Afleveringen
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Rachel Krieger is a Primary Nurse Practitioner and when her son Oliver presented troubling physical symptoms when he was 9 months old, Rachel took him to the pediatric emergency room at New York University where an MRI revealed a large tumor on his Cerebellum in April of 2019. This tumor turned out to be the Pediatric Brain cancer known as Atypical Teratoid Rhabdoid Tumor or ATRT. Oliver has gone through some very toxic and difficult treatments including a full brain and spine radiation procedure. Oliver was considered stable in 2022 and is still considered stable as he approaches his 6th birthday. Rachel will talk about her son's fight and about the Non-Profit Ollie's Orchestra that she and her husband Max started to help pediatric cancer patients.
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In 2021 Ann Ramer and Bobby Krabill, members of the State of Ohio's Board of Health joined forces to create a State Cancer Plan which is focusing on Pediatric Cancer to help increase awareness of this disease and make it much easier for families who are going through this battle to navigate all of the issues and questions that can come up during this time period. This plan is now in its 3rd year of a 10 year program which has already made great strides for these families in Ohio, and promises to continue this path for many years to come.
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Zijn er afleveringen die ontbreken?
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When Ramona Jarvis's 19 month old daughter Leila was running on and off fevers, she was told by Leila's doctors that these were caused by viruses and that her fevers would go away. Unfortunately that was not the case and during that summer of 2017 , Leila was diagnosed with High Risk Stage 4 Neuroblastoma. After a harrowing regiment of treatments which included 132 days of being an inpatient, Leila was put on a DFMO Clinical Trial at the Arnold Palmer Children's Hospital in November of 2018 which ended in 2020. Today, Leila is 4 years past this Clinical Trial and thankfully is both doing and feeling well.
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Ashley Guthrie's eldest son Davis was diagnosed with Acute Lymphoblastic Leukemia when he was 6 years old and now at 16, is well into his survivorship years after his pediatric blood cancer battle. Ashley volunteered at the Children's Hospital in Chattanooga Tennessee while Davis was in treatment and is now the Clinical Liasion and Board Member of the Austin Hatcher Foundation for Pediatric Cancer. This Foundation was started by Amy Jo and Dr. James Osborn after the passing of their son Austin in 2006 from Brain and Spinal Cancer.
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Just by chance on a Saturday evening in 2021, Courtney Marzilli noticed a lump on her then 6 year old daughter Chloe's thigh. This lump turned out to be a tumor and Chloe was diagnosed with Rhabdomyosarcoma just before she turned 7 years old. Chloe went through a 42 week Chemotherapy treatment protocol at the Jimmy Fund Clinic in Boston and completed her treatment in the fall of 2022. Now 10 years old, Chloe is doing well physically and thankfully is leading as good of a life as posssible.
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Pain and suffering were a major part of Estella Patrick's life ever since she was born with Spina Bifida in 2004. Fortunately Estella had surgery to correct this Spinal Cord disease when she was 3 months old and now is an extremely talented and successful artist and illustrator. Her illustrations have appeared in 3 books which have been published by authors who are well known members of the Pediatric Cancer community.
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Melissa Rodger's then 9 year old daughter Chloe had a lingering cold in July of 2022 and was told by a doctor that her cold was just a product of "back to back" viruses. Not too long after that Chloe was dehydrated and this time she was sent to a hospital emergency room where she was quickly diagnosed with Acute Myeloid Leukemia. Chloe had to undergo 2 Bone Marrow transplants with first, Melissa, and then her father Luke being her donors. Today Chloe is back in school, doing very well, and hopes to graduate from 6th grade when the academic year ends in December. Melissa will also talk about her own hard fought battles with Anxiety on today's podcast.
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The discomfort that 5 year old Anthony Terrell was suffering from in late 2022 was originally thought to be simple growing pains, but by March of 2023 he was diagnosed with Acute Lymphoblastic Lymphoma which was quickly changed to a diagnosis of Acute Lymphoblastic Leukemia. Anthony is now roughly 40 percent into his Continuation Therapy protocol and he is doing so well that his doctors have put his survival rate chances at 96 percent.
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In 2008, Dr. Susannah Koontz left her role as a Clinical Pharmacy Specialist at MD Anderson and started her own Oncology Consulting business called Koontz Oncology Consulting, which she has been at since 2008. Dr. Koontz will first discuss some of the improvements and standards that she initiated at MD Anderson which still are in place today, and then talk about her consulting company and the different interest groups that she deals with and the different facets of Pediatric Oncology that are of prime importance, as she tries to help these kids and the treatment that they receive for their own cancer battles.
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The joy of the birth of Savannah Hansen on July 6th of 2023 was muted as there were bruises all over her tiny body as she was born. These bruises signified Acute Myeloid Leukemia. Savannah's mom Sarah will talk about her ordeal which ended up with Savannah being transferred from her local hospital in Las Vegas to Children's Hospital of Los Angeles where she completed her treatment on January 29th of 2024. Savannah is doing as well as possible health wise.
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Ryan Soileau's son Henry had a heart rate of 250 when he was 6 weeks old in February of 2020 when he was taken to the emergency room by his mom and Ryan's wife Ashley. It was discovered that Ryan was suffering from Bone Marrow failure which has a one in a million chance of happening. Remarkably, Ryan is now well on his way to leading a healthy life as his Bone Marrow has recovered on its own and the Bone Marrow transplant that the doctors at St. Jude thought he would need, has been taken off the table and Henry is feeling as well as possible, some 4 years after his original diagnosis.
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Just 4 months after her 13 day old son passed away from a heart defect in the fall of 2016, April Standring's 2 1/2 year old daughter Mazy was diagnosed with a high risk form of Leukemia . April will talk about the journey that Mazy and her family have been on which took a very positive turn in July of 2019 when Mazy was able to ring the bell at her hospital, signifying the end of her treatment. Mazy is now 9 years old and living her best life possible.
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The original intent that Chelsea Craigs and Mandi Noland had was to invite stay at home moms to get together for a social gathering. What happened after that was that this "Social Gathering " became a Non-Profit to help families in Arizona who had children that were battling some type of Pediatric Cancer. This non- profit was named the Copper Rain Foundation, and is really just in its infancy as it becomes more and more involved in finding children and families to focus on and to advocate for in this Pediatric Cancer fight.
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Katie Histing was diagnosed with Ewings Sarcoma as a 17 year old during the Christmas season of 2018. Katie has battled with this form of Pediatric Cancer for 5 1/2 years and had what was hoped to be her final Chemotherapy treatment 7 months ago, just after her Stem Cell transplant. Through all of her difficult times, Katie is doing what she can to give back to others through her Katie's Collective business which features her beautiful artwork. Yesterday May 1st was Katie's 23rd birthday. In the cruelest twist, Katie found out the heartbreaking news that a recent blood test confirmed that her cancer was back and that there are no curative options for her at this point. Katie deserves all of the prayers and support we can give to her and one way that we could honor Katie and her fight is to consider purchasing a shirt or donating to her shirt fundraiser. The link to that is https://www.customink.com/fundraising/hibiscus-of-hope.
You can also purchase Katie's art products at https://katiescollectiveus.etsy.com -
N'Jhari Jackson had 2 polyps removed from his vocal chords when he was 5 years old and has struggled mightily with physical and mental issues for the last decade and a half. Now a University of Florida graduate, N'Jhari will detail his life which has been dedicated to giving back to others in need, and , despite struggling with the aforementioned issues, has accomplished a great deal and won many awards in his still very young life. One of his many accomplishments has been being a member of Dick Vitale's All Courageous Team in which N'Jhari was highlighted in Dick's book UNTIL MY LAST BREATH : FIGHTING CANCER WITH MY YOUNG HEROES. All of the proceeds from this book will benefit the Dick Vitale Pediatric Cancer Research Fund at the V Foundation for Cancer Research.
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Maurice Ahern and his family were living in China in 2010 when his 1 year old son Micah was diagnosed with Neuroblastoma. Maurice will talk about quickly moving his family to Orlando to have Micah's surgery and his 6 year ordeal fighting this disease which ended with his passing in July of 2016. Maurice will also talk about his love for the Food Industry and for Baking, which he has used for the past 7 years to help honor the memory of Micah and keep his legacy alive.
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Hearing loss is a very well known side effect and long term effect that survivors of Pediatric Cancer must be aware of, especially if they are being treated with Cisplatin during Chemotherapy, which is a very effective medicine in helping to save lives of these children and adolescents . Holly Reames and Eric Meyer, who work at Fennec Pharmaceuticals will talk about the ramifications of this hearing loss, which if it happens, is always permanent.
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For the past 3 years Mariah Forster Olson and Mary Beth Collins have been working on a Toolkit to help Pediatric Cancer survivors and their families try and navigate through the period when they have gone past the 5 year mark since their cancer diagnosis, but have many issues to conquer both physically and mentally because of what they went through during their cancer experiences. This toolkit is now available and has already helped many patients and their families who have entered the Survivorship phase.
Mariah and Mary Beth are both members of the very important and successful Non-Profit known as the Coalition Against Childhood Cancer or CAC2. -
Tabitha Odom thought that her 2 year old daughter Sailor might have the flu when she brought her to a Walk In Clinic in November of 2022 as she had not been feeling well. Later that night Tabitha became worried when she received a phone call at 9:00 PM and said that Sailor needed to go to a hospital emergency room. After that she was sent to UTMB Hospital in Galveston Texas where Tabitha was told that Sailor had B Cell Acute Lymphoblastic Leukemia. Tabitha will talk about Sailor's successful treatment protocol in which she is expected to complete her maintenance program in January of 2025.
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In April of 2023 Vickie Stevens and Don McCarthy's little son Rio was experiencing a loss of appetite, limping instead of walking, and losing energy. After a stay at a local hospital did not solve the question of what was wrong with Rio, he was transferred to a large hospital in London and was finally diagnosed with Stage 4 Neuroblastoma. Rio is now into his 8th month of treatment and the hope is that he will at some point be able to travel to Memorial Sloan Kettering in New York to take a drug that has proven to be highly successful in treating Rio's form of Neuroblastoma . Vickie and Don will also talk about the organization Solving Kids Cancer which has proven to be very helpful for their family and many others in England. www.solvingkidscancer.org.uk/children/rio+1
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