Afleveringen
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On this episode we talk to Haseel Bhatt who is a specialist Neuro Physiotherapist specialising not only in FND but in other movement Disorders. Join us as we talk FND but also Neurophysiotherapy. Thankyou so very much for talk to us Haseel grateful and very much appreciated we hope you can join us again. Thankyou for all that you do .
This Episodes notes:
Haseel Bhatt is the founder of Neurology Rehab Clinic
What he offers for treatment with FND click here: and also he has a blog click here to view
He has a research paper that has research paper that has been published click here to view
For Haseel Bhatts instagram follow him @functionalneurologicaldisorder or click here to go to his page
His FND Physiotherapy Course for health practitioners will be held on 24th-25th May 2025 in Toronto Canada. For more information or to register go to the Neurology Rehab website or click here
Music used in this Podcast is from Soundstripe : licensed for use
Lucky by Lunareh
Just like me by Thruline
Just to breath by Novva
Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.
FND AUSTRALIAN SUPPORT SERVICES :https://fndaus.org.au/fnd-symptoms/
A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
IF you would like to support FND Australia Services and would like to have a look at some merchandise click here
FND ACTION : https://www.fndaction.org.uk
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
FND GUIDE. :https://neurosymptoms.org/en/
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
FND DIMENSIONS: http://fnddimensions.org/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
The FND Podcast song of the month:
Rise above by Alberto Giurioli and Geoff Lawson
Click here to listen
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
The published research Paper on FND by Haseel Bhatt
FND is not fake or Malingering
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Happy FND Awareness day. To celebrate, we are honored to be speaking to one of the biggest FND advocates in Australia. Dr. Katherine Gill has returned to speak about FND and FND Awareness. Thankyou for talking on the FND Podcast it’s always amazing to hear your perspective and insights about FND as well as what services FND Australia support services does.
This Episodes notes:
If you would like to know more or access the FND Australian Support Services App:
Click here to to find out more about the APP:Advocacy:
What is patient advocacy?
At the present moment QLD and NSW are the only states that have these programs. Other states in Australia you would need to speak with a Patient Advocate in that hospital.
In Queensland there is Ryans Rule
In NSW there is Reach which is proposed to be renamed recently Joes Rule
Music used in this Podcast is from Soundstripe : licensed for use
Lightspeed by Pala
Leap of Faith by Pala
Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.
FND AUSTRALIAN SUPPORT SERVICES :https://fndaus.org.au/fnd-symptoms/
A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND ACTION : https://www.fndaction.org.uk
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
FND GUIDE. :https://neurosymptoms.org/en/
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
FND DIMENSIONS: http://fnddimensions.org/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
The FND Podcast song of the month:
Never be alone by Shawn Mendes
https://youtu.be/N7VCLNBNJQs?si=0SEAetWzyoNAqylV
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
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Zijn er afleveringen die ontbreken?
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The FND podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.
FND AUSTRALIAN SUPPORT SERVICES :https://fndaus.org.au/fnd-symptoms/
A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND ACTION : https://www.fndaction.org.uk
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
FND GUIDE. :https://neurosymptoms.org/en/
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
FND DIMENSIONS: http://fnddimensions.org/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
The FND Podcast song of the month:
Never be alone by Shawn Mendes
https://youtu.be/N7VCLNBNJQs?si=0SEAetWzyoNAqylV
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
MUSIC from Sounstripe: licensed and approved to use on this podcast.
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Warning: this episode contains sensitive topics which can be triggering to some listeners. Please be advised.
On this episode of the JJsegment Jess talks about how life has been this past year and about Mental Health. We are grateful that she has shared how she has been. Thankyou Jess for sharing. In the meantime she is an incredible author and you can support Jess also by reading her wonderful book! Follow Jess on Instagram @functionallyjessWIDOWS FLAME: Jess is an author and she has received glowing reviews on her book. She is an amazing writer and you can purchase and read her book at most book stores.
https://www.shawlinepublishing.com.au/our-titles/display/252-widowand%2339%3Bs-flame
Goodreads:
https://www.goodreads.com/en/book/show/63062237
Booktopia:
https://www.booktopia.com.au/widow-s-flame-jess-mcfarlane/ebook/9781922850126.html
Foreign Accent syndrome
https://pubmed.ncbi.nlm.nih.gov/27234850/#:~:text=Foreign%20accent%20syndrome%20(FAS)%20is,a%20video%20of%20her%20speech.
https://youtu.be/x18AQT6yKGg
NDIS:(available in Australia) https://www.ndis.gov.au/understanding/what-ndis
The NDIS Provides funding to eligible people with disability to gain more time with family and friends, greater independence, access to new skills, jobs , or volunteering in their community and an improved quality of life. The NDIS connects anyone with disability to services in their community.
Is it still relevant the BMI index: it's questionable
https://www.medicalnewstoday.com/articles/265215#Waist-to-height-ratio-better-than-BMI
Food pyramid relevant still?
https://www.houstonmethodist.org/blog/articles/2019/dec/is-the-food-pyramid-still-relevant/
Introducing the myplate:
https://www.uabmedicine.org/news/myplate-healthy-eating-chart-replaced-the-food-pyramid/#:~:text=In%202011%2C%20the%20U.S.%20Department,start%2C%20MyPlate%20is%20for%20you.
A previous episode of medical cannibis:
https://thefndpodcast.simplecast.com/episodes/conversations-with-chrissie-lets-talk-medical-cannibis
The game:Marrying Mr Darcy
https://boardgamegeek.com/boardgame/145308/marrying-mr-darcy
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
Also anything covid related and fnd here on neuro symptoms :
https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/
A recent article written June this year what do you think ? From MJA
https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://www.tiktok.com/@drbuttgastro/video/7020472244954549510
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
by none other than our Jake!
https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
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Following on the episode "Hello Mr. Tom Plender" we talked about the Inform the Doctor campaign that FND ACTION has. With Toms permission we were able to record his explanation he had on this campaign and encourage you wherever you are in the world to utilise this campaign/information. It is a worldwide campaign and it's to help spread the awareness of the advancements of FND. To find out more head to FND ACTION website: www.fndaction.org.uk , follow Tom on his instagram : @tplender and have a look at his website at www.tomplender.com
FND ACTION UK : FND AWARENESS DAY
https://www.fndaction.org.uk/fnd-awareness-day-uk/
Click on the link to participate
Including two paediatric consultants in FND: if you are a parent and would like to participate especially you're more than welcome to join and ask questions.
Inform the doctor:
https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/
INTERVIEWS AND ARTICLES:
Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqkoGB News https://youtu.be/8EMspXvKWd8
I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655
FND : Tiktok
https://www.tiktok.com/tag/fnd?lang=en
FNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor
Music:
Winter at east darby by TAYME
Europian Sunrise by Anthony Catacoli
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
Also anything covid related and fnd here on neuro symptoms :
https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/
A recent article written June this year what do you think ? From MJA
https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://www.tiktok.com/@drbuttgastro/video/7020472244954549510
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
FND TOGETHER:
https://fndtogether.com/en
itsmeitsmeitsfnd
by none other than our Jake!
https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
Follow Jake on his podcast! Check it out!!!!!
Itsmeitsmeitsfnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L
Check out Jake on his youtube channel: and as they say if you love what he does : like follow and subscribe! @punkchef41
https://youtube.com/shorts/JVoLO3Vtt8s?feature=share
Foreign Accent Syndrome:
https://pubmed.ncbi.nlm.nih.gov/30826739/
Kelly Clarkson show : on youtube @thekellyclarksonshow
https://www.youtube.com/watch?v=X20Spi7EOQY
Kelly Clarkson and Pink sing on this youtube video and they are crazy amazing
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
Also anything covid related and fnd here on neuro symptoms :
https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/
A recent article written June this year what do you think ? From MJA
https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://www.tiktok.com/@drbuttgastro/video/7020472244954549510
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
FND TOGETHER:
https://fndtogether.com/en
itsmeitsmeitsfnd
by none other than our Jake!
https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
On this episode of the FND Podcast we are talking to Mr. Tom Plender who is a massive Campaigner for FND. We talk to him about FND and he brings up what we need to do to help FND Awareness and talk about FND. Thankyou so much for your time and for talking to us Tom it's been an amazing conversation with you, food for thought, inspiration and just so valuable. To follow Tom on instagram : @tplender. He has a website: www.tomplender.com and also FND ACTION: www.fndaction.org.uk
FND ACTION UK : FND AWARENESS DAY
https://www.fndaction.org.uk/fnd-awareness-day-uk/
Click on the link to participate
Including two paediatric consultants in FND: if you are a parent and would like to participate especially you're more than welcome to join and ask questions.
Inform the doctor:
https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/
INTERVIEWS AND ARTICLES:
Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqkoGB News https://youtu.be/8EMspXvKWd8
I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655
FND : Tiktok
https://www.tiktok.com/tag/fnd?lang=en
FNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor
Music:
Sam Barsh Yellow Letter
Sam Bars Hope Springs Internal
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
Also anything covid related and fnd here on neuro symptoms :
https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/
A recent article written June this year what do you think ? From MJA
https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://www.tiktok.com/@drbuttgastro/video/7020472244954549510
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
FND TOGETHER:
https://fndtogether.com/en
itsmeitsmeitsfnd
by none other than our Jake!
https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
An announcement for FND awareness day , especially for caregivers and Parents who are looking after child/children with FND there is an amazing even happening today. To check it out please look at the FND ACTION UK website.
https://www.fndaction.org.uk/fnd-awareness-day-uk/
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
Also anything covid related and fnd here on neuro symptoms :
https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/
A recent article written June this year what do you think ? From MJA
https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://www.tiktok.com/@drbuttgastro/video/7020472244954549510
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
FND TOGETHER:
https://fndtogether.com/en
itsmeitsmeitsfnd
by none other than our Jake!
https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
On this episode we are proud to talk to Dr. Katherine Gill president and founder of FND Australia Support Services. For those newly diagnosed in Australia we describe what FND Australia Services does and provides and hearing about a new FND wellbeing course that is going to be available. We thankyou Katherine Gill for giving us the opportunity to talk to you again. Check out the website and the app.
FND Australia Support Services
https://fndaus.org.au/
The FND AUS APP
Apple
https://apps.apple.com/au/app/fnd-aus-app/id1635024300Andriod:
https://play.google.com/store/apps/details?id=com.fndaustralia&pli=1
Walk and Wheel Awareness day tshirt/jumpers are available here:
https://www.etsy.com/au/shop/KraftyDesignsByKate
Go for a walk : raise awareness , raise funds and do it within their community.
Expressions of interest for Kokoro Mollitia a 12 week FND wellbeing program link is below:
https://www.surveymonkey.com/r/KokoroMollitia
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
Also anything covid related and fnd here on neuro symptoms :
https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/
A recent article written June this year what do you think ? From MJA
https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://www.tiktok.com/@drbuttgastro/video/7020472244954549510
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
FND TOGETHER:
https://fndtogether.com/en/
This is a FND charity/ in Canada run by volunteers. "Our goal is to support individuals diagnosed with Functional Neurological Disorder (FND). FND Together provides a platform for individuals affected by FND to join together in support of one another as peers. We exist to help people living with FND experience better recognition and support, improved health and social services, and we strive to provide a strong common voice on behalf of people affected by FND. Our focus is to help patients with FND and to create a network of services with other organizations and institutions in Canada and beyond our borders.A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
by none other than our Jake!
https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
On this episode of the Deb and Detty Show we are joined by a special guest Jess (as Deb said the famous author) I ask questions in relation FND 1. Why is it so important to raise awareness for FND 2.What difference would it have made if you received proper treatment from the very beginning? 3. What message would you give to those who are newly diagnosed? 4.how do you deal with new symptoms?
Hypohydrosis
https://www.mayoclinic.org/diseases-conditions/hyperhidrosis/diagnosis-treatment/drc-20367173
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
Also anything covid related and fnd here on neuro symptoms :
https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/
A recent article written June this year what do you think ? From MJA
https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://www.tiktok.com/@drbuttgastro/video/7020472244954549510
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
FND TOGETHER:
https://fndtogether.com/en
itsmeitsmeitsfnd
by none other than our Jake!
https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
Also anything covid related and fnd here on neuro symptoms :
https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/
A recent article written June this year what do you think ? From MJA
https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://www.tiktok.com/@drbuttgastro/video/7020472244954549510
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
FND TOGETHER:
https://fndtogether.com/en
itsmeitsmeitsfnd
by none other than our Jake!
https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
In this episode of the FND podcast we are talking to chucky who unfortunately had an accident with his ankle. Or he was attacked by a ninja step! His experience with the emergency and how it all played out and what to do in an emergency. It’s important to prepare for emergencies especially with FND.
here’s some tools for when you do go to emergency: printable
https://www.fndaction.org.uk/fnd-toolkit/
The fnd australia support services App is now available to download and use for free to utilise please check it out and use !
https://apps.apple.com/au/app/fnd-aus-app/id1635024300
There is now patient advocacy case managers
https://www.patientadvocates.com.au/index.html
sos medical function on phone:
https://support.apple.com/en-au/HT208076
Here are two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://vm.tiktok.com/ZSeYtCw7W/
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
by none other than our Jake!
https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
On this episode of Maggies corner we talk to Maggie on how she’s been doing. We split this episode into two parts as there is so much to catch up on. Maggie has done amazing podcast episodes with @zoopnetwork @ the #9for9 real talk series. Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative we congratulate her also on finishing the challenge #9for9 29 days in cold water and for you guys raising money towards youth mental health.
The zoop network:
https://www.thezoopnetwork.com/
Maggie is part of this amazing community, check it out !
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://vm.tiktok.com/ZSeYtCw7W/
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
by none other than our Jake!
HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
On this episode Chrissie talks about two wonderful articles that she has found that leads to discussions on FND. They are amazing reads and are linked and will be included in the resources for future episodes of the podcast. Please check them out! Also a recent article on the MJA published this month on FND. Follow Chrissie @chrissiejbutler.
Notes
Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.
The Cadenza for fractured consciousness From Medium.com on the fnd portal
The Road to Functional Neurological Disorder by Gabriel Brownstein
Also anything covid related and fnd here on neuro symptoms :
https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/
A recent article written June this year what do you think ? From MJA
https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspective
I particularly agree with the conclusion.
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://vm.tiktok.com/ZSeYtCw7W/
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
by none other than our Jake!
https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
Trigger warning : this episode has sensitive topics that may trigger some. It is in relation to a post made in the past which had emphasised and claimed that covid vaccinations causes fnd. This is our opinions we encourage you to speak to your own gp and specialists seek medical advice in regards to this topic in regards to your own fnd and health in regards to this topic. At present the fnd society has a media statement in regards to this matter. We also talk about the awkwardness of FND especially when flares present themselves. Follow Jess on Instagram @functionallyjess , her Instagram for her creative writing @jessmcfarlaneauthor and link to her new book for pre order link below. Shoutout to Michael ! Hello!
NOTES:
To preview Jess’s new book release and pre order click here to check it out
In regards to covid and fnd Professor Jon Stone has a great page outlining everything covid and fnd related especially in relation to FND and Covid vaccinations and explains it perfectly. Click the link below to read through.
https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/
From what we could understand the current stance from the FND Society still stands : here is their media release:
https://www.fndsociety.org/UserFiles/file/FNDSSocietyPressReleaseCOVIDVaccines.pdf
Helping the Public Understand Adverse Events associated with Covid 19 Vaccinations ; Lessons learned from functional neurological disorder article from the jama network: neurology
https://jamanetwork.com/journals/jamaneurology/fullarticle/2778192
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://vm.tiktok.com/ZSeYtCw7W/
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
by none other than our Jake!
https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
On this episode on Uniting FNd Therapy Sessions we talk about FND , from Flares, What Jake packs in his fnd bag parenting with FND and more. It’s always an interesting conversation on life with FND and just life in general with Jake. . Follow Jake on Instagram on @punkchef41 and his podcast it’s me it’s me it’s fnd & Facebook page and Instagram FND & US. Fnd and Us is also run by Steph and Rach Follow Steph on Instagram @_fnd_and_me follow Rach on @unwireddesigner they are also incredible xo
Notes:Not all disabilities are visible sticker
click Here to view
when I mention the claw im referring to the dystonia in my hands :
https://www.fndaction.org.uk/supporting-dystonia-awareness-week-29th-april-7th-may-2017-functional-dystonia/
How to manage yourself in a flare , this was an interesting article that I found that I could relate to
A Chronic illness flare kit
https://thediscerningyou.com/chronic-illness-flare-kit/
an article on how to survive a flare uphttps://www.psychologytoday.com/au/blog/turning-straw-gold/201901/7-ways-survive-flare-when-you-re-chronically-ill
It’s so true that some of us may criticise ourselves for being in a flare in the first place this was an interesting perspective : don’t blame yourself for being in a flare
https://www.bezzymigraine.com/discover/real-talk-mig/health-a-flare-does-not-mean-youve-done-something-wrong/
Hidden disability sunflowers scheme lanyards fnd action uk:
https://www.fndaction.org.uk/fnd-action-join-the-hidden-disabilities-sunflower-scheme/
recommendation: black adder
https://youtu.be/vDVxq76-qOw
Emergency crisis kits for chronically ill I’ll admit there is some good ideas here!
https://themighty.com/2017/10/chronic-illness-crisis-kit-products-emergencies-flare-ups/
what’s in jakes fnd bag? Flashlight, first aid kit phamplets , emergency, excercise book to write if can’t communicate, text to speech and more. What do you have?
https://www.medicalrecords.com/2021/09/02/blog/11-people-with-chronic-illness-show-us-whats-in-their-bag
fnd treatments : including alternative therapies check out FND action
https://www.fndaction.org.uk/treatment/
recommendation from detty ;
parenting with disability : we’ve got this
https://www.booktopia.com.au/we-ve-got-this-eliza-hull/book/9781760642938.html?gclid=CjwKCAjwquWVBhBrEiwAt1KmwljkzlExyP3163f8_BtVm__wjtZGWticg29oc6XqEeJHRQ6IeQGwJxoCLBkQAvD_BwE
a compilation of stories from disabled parents about parenting disabled. It is achievable. You can with fnd it is not easy. But we do the best we can.
”When writer and musician Eliza Hull was pregnant with her first child, like most parents-to-be she was a mix of excited and nervous. But as a person with a physical disability, there were added complexities. She wondered- Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? More than 15 per cent of Australian households have a parent with a disability, yet their stories are rarely shared, their experiences almost never reflected in parenting literature.
In We've Got This, twenty-five parents who identify as Deaf, disabled or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people's attitudes. The result is a moving, revelatory and empowering anthology. As Rebekah Taussig writes, 'Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit - disabled parents exist.'
Contributors include Jacinta Parsons, Kristy Forbes, Graeme Innes, Jessica Smith, Jax Jacki Brown, Nicole Lee, Elly May Barnes, Neangok Chair, Renay Barker-Mulholland, Micheline Lee and Shakira Hussein."Finding your passion or something to focus on can help with fnd .
https://www.bezzyra.com/discover/living-well-ra/health-the-value-of-pursuing-hobbies-when-youre-living-with-a-chronic-illness/
‘little puppy buddy getting acquainted with the vacuum
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://vm.tiktok.com/ZSeYtCw7W/
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
by none other than our Jake!
HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
It’s so lovely to go back and listen to recordings and find hidden gems or treasures. Here’s a great catchup or conversation between Chrissie and Maggie on all things FND. Chrissie @Chrissiejbutler Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creativeNotes:
Diassociassion and fnd helping with fnd ; technique called Havening
https://www.healthline.com/health/mental-health/havening#does-it-work
Toxic positivity:not only amoungst us within our family and friends but within our community and with chronic illness:
https://themighty.com/2021/05/what-is-toxic-positivity-alternatives/
helping others by holding space:
https://www.gstherapycenter.com/blog/2020/1/16/what-holding-space-means-5-tips-to-practice
Stepping away from current events:
https://health.clevelandclinic.org/signs-you-need-to-take-a-break-from-social-media/
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://vm.tiktok.com/ZSeYtCw7W/
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
by none other than our Jake!
HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
On this episode We have two very special guests David Bond who has spoken on this podcast numerous times interviews an amazing Neurologist Dr. LaGrand also fellow research fellow about FND and what he has been doing over here in Australia. We wish you all the very best and we thank the both of you for coming on the FND podcast you both truly are amazing. Listening to both David and TJ was truly inspiring.
Episode notes:
to listen to Davids my fnd reality click on the link below
https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-david
to watch the interview with Dr. Lagrand Neurologist and Fellow research with Katherine Gill on the Fnd Australia Support Services Channel click on the link below ( amazing interview to learn the fundamentals of FND and more)
https://youtu.be/Fxb0zEvngug
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://vm.tiktok.com/ZSeYtCw7W/
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
by none other than our Jake!
HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
On this episode we backtrack all the way back to after FND awareness week. We talk all things FND coping with the news events and fnd , mental health Spreading awareness not just on awareness day. Follow Jake on Instagram on @punkchef41 and his podcast it’s me it’s me it’s fnd & Facebook page and Instagram FND & US. Fnd and Us is also run by Steph and Rach Follow Steph on Instagram @_fnd_and_me follow Rach on @unwireddesigner they are also incredible xo
I was on Jakes podcast it’s me it’s me it’s FND check it out!https://open.spotify.com/episode/3jMNFjLyFiYGeLzEtEVEh5?si=7bHG8xKlQF6ZxIcJYD2Gww
we talk about Eurovision and it’s awesome :
https://www.sbs.com.au/programs/eurovision
Kids show : get well soon cbeebies
https://www.imdb.com/title/tt6249336/
Recommendations:
findyour passions/ hobbies
check out Steph WB creative! Amazing Artwork check her out :
https://www.etsy.com/uk/shop/WBcreativeStore?load_webview=1&bid=HfVb-IyWqFT12GtZgiBIltuyTuhD
Little Nicky Adam sandler Movie
True crime podcast:
FND Toolkit check it out!
https://www.fndaction.org.uk/fnd-toolkit/
FND australia Support services app:
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://vm.tiktok.com/ZSeYtCw7W/
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
by none other than our Jake!
HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
-
On this episode Jess her experience with her iron transfusion which leads to other recalling of other experiences, also going through the motions and coping. Detty also talks about dealing with her mental health.Follow Jess on Instagram @functionallyjess
Recommendations:Taking your meds on time annnnd
Munchme snacks healthy snacks and helping with Nausea
https://www.munchmefood.com/
Mindfulness and early education on mental health non for profit charity :
https://www.smilingmind.com.au/
Episode information:
Iron Information treatment for anaemia
https://www.healthline.com/health/iron-infusion
What is VasoVagal Syncope?
w.mayoclinic.org/diseases-conditions/vasovagal-syncope/symptoms-causes/syc-
St. John’s wort curious about it? heres some information:
https://www.blackdoginstitute.org.au/wp-content/uploads/2020/04/10-stjohnswortastreatment.pdf
PMDD
https://www.mayoclinic.org/diseases-conditions/premenstrual-syndrome/expert-answers/pmdd/faq-20058315
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.
The FND Podcast with detty : song resonating at the moment maybe our song :
The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.
https://youtu.be/o3sXlxg4d5c
What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation
https://vm.tiktok.com/ZSeYtCw7W/
https://www.neurokid.co.uk/\
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Australia Support services App:
Android
https://apksos.com/app/fndaustralia.com
Apple
https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
by none other than our Jake!
HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out
Dylan Alcott
Athelete , paraolympics , podcaster , raising awareness and voices of the disabled
Instagram :@ listenable_podcast @dylanalcott
Website: www.abilityfest.com.au
Elle Stella
Business Success Coach , Paraolympian & intuitive healer
Instagram: @iamellesteele
Website: www.iamellesteele.com
Carly FindlayActivist, writer, Blogger with a condition called ichtchyosis.
Instagram: @carlyfindlay
Website: www.carlyfindlay.com.au
Sophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude
Instagram: @sophjbutler
YouTube: https://youtu.be/wgfAYDlXXvM
Meg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND
Instagram: @Meg.Jacks_
TicTok: Megjacks
Julian Gavino
(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation
Instagram: @thedisabledhippie
Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disability
Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/
Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.
Instagram: @princesssapien
Website: https://www.chloehayden.com.au/
Youtube: Chloè Haden
Style like U
Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.
Website: https://stylelikeu.com/about-us/
Lucy Dawson
who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.
Instagram : @luuudaw
Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/
Cripple Media
Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness
Instagram: @cripple media
Website: https://cripplemedia.com/about/
Aaron Rose Philip
For more information check out this wonderful article here
https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893
Instagram:aaron_phillip transgendered disabled fabulous Model check him out
Nicole Parish
she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest
A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out
https://www.thedailyaus.com.au/
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