Afleveringen
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Hospice nurse and End of Life Doula Gabby Jimenez of The Hospice Heart is our guest host for today’s episode, featuring a discussion of Hospice Navigation Services. When you’re looking at making decisions about end of life care for yourself or someone you love, things can seem frightening and confusing. Hospice Navigation Services can help you figure things out. We can help you feel just a little less lost.
Hospice Navigation Services was founded by Hospice and Palliative Certified RN Helen Bauer, a respected voice in the end of life industry. Helen acts as Lead Navigator for Hospice Navigation Sessions and can guide you through discussions about hospice care, how to choose an agency, and whether your current hospice care is the best fit for you and your person.
It’s your journey. We'll be your expert guide.
Book your Hospice Navigation Session today at theheartofhospice.com.
Connect with Gabby Jimenez:
Website: thehospiceheart.net
Contact: thehospiceheart.net/contact
Buy Gabby’s books: thehospiceheart.net/books
Book Gabby to speak at your event: thehospiceheart.net/book-gabby
Social Media for Gabby Jimenez
https://www.facebook.com/thehospiceheart.net
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Hospice and palliative physician Dr. Matthew Tyler is teaching us how to have conversations with your healthcare team about what matters most to you. In addition to his work as medical director of palliative care services, Matthew educates the public about having meaningful discussions with their healthcare teams, especially the doctor. He calls it “How to Train Your Doctor”. People with serious illnesses, along with their decision-makers, can get better care if they know how to communicate their needs.
Matthew tackles some of the trickiest topics with his How to Train Your Doctor social media posts. Feeding tubes, CPR/DNR decisions, confusing medical jargon, and palliative care are included in YouTube videos and Instagram posts. Matthew says it’s important to determine what the patient considers a meaningful outcome, and what the goals of the patient care are.
Credit for the healthcare "f-word" (medically futile) goes to Dr. Nathan Gray, M.D. of inkvessel.com.
Connect with Dr. Matthew Tyler at howtotrainyourdoctor.com
Download your free Goals of Care Jump Starter document here.
Website: https://howtotrainyourdoctor.com/
Instagram: https://www.instagram.com/howtotrainyourdoctor/
YouTube: https://www.youtube.com/@howtotrainyourdoctor
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Zijn er afleveringen die ontbreken?
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Being an advocate for someone in hospice care is a big job. MSW Jacob Kendall of Demystifying Healthcare is teaching us how to do it well. Advocacy for his own healthcare needs has taught him how to communicate with a healthcare team to get the best care possible. Jacob teaches about the various aspects that influence that care that’s available for patients, including time and communication. He’s also looking from a 30,000 foot view as well, acknowledging that geography, poverty, time, and policies influence the kind of care we receive.
Jacob is a fan of interdisciplinary care. He believes every specialist or discipline should be working together to create more continuity in our healthcare. In addition to clinical providers, Jacob also thinks other modalities add value to our care. Connecting with other people experiencing similar health challenges can be valuable. Jacob brings a multidimensional perspective to his work as a healthcare consumer and an educator.
Connect with Dr. Jacob Kendall, MSW MPH PhD at jacobevanskendall.com.
Talk with Jacob about speaking at your event by clicking here.
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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As co-founder of Empowered Endings, Dr. Bob Uslander, is working to shift the paradigm of End of Life Care by supporting, guiding, and teaching an empowered approach to Palliative and End of Life Care. He became aware of the gaps in hospice and palliative care that cause patients to struggle. The deaths of his parents and a dear friend provided a personal perspective into caregiving that formed Bob’s determination to meet the needs of people with serious illness in a better way.
Empowered Endings supports both patients and families through the final stages of life. Bob, his wife Medical Social Worker Elizabeth, and the Empowered Endings team ensure each person feels heard, held, and whole throughout the end of life journey. The team utilizes End of Life Doulas, nurses, a chaplain, and a grief and dementia doula.
Connect with Dr. Bob Uslander:
Website: https://empoweredendings.com/
Empowered Endings Community: https://empoweredendings.com/community/
Empowered Endings Foundation: https://empoweredendings.com/foundation/
Social Media for Empowered Endings
LinkedIn: https://www.linkedin.com/in/bobuslander/
Instagram: https://www.instagram.com/empowered_endings_/
Facebook: https://www.facebook.com/empowerendings/
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Connect with Jodi Clock, author of It’s Complicated! at jodieclock.com
Purchase your copy of It’s Complicated! here and learn what you need to know about: Social Security, Medicare, Medicaid, Long Term Care, End-of-Life Wishes and more! It’s Complicated! has a customizable “Family Care Plan” at the end of each chapter. This care plan is also downloadable and free, regardless if you have purchased the book.
Social Media for Jodi Clock
Facebook: https://www.facebook.com/AskJodi/
Twitter (X): https://twitter.com/jodiclock
LinkedIn: https://www.linkedin.com/in/jodi-clock-b988908/
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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In part 2 of our grief series with Grief Coach Shelby Forsythia, Shelby talks about identifying your grief allies, different grief styles, and how to create continuing bonds with the ones you’ve lost. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher. Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine. Her heart and compassion is palpable in her book Your Grief, Your Way.
Connect with Shelby Forsythia:
Website: https://www.shelbyforsythia.com/
Instagram: https://www.instagram.com/shelbyforsythia/
Facebook: https://www.facebook.com/shelbyforsythia/
Free Podcast: https://www.shelbyforsythia.com/dear-grief-guide-podcast
Free Workshop: https://www.shelbyforsythia.com/free-workshop
Book, Your Grief, Your Way: https://www.shelbyforsythia.com/your-grief-your-way
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Grief Coach Shelby Forsythia is teaching us how it’s possible to grow through grief. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher. Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine. Her heart and compassion is palpable in her book Your Grief, Your Way.
Connect with Shelby Forsythia:
Website: https://www.shelbyforsythia.com/
Instagram: https://www.instagram.com/shelbyforsythia/
Facebook: https://www.facebook.com/shelbyforsythia/
Free Podcast: https://www.shelbyforsythia.com/dear-grief-guide-podcast
Free Workshop: https://www.shelbyforsythia.com/free-workshop
Book, Your Grief, Your Way: https://www.shelbyforsythia.com/your-grief-your-way
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Dementia practitioner Mary Anne Oglesby-Sutherly is on a mission to transform the landscape of dementia care. As co-founder of Veranda Ministries, a 501(c)3, Mary Anne has spent two decades telling the stories of people dealing with dementia. Supporting dementia caregivers is her gift, and helping them to remember their person’s legacy is a top priority.
Mary Anne got her start as a family practice nurse, and is now a Certified Dementia Practitioner as well as holding a triple certification as a PAC trainer, consultant, and coach in Teepa Snow’s “Positive Approach to Care” (PAC). As the host of the highly acclaimed podcast, “Aging Angst and Alleluias,” Mary Anne provides invaluable support, education, and encouragement to care partners navigating the intricate journey of dementia care. The care Mary Anne and her team provide through Veranda Ministries recalls the personhood of their patients, validating who they are and promoting their dignity. What an amazing work and life legacy Mary Anne is creating for herself and her family.
Here’s how you can connect with Veranda Ministries:
www.theverandaministries.org
Proactive Perspective in Dementia Care Facebook:
https://www.facebook.com/profile.php?id=61553996411093
Veranda Ministries Facebook:
https://www.facebook.com/TheVerandaMinistries
Veranda's Hidden Heroes Private Support Group on Facebook.
https://www.facebook.com/groups/1851833391499391
Listen to the Aging Angst and Alleluias podcast here.
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
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Welcome to Season 9 of The Heart of Hospice Podcast! Occupational Therapists Emilia Bourland and Dr. Brandy Archie are sharing how OTs can improve the quality of life for patients and caregivers on hospice care. OTs are underutilized in end-of-life care, but they’re an essential part of the hospice interdisciplinary team.
There’s a lot of support OTs can offer to make caregiving tasks easier, practical solutions to everyday issues for activities of daily living. Occupational Therapy interventions can include managing equipment, setting up meals, and transfer techniques. It’s about problem-solving to make caregiving tasks easier and promote independence for the patient. Caregivers have a big job, so reducing the caregiving burden goes a long way to improving the end-of-life experience for both the person at end of life and the ones who are providing their care.
Listen to the CareLab podcast here!
YouTube: https://www.youtube.com/channel/UCIieFR9ZQZf4yH59ysOY7aQ or @carelabpodcast
Socials for Dr. Brandy Archie, OTD, OTR/L, CLVT, CLIPP:
https://www.facebook.com/AskSAMIE
https://www.instagram.com/asksamie
https://www.linkedin.com/in/drbrandyarchie/
https://www.linkedin.com/company/asksamie/
https://www.asksamie.com
https://www.youtube.com/channel/UC5kNJnPHL2vU1vv1jTksgJQ
https://www.twitter.com/Ask_SAMIE
Social for Emilia Bourland, OTR, ECHM, CFPS:
https://www.facebook.com/HigherStandardsCaregiverTraining/
https://www.linkedin.com/in/emilia-bourland/
https://www.linkedin.com/company/higher-standards-caregiver-training/
https://www.youtube.com/channel/UCIfN3ImKGD6pVyiVby86zlw or @higherstandardscaregiver
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Erin Whalen, founder of Compassionate Coaching, is working to help end of life and grief professionals love their work again. Using her unique gifts, Erin and the Compassionate Coaching theater troop employ “playback theater” to develop engaging programming that centers around giving and receiving empathy. They work with end of life teams to mitigate burnout, enabling the teams to continue providing care for those who are dying.
Erin understands grief, loss, and the importance of caring for ourselves as we care for others. Erin lived her whole life in a state of anticipatory grief for the loss of her older sister, Gina. Gina was born with severe cerebral palsy, and died in 2016. Grief milestones are very familiar to Erin. Now she uses her work at Compassionate Coaching to support those who work to care for the dying.
You can connect with Compassionate Coaching at compassionatecoaching.org.
If you’re interested in playback theater to support your hospice team, click here.
If you’re an end of life worker and want to participate in a Storytelling Workshop, click here.
Find Erin Whalen on LinkedIn here.
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Pharmacist Ellen Fulp is passionate about using medications appropriately to care for patients who are at their most vulnerable. As a part of the hospice interdisciplinary team, Ellen collaborates with the hospice director and nurse to ensure quality of life is supported, and a patient’s suffering is reduced. Caregivers and patients often misunderstand how medication is used in hospice care. Ellen believes in symptom resolution, keeping the patient’s goals of care in mind.
In hospice care, pharmacists do more than just review medications for side effects or adverse effects. They help the clinical team find the best medication options to keep the patient comfortable. That includes finding the right route, the most convenient and safe times for administering the medications, and ensuring the medications are utilized correctly by the patient. When medication diversion (meds being stolen or used by someone else) is a concern, pharmacists coordinate with the hospice team to furnish the meds in a safe, legally compliant way. Pharmacists might not be part of the “core team”, but they’re a vital part of the care of a hospice patient.
Connect with Ellen Fulp, PharmD, MSPC, BCG, Director of Pharmacy Education at AvaCare, on LinkedIn.
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Funeral director and author Jodi Clock knows personally how each person finds a grief style that’s the best, healthy fit for themselves. As host of the “I Woke Up Dead - Now What?” podcast, Jodi is having conversations about our common experiences with death, shares best practices, and asks the tough questions in order to prepare for end-of-life realities we all will face.
Jodi learned valuable life lessons about grief and loss after experiencing the death of both her parents when Jodi was in her 20’s. As a funeral director, she’s seen all the aspects of grief and how every individual has their own personal style of grief.
In her newest book “It’s Complicated!” - What You Should Know About: Social Security, Medicare, Medicaid, Long Term Care, End-of-Life Wishes and more”, Jodi provides guidance to help people advocate for themselves, know what questions to ask. All too often people receive well intended mis-information. Jodi’s book gives expert advice based on both her professional and personal experiences.
Connect with Jodi Clock at jodiclock.com.
Get your copy of “It’s Complicated! - What You Should Know About: Medicare, Medicaid, Social Security, Long Term Care, End-of-Life Planning and more” here.
See all of Jodi’s books at jodiclock.com/books.
Book Jodi to speak at your event here.
Socials for Jodi:
Website: https://jodiclock.com/
LinkedIn: https://www.linkedin.com/in/jodi-clock-b988908/
Facebook: https://www.facebook.com/AskJodi/
Instagram: https://www.instagram.com/jodiclock/
Pinterest: https://www.pinterest.com/askjodi/
YouTube Channel: https://www.youtube.com/@JodiMClock
Podcast: https://jodiclock.com/i-woke-up-dead-podcast/
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Hospice nurse Eileen Spillane of Befriending Death has learned to be comfortable with the uncomfortable. Eileen is the Founder of Befriending Death and has been a Registered Nurse for over thirty years, specializing in Oncology, Critical Care, and Obstetrics. She is a certified Life Coach from New Ventures West, a former Zen Hospice Project Volunteer, a Meditation Teacher, and an Active Travel Guide. She has been at the bedside of many as they transition through the dying process and cares very deeply about this topic.
On the Befriending Death website, Eileen writes that “if we have conversations about it (death), we might loosen up the fear and anxiety around it. If we prepare and share our wishes, we can give our loved ones the gift of clarity and direction so they feel confident they are following our wishes and have the opportunity to grieve without further unnecessary stress”.
Eileen’s courses can benefit everyone, from people with life-changing illnesses to elder law attorneys and caregivers for someone with a chronic illness. The courses include smaller “buddy groups” that create a deeper connection between participants. The Let's Chat About Death course provides an opportunity to investigate what’s important in our lives and make changes that reflect that.
Find Befriending Death at befriendingdeath.com.
Read more about Eileen Spillane here.
Be a part of the Let’s Chat About Death course here.
Enroll in the Befriending Death, Befriending Your Life course coming Sept. 2024 here.
Send a message to Befriending Death here.
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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“What do I need to know about you as a person to take the best care of you?” This is how integrative palliative medicine physician Dr. Delia Chiaramonte starts conversations with her patients. It’s a Dignity Question that lets her patients know she cares about them as a person. Delia works in integrative palliative medicine to care for the whole person.
Dr. Delia Chiaramonte is a caregiver coach as well as an integrative palliative medicine physician. She’s the founder of the Integrative Palliative Institute and host of The Integrative Palliative Podcast. Dr. Chiaramonte is an adjunct assistant professor at the University of Maryland, has published textbook chapters in the fields of integrative and palliative medicine, and was voted a “Top Doctor” by her physician peers. Dr. Chiaramonte believes that self-care is part of the job description of every clinician.
Delia is the author of Coping Courageously: A Heart-Centered Guide for Navigating a Loved One’s Illness Without Losing Yourself. More information about Dr. Chiaramonte’s Courageous Caregiver program is available at www.CaregivingIsHard.com.
Connect with the Integrative Palliative Institute at integrativepalliative.com.
Find more information on the Courageous Caregiver program at caregivingishard.com.
Download Dr. Chiaramonte’s FREE Guide to Caregiving for Women caring for an aging or ill loved one here.
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
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End of Life Doula Trina Wacasey works to ensure that clients and families have the kind of personalized death care they want. Using family-guided care customized to fit their beliefs, needs, and wants, Trina guides caregivers through deaths, post-mortem care, and rituals after death.
After working in the corporate world, Trina was drawn to the work of an end of life doula. She volunteered at a hospice agency with their bereavement program, and completed training at the Conscious Dying Institute. The deep and meaningful conversations had great meaning for her. She was fascinated by how individual people feel about death and advance care planning.
As part of her Doula services, Trina offers families what she calls A Natural Goodbye. It’s an alternative to the traditional funeral. Here’s how she describes it:
“I offer my clients a unique opportunity to say a Natural Goodbye following the death of a loved one as an alternative to a traditional funeral or formal wake or visitation. They are invited to an intimate two hour, informal gathering in a private, safe space in the community for cherished time with their person.”
Trina is an educator, an encourager, and a companion for those who are walking through a death experience with someone they love.
Connect with Trina Wacasey at creatinghonoringspaces.com.
Get a copy of Trina’s Family Involved Death Care Checklist here.
Learn how Trina utilizes the Mini Mobile Suite here.
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Plan to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Today’s guest Dr. Qwynn Galloway-Salazar is a Veteran, death doula, compassionate educator, and the founder of In Their Honor, a national initiative raising awareness and addressing Veterans' unique challenges as they approach the end of life. Qwynn is also the spouse of a combat veteran and understands the role of veteran caregivers.
1 in 4 Medicare hospice patients is a U.S. military veteran - a quarter of the Medicare hospice population. Those veterans have special needs when it comes to the end of their lives. Qwynn recognizes the importance of identifying moral injury, a history of combat service, PTSD, and events of military sexual trauma (for both female and male veterans). Discussion of suicidal ideation and depression should also be a part of their end of life care. Often veterans have terminal illnesses that are related to their military service, including Agent Orange and burn pit exposure. The needs of veteran caregivers are unique as well. Their emotional response and grief may include resentment, depression, anger, guilt, and regret.
Find more information about In Their Honor at intheirhonor.info.
Connect with Dr. Qwynn Galloway-Salazar on LinkedIn here.
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Plan to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Dr. Kenneth Doka and Alex Lamorie of the Hospice Foundation of America’s Autism and Grief Project are advocates for people with autism. Dr. Doka is a prolific author, editor, and lecturer, past president of the Association for Death Education and Counseling, and a member and past chair of the International Work Group on Death, Dying, and Bereavement.
Alex Lamorie is an undergraduate student at the University of Maryland Global Campus and an autism advocate. He serves as an advisor on the Hospice Foundation of America's Autism & Grief Project. Alex's expressive grief artwork was featured in 2021 in the textbook Superhero Grief: The Transformative Power of Loss.
For any professional who works with grieving adults, having awareness of the needs of persons on the autism spectrum is an important part of their education. Adults with autism can be overlooked by bereavement and grief workers because their grief expression might look maladaptive, perceived as inappropriate, or not present at all. Alex, along with other autistic adults, contributes a vital perspective in his role as an advisor for the Autism and Grief Project.
The Autism & Grief Project provides resources for persons with autism, their families or intimate network, and grief and bereavement professionals. You can find the Project at autismandgrief.org.
Hear why Alex serves on the advisory board here.
If you’re an adult with autism, there’s support for you here.
If you’re a family member, caregiver, or support person for someone with autism who’s grieving, click here.
If you’re a clergy person, grief or bereavement professional, find resources here.
Socials for the Autism and Grief Project: Facebook Twitter (X) Insta YouTube
Find more information about the Hospice Foundation of America here.
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Plan to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Devin (D.S.) Moss brings a sense of reverence for life and a curiosity about death to his work as a chaplain. During a conversation with a Zen Master about Buddhist beliefs about the afterlife, the suggestion was made to him that he would make a good chaplain. Devin didn’t think he could do the work of spiritual care because of his humanist beliefs. He doesn’t believe in God. Turns out the Zen Master didn’t believe in God, either.
Despite a religious upbringing, Devin embraces nontheistic, or humanist, beliefs. His sense of exploration led him to attend seminary and become a chaplain. He has found great fullness and human connection in the work of a chaplain. After completing his CPE (Clinical Pastoral Education) internship, Devin accepted a position to provide spiritual care for an inmate on death row in Oklahoma. He spent most of 2023 supporting convicted murderer Phillip Hancock. Their relationship culminated in Hancock’s death by execution in November of that year.
D.S. is also the host of the Memento Mori podcast, a show about spirituality and death he started before he became a chaplain. He’s continuing his exploration and questioning in a new podcast coming the end of summer, 2024. You can find him at mystartingpoint.life.
Connect with Devin (D.S.) Moss on IG or IG for Remember to Die.
Watch Devin’s talk at EndWell 2023 here.
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Plan to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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1 in 4 Medicare hospice patients is a U.S. military veteran. End of life workers need to know how to take care of their special needs and enhance their quality of life. It’s important for EOL teams to know the signs of PTSD and how to listen when these patients (and their caregivers!) are communicating what they need.
Many military veterans experience trauma, guilt, and anger, causing what is identified as “soul injury”. Having a soul injury or PTSD creates a need for specialized care. Opus Peace has a great inventory tool for assessing whether someone has experienced a soul injury. The Soul Inventory is available for free on the Opus Peace website. You can access the Soul Injury Inventory here.
Every discipline on the hospice team, including the End of Life (or Death) Doula, brings skills that seriously ill and terminally ill veterans need. The caregivers providing support for those veterans need support as well. Those caregivers are advocates, coordinators, and spokespersons for the veterans they care about.
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Register for the Tree of Life Conference from the International Doula Life Movement here.
Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.
If you’re interested in becoming a certified death doula through IDLM, click here.
Access all the courses that IDLM provides here.
See all the events that IDLM is offering by clicking here.
Connect with IDLM on social media. Facebook IG YouTube
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Christina Keys can tell you the realities of being a caregiver for someone with a serious illness - the good, the bad, and the ugly. As the sole caregiver for her mother following a catastrophic stroke, Christina experienced financial, emotional, mental, physical, and relational impacts. The relationship between the two women was complicated, following a history of childhood abuse.
When her mom needed end of life care, Christina was juggling a full-time job as well as all of her mom’s care. The caregiving needs became much more intense, often requiring two people. End of life conversations were frequent so Christina knew exactly what her mother’s wishes were. One specific request was a casket from Costco! The hospice care got off to a rough start at first, but Christina found an agency that was a better fit for her mom’s care. Knowing she would need the additional support, Christina also engaged an End of Life Doula. Christina has taken the memories of her caregiving experience and all the lessons she’s learned to support other caregivers.
You can connect with Christina and the services she provides at christinakeys.com.
Socials for Christina Keys: Facebook TikTok Instagram LinkedIn
Find more caregiving resources at caregiving.com.
Register for the Tree of Life Conference from the International Doula Life Movement here.
Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.
If you’re interested in becoming a certified death doula through IDLM, click here.
Access all the courses that IDLM provides here.
See all the events that IDLM is offering by clicking here.
Connect with IDLM on social media. Facebook IG YouTube
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
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This trio of End of Life Doulas is educating the public and other doulas about EOL doula work, and how they support people as they die. Diane Button, Gabby Jimenez, and Angela Shook are sharing their wisdom along with practical guidance for doula work. With heart, compassion, and respect for the intensity of death, the three EOL doulas discussed the unknowns about doulas. They openly acknowledge the difficulties doulas face when starting their practice, and the public’s lack of awareness about doula work.
Diane, Gabby, and Angela have collaborated to write The Doula Tool Kit: The Complete Practical Guide for End-of-Life Doulas & Caregivers. It’s the quintessential guide to the services of EOL (or death) doulas, providing tips and templates for new doulas to jump-start their doula practice. Caregivers, nurses, and other hospice workers can benefit from the book as well. Anyone working with someone with a serious illness or their caregivers should know the work of End of Life Doulas.
Purchase a copy of The Doula Tool Kit: The Complete Practical Guide for End-of-Life Doulas & Caregivers by clicking here.
Connect with Diane Button at dianebutton.com
Find Angela Shook at angelashook.com.
Connect with Gabby Jimenez at The Hospice Heart website.
Register for the Tree of Life Conference from the International Doula Life Movement here.
Want to know more about doulas, or connect with others who are doing death doula work? Visit internationaldoulalifemovement.com.
If you’re interested in becoming a certified death doula through IDLM, click here.
Access all the courses that IDLM provides here.
See all the events that IDLM is offering by clicking here.
Connect with IDLM on social media. Facebook IG YouTube
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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