Afleveringen
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In this episode of the Sick Gaze Podcast, I sit down with Stephanie Pittman, a 40 year old woman living with ankylosing spondylitis. A revolutionary and telling episode, Stephanie and I closely examine power dynamics influencing the patient-doctor relationship that limit space for openness, transparency, and healing. Stephanie's intelligence and vulnerability shines light on the damaging effects of racist and sexist medical stigmatizing on patient self-esteem. Quote Stephanie: "I dismiss myself so that they can't dismiss me." We also explore ways to work around this, how to resist safely, and how to say no! Truly a favorite episode of mine, so thank you Stephanie!
Take care of your spoons!
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In this episode of the Sick Gaze, Olivia and I discuss all types of relationships, from partners to employers to physicians, and the benefits and trials of navigating each when factoring in chronic illness. We discuss medical dismissal and invalidation, and how to still hold on to hope. Olivias lighthearted sense of humor and heartwarming candor makes this episode a great one! Please enjoy.
Take care of your spoons!
If you're interested in being interviewed for this podcast, click here. -
Zijn er afleveringen die ontbreken?
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On this episode of the Sick Gaze, with special guest Diane Carroll, we dive deep into the complexities of chronic illness. We dissect what it means to live a "normal" life, allowing us to take a closer look at how often we define ourselves by what we do, not who we are. Referencing her experiences with lupus, Diane graciously and hilariously guides us through self-acceptance and embracing the diversity of rich lived experiences. Diane shares the deep challenges of living with lupus, kidney disease, and a kidney transplant, as well as encourages others to break free of the shame associated with disability. She shows us, along with all of the other amazing participants of this podcast, that through chronic illness, there can be suffering as well as liberation. We also examine racial disparities in kidney disease evals and treatments in the SC Lowcountry and the broader context of racial injustice in healthcare. Diane's resilience inspires us all to "just keep showing up".
Take care of your spoons!
If you're interested in being interviewed for this podcast, click here. -
In this episode of The Sick Gaze, I sit down with Sarah Klotzbach, a young woman living in the South Carolina Lowcountry who is navigating life with hypermobile Ehlers-Danlos syndrome, Postural Orthostatic Tachycardia syndrome, and Mast Cell Activation disorder. Sarah guides us through her day-to-day life, sharing her relatives' understanding of illness from a devout Christian background, gender roles when living with illness, what productivity means when you're sick, and the performance of femininity and disability. We unravel the intricacies of power dynamics in the patient-doctor relationship, examining how these dynamics shape the healthcare experience for individuals with chronic conditions. She offers a candid exploration into the intersections of health, gender, and faith. I truly loved talking with Sarah, and this episode has a special place in my heart. Her honesty and emotion were so healing for me and for the younger version of me, who really needed to hear this at the time.
Prepare to gain a deeper understanding of the multifaceted challenges that individuals with chronic illnesses face, as we navigate through Sarah's story with empathy, compassion, and a commitment to fostering a more inclusive and understanding society. For more from Sarah, follow @lovethyselfcollective on Instagram and LoveThyselfBySarah on Etsy.
Take care of your spoons!
If you're interested in being interviewed for this podcast, click here. -
Welcome to the second episode of The Sick Gaze podcast! On this compelling journey, we embark on a mission to shatter the silence surrounding invisible illnesses, amplify patient stories of enduring chronic pain, and dismantle the barriers within healthcare that disproportionately affect them. Today's guest is the wonderful Sydney Severance, a 19 year old Charlestonian, College of Charleston student, and activist living with hypermobile Ehlers-Danlos Syndrome, gastroparesis, Mast Cell Activation Syndrome, and Dysautonomia. In this candid but lighthearted conversation with Sydney, she shares her history of illness, starting from being a totally healthy high school athlete to living in a dark room with no stimulus for years. Together, we dive into the complexities of societal perceptions of disability and how to manage changing friendships when people do not understand your life anymore. Sydney skillfully guides us through the nuances of living with illness when it's both invisible and visible, dealing with body image, and frankly, her gratitude and knowledge shine through. I really enjoyed doing this episode and speaking with Sydney. Through all of her loss and hardship, she has created purpose and a space for healing for others, not to mention she is just a lovely soul to be around!! Tune into this enlightening episode of The Sick Gaze to gain a deeper understanding of the invisible battles faced by many and to join the conversation on reshaping societal perceptions of chronic illness.
Follow @operationupright for more of Sydney's content!Take care of your spoons!
If you're interested in being interviewed for this podcast, click here. -
Welcome to the very first episode of The Sick Gaze podcast! On this compelling journey, we embark on a mission to shatter the silence surrounding invisible illnesses, amplify patient stories of enduring chronic pain, and dismantle the barriers within healthcare that disproportionately affect them. Today's guest is the amazing Alyssa Nickles, an artist from Charleston, SC, living with hypermobile Ehlers-Danlos syndrome, Mast Cell Disease, and craniocervical instability. In this thought-provoking episode, join our candid conversation with Alyssa, who shares her personal experience living with a chronic illness. Together, we delve into the complexities of how society perceives and understands illness when it remains hidden from plain view and attempt to conceptualize disability from a different perspective. Alyssa skillfully guides the discussion through the nuances of living with an invisible illness, exploring the impact on mental health, relationships, and identity. She recounts instances where her symptoms were downplayed or overlooked by medical professionals, sparking a crucial conversation about the need for increased awareness and empathy within the healthcare system. Tune in to this enlightening episode of The Sick Gaze to gain a deeper understanding of the invisible battles faced by many and to join the conversation on reshaping societal perceptions of chronic illness.
Take care of your spoons!
If you're interested in being interviewed for this podcast, click here.