceptions surrounding pediatric cancer and advocate for better researchand protocols to improve outcomes for affected children. In this conversation,Alex and Curtis discuss their experiences with pediatric cancer, focusing onadvocacy, the importance of early detection, and the emotional toll onfamilies. They share personal stories about navigating diagnoses, the strain onrelationships, and the significance of sibling bonds during such challengingtimes. The dialogue emphasizes the need for awareness, support systems, and theimportance of asking for help in difficult situations.
-
In this conversation, Curtis Vallier interviews Martineabout her son Jackson's battle with Ewing Sarcoma, detailing his recent healthscares, the challenges of pediatric cancer, and the establishment of the JCStrong Fund aimed at supporting research for Ewing's relapse trials. Theydiscuss the importance of advocacy, the emotional journey of families dealingwith cancer, and the need for more research and options for treatment. Martineshares insights on how to navigate the complexities of cancer care whilemaintaining a sense of normalcy for children and families.
-
In this conversation, Curtis Vallier interviews Martineabout her son Jackson's battle with Ewing Sarcoma, detailing his recent healthscares, the challenges of pediatric cancer, and the establishment of the JCStrong Fund aimed at supporting research for Ewing's relapse trials. Theydiscuss the importance of advocacy, the emotional journey of families dealingwith cancer, and the need for more research and options for treatment. Martineshares insights on how to navigate the complexities of cancer care whilemaintaining a sense of normalcy for children and families.
-
Elizabeth shares the story of her son Caleb's diagnosis andtreatment for neuroblastoma. She discusses the misdiagnosis and delays ingetting the correct diagnosis, as well as the challenges they faced duringtreatment. Elizabeth also talks about the lack of support and understandingfrom others, both during and after treatment. Curtis emphasizes the importanceof listening to parents and giving them credit for their knowledge of their ownchildren. They also discuss the misconceptions around ringing the bell and theongoing fear and uncertainty that comes with pediatric cancer. The conversationtouches on the need for better treatment options and support for families. Theconversation highlights the importance of bedside manner and the need forhealthcare professionals to take their time and be more careful when treatingpediatric cancer patients. The parents express their frustration with nursesand doctors who have a bad attitude or rush through procedures, causingunnecessary trauma to the children. They also discuss the lack of support inschools for children with cancer and the need for more awareness andsolidarity. The conversation ends with a focus on the resilience andpersonality of Caleb, the youngest child, and the importance of finding momentsof joy and adventure amidst the challenges of pediatric cancer.
-
Elizabeth shares the story of her son Caleb's diagnosis andtreatment for neuroblastoma. She discusses the misdiagnosis and delays ingetting the correct diagnosis, as well as the challenges they faced duringtreatment. Elizabeth also talks about the lack of support and understandingfrom others, both during and after treatment. Curtis emphasizes the importanceof listening to parents and giving them credit for their knowledge of their ownchildren. They also discuss the misconceptions around ringing the bell and theongoing fear and uncertainty that comes with pediatric cancer. The conversationtouches on the need for better treatment options and support for families. Theconversation highlights the importance of bedside manner and the need forhealthcare professionals to take their time and be more careful when treatingpediatric cancer patients. The parents express their frustration with nursesand doctors who have a bad attitude or rush through procedures, causingunnecessary trauma to the children. They also discuss the lack of support inschools for children with cancer and the need for more awareness andsolidarity. The conversation ends with a focus on the resilience andpersonality of Caleb, the youngest child, and the importance of finding momentsof joy and adventure amidst the challenges of pediatric cancer.
-
Make-A-Wish Wisconsin grants wishes to children battlingcritical illnesses, dispelling the myth that it is only for terminally illchildren. The impact of a wish goes beyond the immediate joy and happiness itbrings. It can have long-lasting effects on a child's mental, emotional, andphysical well-being. Wishes range from trips to Disney World or Hawaii tounique experiences like finding Bigfoot or singing with a symphony. Make-A-Wishrelies on the support of the community, including medical professionals,volunteers, and donors, to grant wishes. Their goal is to grant the wish ofevery eligible child in Wisconsin. Make-A-Wish is a global wish-grantingorganization that aims to bring joy and hope to children with critical illnesses.They have 58 chapters in the United States and 43 affiliates in 50 countriesworldwide. Make-A-Wish grants over 400 wishes a year in Wisconsin alone andover 15,000 wishes a year in the United States. The organization covers allexpenses related to the wish, including travel, accommodations, meals, andspending money. They also prioritize including the entire immediate family inthe wish experience. Celebrity wishes are popular, with John Cena being themost requested celebrity to meet. Celebrities are generally receptive togranting wishes and go above and beyond to make the experience special for thewish children. Make-A-Wish relies on donations, volunteers, and spreadingawareness to continue granting wishes and making a difference in the lives of childrenand their families.
-
In this conversation, Curtis Vallier interviews Elena Bliss,the mother of a child who battled cancer. They discuss the challenges andexperiences of navigating the childhood cancer community, includingmisdiagnosis, treatment decisions, and the lack of options and informationprovided by doctors. They also touch on the financial burden of cancertreatment and the need for more research and attention on rare subtypes ofpediatric cancer. The conversation highlights the strength and resilience ofchildren facing cancer and the importance of advocacy and support for familiesin this journey. In this part of the conversation, Curtis Vallier discusses theimpact of his daughter's illness on their family dynamics and the different wayshis daughters grieve. He emphasizes the importance of not missing out onopportunities and cherishing time with loved ones. Curtis also shares theheartbreaking moments leading up to his daughter's passing and the difficultdecisions they had to make. He highlights the need for continued support aftera child's passing and the challenges of navigating the medical system. Curtisexpresses his frustration with the pharmaceutical industry and the lack ofresearch and options for pediatric cancer. He emphasizes the importance ofinvesting in the future and supporting young individuals who want to make adifference in the field of pediatric oncology. The conversation delves into thechallenges and frustrations faced by families dealing with pediatric cancer. Thespeaker shares personal experiences and highlights the lack of options andresources available for treatment. The importance of communication and supportwithin the family unit is emphasized, as well as the need for advocacy andawareness to drive research and funding. The conversation concludes with a callto action for listeners to support organizations like Brittany's Believers andBattlecorn Care Packages.
-
In this conversation, Curtis Vallier interviews Elena Bliss,the mother of a child who battled cancer. They discuss the challenges andexperiences of navigating the childhood cancer community, includingmisdiagnosis, treatment decisions, and the lack of options and informationprovided by doctors. They also touch on the financial burden of cancertreatment and the need for more research and attention on rare subtypes ofpediatric cancer. The conversation highlights the strength and resilience ofchildren facing cancer and the importance of advocacy and support for familiesin this journey. In this part of the conversation, Curtis Vallier discusses theimpact of his daughter's illness on their family dynamics and the different wayshis daughters grieve. He emphasizes the importance of not missing out onopportunities and cherishing time with loved ones. Curtis also shares theheartbreaking moments leading up to his daughter's passing and the difficultdecisions they had to make. He highlights the need for continued support aftera child's passing and the challenges of navigating the medical system. Curtisexpresses his frustration with the pharmaceutical industry and the lack ofresearch and options for pediatric cancer. He emphasizes the importance ofinvesting in the future and supporting young individuals who want to make adifference in the field of pediatric oncology. The conversation delves into thechallenges and frustrations faced by families dealing with pediatric cancer. Thespeaker shares personal experiences and highlights the lack of options andresources available for treatment. The importance of communication and supportwithin the family unit is emphasized, as well as the need for advocacy andawareness to drive research and funding. The conversation concludes with a callto action for listeners to support organizations like Brittany's Believers andBattlecorn Care Packages.
-
In this conversation, Curtis Vallier speaks with HoneyAhmed, a childhood cancer survivor, about her experience with acute lymphocyticleukemia. They discuss the challenges of misdiagnosis, the physical andemotional toll of treatment, and the long-term effects of cancer. They alsohighlight the importance of support from healthcare professionals and theimpact of childhood cancer on siblings. The conversation emphasizes the needfor more awareness and funding for childhood cancer research. The conversationdelves into the funding disparities between pediatric and adult cancerresearch. It highlights the fact that a majority of funding for pediatriccancer research comes from small organizations and private donors, while adultcancer research receives more government funding. The conversation emphasizesthe need for equal funding and support for pediatric cancer research, aschildren handle treatments better on the attitude side but face physicalchallenges. The importance of pediatric oncology nursing is also discussed,with the guest expressing her desire to work in this field. The conversationconcludes with advice to live life to the fullest, be thankful for support, andnot listen to unsolicited advice or comparisons.
- Laat meer zien
