Afleveringen
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In this fourth and final episode of our special series in partnership with Stanford Healthcare, our guest Susan Evans shares the ins and outs of caregiving, and talks about her work to support other caregivers dealing with the challenges of Alzheimerâs Disease. As a caregiver, Susan worked to ensure her dad was safe and well cared for. She and her brother incorporated humor into their caregiving journey, and now she works to ensure other caregivers have the resources they need.
Here are a few highlights from our conversation:
Susan knows the power of story sharing, and how caregivers can learn from each other.When her dad began experiencing symptoms of Alzheimerâs Disease, he took himself to his doctor at Stanford Healthcare. Susan recommends taking advantage of the present time caregivers have, to be in the moment instead of trying to remind your person of things they canât recall.Challenges from Alzheimerâs Disease vary from person to person, and caregiver to caregiver.Despite the hard times, Susan has found fulfillment and meaning in her caregiving roles.You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org
Connect with our special series sponsor Kensington Senior Living:
Website: https://kensingtonseniorliving.com/
Social media: Instagram LinkedIn Facebook
Information for Jennifer OâBrien
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Buy your copy of The Hospice Doctorâs Widow: An Art Journal of Caregiving and Grief here.
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
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Dr. Jocelyn Jiao and Social Worker Mike Polisso of the Stanford Healthcare Palliative Team know the value of getting to know patients and families from the start of the care relationship.
As part of an interdisciplinary team providing neuropalliative care for people and families living with serious neurological illnesses, theyâre supporting patients and caregivers and training other healthcare workers in palliative care.
Here are some topics discussed in this interview:
Jocelyn discussed the importance of finding out communication preferences when it comes to early conversations about advance care planning and disease progression. Mike highlighted exploring preference questions with patients and caregivers, and staying curious to create opportunities for personalized care. Asking what kind of medical information is important to someone to know can create communication styles that are comfortable for the patient and caregivers. Mike finds many people donât know that palliative care social workers have a variety of roles, including helping with complex medical decision making and dealing with family dynamics that are impacting care. Both Mike and Dr. Jiao recognize the need for ongoing self care to support the work they do.You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org
Connect with our special series sponsor Kensington Senior Living:
Website: https://kensingtonseniorliving.com/
Social media: Instagram LinkedIn Facebook
Information for Jennifer OâBrien
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Buy your copy of The Hospice Doctorâs Widow: An Art Journal of Caregiving and Grief here.
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
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Zijn er afleveringen die ontbreken?
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With courage and vulnerability, Sheralin Samuels shares her experience as a caregiver for her mom, and their journey through Early Onset Alzheimerâs disease.
Here are a few highlights from this episode, created in partnership with Stanford Health Care:
Sheralinâs mom Carlys began showing symptoms in 2012, and a definitive diagnosis of Alzheimerâs disease wasnât found until about 10 years later. Carlys spent a year in hospice care before she was discharged. As a sandwich caregiver, Sheralin cares for her two kids while working a full time job and ensuring her momâs needs are being met. Being a caregiver has impacted Sheralinâs family in numerous ways, affecting family dynamics, relationships, and finances. Sheralin knows there's strength in self care. Her self care includes getting outside, enjoying nature, and hiking. By creating YouTube videos to help other caregivers, Sheralin is creating meaning from her experience.Watch Sheralin Taylorâs YouTube videos: @A_Daughters_Journey
You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org
Connect with our special series sponsor Kensington Senior Living:
Website: https://kensingtonseniorliving.com/
Social media: Instagram LinkedIn Facebook
Information for Jennifer OâBrien
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Buy your copy of The Hospice Doctorâs Widow: An Art Journal of Caregiving and Grief here.
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
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This episode is the first in a 4-part special series in partnership with Stanford Healthcare, sponsorsored by Kensington Senior Living.
Grant Smith, M.D. and Emily Linderman, BCC from the Palliative Care team at Stanford Health Care are sharing all the basics of palliative care - when to start it, who can benefit from it, and what a PC team does for patients and caregivers.
Here are a few highlights from our conversation:
Palliative care teams are transdisciplinary (consisting of workers with different skills, like physicians, social workers, nurses, and chaplains) and support quality of lifePalliative care can be provided at any age and stage of an illnessPalliative care teams are great at helping patients to understand all the information being thrown at them, facilitating family conferences, and coordinating patient careYou can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org
Connect with our special series sponsor Kensington Senior Living:
Website: kensingtonseniorliving.com
Social media: Instagram LinkedIn Facebook
Information for Jennifer OâBrien
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Buy your copy of The Hospice Doctorâs Widow: An Art Journal of Caregiving and Grief here.
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
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Social Worker Rosie Gaston brings energy and compassion to the care of people and families dealing with life-limiting illness. As a passionate clinical social worker, sheâs worked for over a decade supporting individuals, families, and professionals through the intricate journey of end-of-life care. Rosie founded A Better Ending in 2022 to focus on personalized support, community education, and fostering professional development in the end-of-life care domain all while continuing to serve part-time as a hospice social worker.
As Rosie says, âA life well lived deserves an ending that honors that life.â
Connect with Rosie Gaston and A Better Ending
Website: abetterending.org
Social media for Rosie Gaston: Instagram @a.better.ending Facebook LinkedIn
Information for Jennifer OâBrien
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Buy your copy of The Hospice Doctorâs Widow: An Art Journal of Caregiving and Grief here.
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
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Dr. Robert Klitzman has learned the truth about the value of spiritual care through his professional practice and his own lived experience. As an author, heâs written over 180 articles and books on critical issues in bioethics regarding doctor-patient relationships and communication, research, and other areas. Robert realized the whole-person impacts of a traumatic grief event after the death of his sister in the Twin Tower attacks on 9-11.
Speaking with physician colleagues, Robert heard them voice erroneous beliefs about the support that chaplains provide. His book Doctor, Will You Pray for Me?: Medicine, Chaplains, and Healing the Whole Person describes an in-depth look into the work of hospital chaplains. The book demonstrates how chaplains, as part of an interdisciplinary team, help families âmake sense of serious disease and threats of death and other medical crises, seeking hope, purpose and larger connections beyond themselvesâ.
Buy your copy of Dr. Klitzmanâs book Doctor, Will You Pray for Me?: Medicine, Chaplains, and Healing the Whole Person here.
Find all of Dr. Klitzmanâs works here.
Information for Jennifer OâBrien
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Buy your copy of The Hospice Doctorâs Widow: An Art Journal of Caregiving and Grief here.
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
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My guest Gabby Jimenez and I are busting the hospice myths to get to the truth about end of life care. Because there are so many misconceptions about hospice care, many people donât choose to have care from a hospice team or they delay hospice care until very close to death. Itâs important to know the truth about all the aspects of hospice care - how medicines are managed, how morphine is really used for someone whoâs dying, when to start hospice, and Do Not Resuscitate orders work.
Gabby Jimenez is a hospice nurse, end-of-life doula, death and dying educator, and author. Her website and Facebook page, which are both named The Hospice Heart, offer support for people who are either terminally ill, or caring for someone who is nearing the end of their life. Gabby has learned from being at the bedside of about 2,000 people who have taken their last breath. Her end-of-life doula training has helped her to truly understand the sacredness of death and dying, and what it means to be present for someone during that intimate and final moment. You can find her information and all of her offerings on her website: www.thehospiceheart.net
Connect with Gabby Jimenez:
Website: thehospiceheart.net
Contact: thehospiceheart.net/contact
Buy Gabbyâs books: thehospiceheart.net/books
Book Gabby to speak at your event: thehospiceheart.net/book-gabby
Social Media for Gabby Jimenez
https://www.facebook.com/thehospiceheart.net
Information for Jennifer OâBrien
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Buy your copy of The Hospice Doctorâs Widow: An Art Journal of Caregiving and Grief here.
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
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Dr. Fred Mirarchi is working to create personalized, specific advance care plans for patients, accommodating every stage of life and end of life wish. After seeing clinicians in the hospital struggle to determine exactly what patientsâ wishes were, Fred realized documentation of advance directives didnât truly communicate clearly. He and the team at Mideo Health have developed a best-practice model for documenting health care directives.
Using a video format allows patients to customize their plan. For older adults who might struggle with technology, the team provides concierge service to guide them through every step of the process. Thereâs space available on the Mideo platform for creating a personal message to family members, and to document disease-specific directives based on the personâs health history. When completed, Mideo is accessible by QR code so it can be accessed quickly by first responders and hospital staff. If youâre younger and in good health, thereâs a âdo-it-yourselfâ version of Mideo thatâs easy to complete on your own.
Advance care planning is a great way of preventing unwanted care thatâs out of alignment with personal beliefs and wishes. The best time to start the ACP conversation is now.
Website: mideohealth.com
Socials for Mideo: LinkedIn Facebook Twitter (X)
Socials for Dr. Mirarchi: Twitter (X)
Information for Jennifer OâBrien
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Buy your copy of The Hospice Doctorâs Widow: An Art Journal of Caregiving and Grief here.
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
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Serene-Meshel Dillmanâs documentary series Take Me Out Feet First captures the courage and compassion of people choosing Medical Aid in Dying. In the six part series, Serene features the end of life journeys of people dealing with terminal illness, as well as both her own parents. The struggles, grief, joy, and determination of those dying patients and their families shine through in the films. Sereneâs vision is to educate the public about the medical aid in dying process and advocate for state legislation that will allow the right to MAID equitably across the U.S.
You can buy/rent all six episodes of Take Me Out Feet First here.
Website: www.Outfeetfirst.com
Instagram: @Take.meoutfeetfirst
Facebook: www.facebook.com/serene.dillman
Information for Jennifer OâBrien
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Buy your copy of The Hospice Doctorâs Widow: An Art Journal of Caregiving and Grief here.
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
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After being a caregiver for her parents and husband, Jennifer OâBrien is empowering caregivers so they come through it healthy physically, emotionally, financially, and mentally. In her new book Care Boss, Jennifer has designed strategies and resources to support caregivers. Her 35+ years in healthcare leadership, partnered with all her years as an unpaid family caregiver, equipped her to write the guidebook that caregivers can use to navigate the care of their Person.
If youâre one of the over 54 million unpaid caregivers across the U.S., the advice that Care Boss offers is a great tool to put in your toolbox. Caregivers take on roles as advocate, spokesperson, decision-maker, mediator, comforter, grievers, and financial manager. Caregivers need great resources. Care Boss by Jennifer OâBrien gives caregivers what they need.
Information for Jennifer OâBrien
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Buy your copy of The Hospice Doctorâs Widow: An Art Journal of Caregiving and Grief here.
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
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In this second episode in a two part series featuring Dr. Harvey Chochinov, weâre talking about The Platinum Rule. Providing care through the lens of the end of life provider doesnât fully recognize the personhood of the patient. Dr. Chochinov teaches us about The Platinum Rule - treating others the way they want to be treated, instead of how we would want to be treated if the situation was ours.
Connect with Dr. Harvey Chochinov
Website: dignityincare.ca Virtualhospice.ca
Social media: Twitter: @HMChochinov LinkedIn: Harvey Max Chochinov
Purchase your copy of Dignity in Care: The Human Side of Medicine here
Information for Jennifer OâBrien
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Buy your copy of The Hospice Doctorâs Widow: An Art Journal of Caregiving and Grief here.
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
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Dr. Harvey Chochinov is teaching us how to go beyond providing healthcare to provide health-caring for the people we serve. Patients are people before they need to engage with the healthcare system. That personhood should be supported and validated with compassion and dignity. Dr. Chochinov has also led a large program of research on dignity within the healthcare setting, which includes the development and study of Dignity Therapy. As a Distinguished Professor of Psychiatry at the University of Manitoba and a Senior Scientist at CancerCare Manitoba Research Institute, Dr. Chochinov reminds us all that âpatients wonât care what you know until they know that you care.â
Connect with Dr. Chochinov
Website: dignityincare.ca Virtualhospice.ca
Social media: Twitter: @HMChochinov LinkedIn: Harvey Max Chochinov
Purchase your copy of Dignity in Care: The Human Side of Medicine here
Information for Jennifer OâBrien
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Buy your copy of The Hospice Doctorâs Widow: An Art Journal of Caregiving and Grief here.
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
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Death Doula Darnell Lamont Walker is listening to the dying and speaking up to advocate for their needs. As a Death Doula who is also male and black, Darnell works to facilitate conversations about death in the black community. Heâs a unique blend of skills and talents - an Emmy-nominated childrenâs writer, a documentary filmmaker, and a death doula.
Darnell is a listener, a companion to people with serious illness. Heâs working to create change around our perceptions of grief, death discussions, and how we approach dying in the U.S.
Connect with Darnell Lamont Walker
Website: Darnell Walker
Social media: IG LinkedIn
Watch Darnellâs talk at EndWell 2023 here
Information for sponsor Jennifer OâBrien:
Website: jenniferaobrien.com
Read more about Jennifer OâBrien here.
Purchase your copy of Care Boss by Jennifer OâBrien here.
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
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As a nurse and End of Life Doula, Kacie Gikonyo cares for the dying while working to make a lasting impact on end-of-life support. Kacie realized during the pandemic that she was called to work with the dying. She trained with INELDA (the International End of Life Doula Association) to become an End of Life Doula. Her special area of doula practice is with younger persons with a terminal illness, focusing on end of life conversations and legacy projects.
Kacie believes in fostering collaboration over competition, nurturing a community-driven model through the Death Doula Collective. The Collective is a community of Death Doulas from across the country who want to support, empower and guide each other. Kacie is also the founder of the Death Doula School, whose mission is to cultivate successful Death Doulas who are equipped with the knowledge, skills, and confidence to make a meaningful difference in the lives of those they serve.
Connect with Death Doula Kacie Gikonyo:
Website: www.deathdoulakacie.com
Social media: YouTube Facebook Instagram Tik Tok LinkedIn Pinterest
Email: Kacie@deathdoulakacie
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
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Dr. Ira Byock believes hospice can heal its own dysfunction by holding providers and clinicians responsible for the care we provide and how we provide it.
Physician Dr. Ira Byock is a voice for change in the hospice industry, and an advocate for quality end of life care. His many years of experience in hospice medicine, coupled with the compassion he has for people dealing with serious illness, have made him an industry leader in the U.S. According to his website (irabyock.org), he is âFounder of the Institute for Human Caring at Providence St. Joseph Health. Dr. Byock is Active Professor Emeritus of Medicine and Community & Family Medicine at the Geisel School of Medicine at Dartmouth. He served as Director of Palliative Medicine at Dartmouth-Hitchcock Medical Center in Lebanon, New Hampshire from 2003 through July 2013. Dr. Byock has been involved in hospice and palliative care since 1978. His research has contributed to conceptual frameworks for the lived experience of illness that encompasses a continuum from suffering to wellbeing; related measures for subjective quality of life during illness; and effective life-completion counseling methods. From 1996 to 2006 he directed Promoting Excellence in End-of-Life Care, a national Robert Wood Johnson Foundation program that developed prototypes for concurrent palliative care of people with life-threatening conditions. He is a past president of the Academy of Hospice and Palliative Medicine.â
What Dr. Byockâs bio doesnât describe is his caring heart. It drives his dedication to identifying the issues we face in the hospice industry and offering evidence-based, practical solutions. He wants the hospice silo of healthcare to correct its own path. Dr. Byock believes hospice can heal its own dysfunction by holding providers and clinicians responsible for the care we provide and how we provide it. His articles in STAT magazine and the Journal of Palliative Medicine describe actionable, practical solutions. Hospice practitioners of every discipline can learn from Dr. Byock.
Connect with Dr. Byock at irabyock.org.
Find and purchase Dr. Byockâs books, including The Four Things That Matter Most, by clicking here.
Read Dr. Byockâs STAT article Hospice Care Needs Saving here.
Read Dr. Byockâs article Core Roles and Responsibilities of Physicians in Hospice Care: A Statement by and for U.S. Hospice and Palliative Care Physicians by clicking here. 28 Apr 2023https://doi.org/10.1089/jpm.2023.0194
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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As Editor-in-Chief of The Bucket, David Abend takes on the ultimate marketing challenge: rebranding death by showing how embracing mortality can lead to a more fulfilling life. The Bucket is an online magazine that helps people make choices to reduce deathbed regrets (DBRs). With a background in creative direction and copywriting, co-founder and Editor-in-Chief David Abend has spent decades helping people see things differently. The Bucket offers a mix of podcasts, interviews, and articles that go beyond inspiration, providing actionable âhow-toâsâ for making meaningful life changes. As an extension of The Bucket, David is also a Certified Life Coach where he helps guide clients to make intentional, purpose-driven decisions that wonât leave them wondering, âWhat If?â.
Connect with The Bucket and The Bucket Life Coaching with David Abend:
Bucket url is: www.Thebucket.com
Facebook: https://www.facebook.com/thebucketonline
Instagram: #Thebucketonline
The Bucket Life Coaching: www.thebucketlifecoaching.com
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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Licensed funeral director and End of Life Doula Christa Ovenell is busting myths about funerals, and sharing practical tips on how to plan a funeral service that reflects your values and needs. As a community-based Death Educator, Christa is the founder of Deathâs Apprentice Education & Planning Inc., a company that specializes in holistic advance care planning for individuals and forward-thinking companies.
Christa leads with her heart when it comes to guiding clients through death and funeral planning. Sheâs also a great resource for funeral planning, making arrangements after a death to create a meaningful service, and having bold conversations about death and dying to help all of us get more comfortable with our mortality.
Connect with EOL Doula and Funeral Director Christa Ovenell
Website: deathsapprentice.ca
Email: [email protected]
Instagram: deathsapprentice.ca
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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Allison Applebaum stood by her dad Stanley as his caregiving partner, respecting his wishes and maintaining his quality of life through the very end of his life. Allison was previously the Founding Director of the Caregivers Clinic at Memorial Sloan Kettering Cancer Center, the first program of its kind in the United States to provide comprehensive psychosocial care to family members and friends of patients who are in the caregiving role.
Her father Stanley, a talented and prolific composer and musician, worked with many great artists for the 50âs and 60âs, including Neil Sedaka, Ben E. King, and Connie Francis.
Allison took a lead role as her dadâs caregiver after the death of her mother, helping him deal with Lewy Body Disease (Lewy Body Dementia). After her mother died, Allison and Stan went forward, dealing with intense and traumatic grief.
Allisonâs caregiving story is a beautiful tribute to her dad, and there are many caregivers across the U.S. doing the same job for someone they care about. LBD carries an unusual set of caregiving challenges. Stan defined quality of life as the ability to be creative, grow, and continue to compose his music. As a caregiver, Allison respected his wishes and ensured he lived fully until his death at 96.
Some highlights from Allisonâs unique caregiving story include:
Her dad retained his creativity and this contributed greatly to his quality of lifeStan never had a DNR (Do Not Rescucitate) document, and Allison respected that wish through his deathIntermittent hallucinations were part of his disease, a great source of pain for both Stan and his daughter. Allison considered them partners in caregiving, and worked to build a caregiving village customized to her dadâs needs.Connect with Dr. Allison Applebaum:
Website: allisonapplebaum.com
Book: Stand By Me: A Guide to Navigating Modern, Meaningful Caregiving
Socials: Twitter Instagram
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
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Social Media for GrandPad
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https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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In this final episode of our special 4 part series, Hospice Educator Barbara Karnes shares the personal story of her husbandâs end of life journey and death. She opens up about all the emotions she experienced as she and her family supported Jack Karnes after his diagnosis with a terminal illness. Jack died four months after he was diagnosed with lung cancer. Barbara and Jack had been married for 61 years at the time of his death. After working over 40 years in end of life care, Barbara experienced all the aspects of interdisciplinary hospice care, death, and grief in her personal life.
Weâre grateful for Barbaraâs generosity and vulnerability in telling her story. After all the years she has spent educating hospice workers and end of life caregivers, sheâs still teaching us.
Weâd like to thank Lisa Pahl, founder of The Death Death and End of Life, for sponsoring this special series in honor of National Family Caregivers Month and National Hospice and Palliative Care Month (National Home Care Month).
Hereâs are some details of what Barbara shares in this touching interview:
What the process of a hospice admission is truly likeThe impact of staffing changes on the trust bond with a caregiverLearning to live as a âmeâ after living as a âweâ after 60 years of marriageThe many emotions she experienced when Jack was terminally illThe music she wants to be part of her advance care planConnect with Barbara Karnes:
Website: bkbooks.com
Blog: bkbooks.com
Shop her products: bkbooks.com
Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube
Email: [email protected]
Thank you to our series sponsor The Death Deck!
Connect with the End of Life Deck and the Death Deck:
Website: thedeathdeck.comhttps://thedeathdeck.com/
Shop: End of Life Deck Death Deck
Socials for the Death Deck: Facebook IG Twitter (X)
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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Susan Combs will tell you she had a great dad. Her caregiving experience at the end of his life inspired her to give back to the veteran community. Susanâs dad Major General Roger E. Combs was a huge influence on her life. Roger battled with throat cancer related to Agent Orange for ten years, eventually dealing with a feeding tube toward the end of his life. A simple act - his request to eat pancakes - launched a non-profit organization that supports military veterans.
Susan is the president of Combs and Company, based in New York City. Her movement Pancakes for Roger occurs every February. For every pancake-loving picture posted on social media post using the hashtag #PancakesForRoger, Combs & Company will make a donation to the University of Missouri School of Law Veterans Clinic which helps veterans and their families navigate the VA claims process and secure disability benefits when they are faced with obstacles along the way.
Hereâs some advice Susan gives to other end of life caregivers:
Do one thing every day for yourselfBring in your âcrewâ, those friends who can support youHave the advance care plan conversations, even though itâs difficultConnect with Susan Combs and Pancakes for Roger:
Website: pancakesforroger.org
Book: Pancakes for Roger
Social media: Instagram Facebook Twitter (X) YouTube
Honor your veteran on their Wall of Honor:
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care youâre already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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